Previous Thread
Next Thread
Print Thread
Page 1 of 13 1 2 3 12 13
#94621 - 04/30/09 01:54 AM List of Easy Foods  
Joined: Jun 2007
Posts: 9,778
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,778
PA
Thought this might be helpful to those who are struggling to eat normally. Avoid buying things that are spicy or have alot of salt in them, instead buy low (or no) sodium and make as much as possible from scratch.

soft scrambled eggs with cheese
poached eggs
yogurt
pudding
cheesecake
milkshakes (I used to drink choc/peanutbutter milkshakes daily)
baked beans mashed up like mashed potatoes
mashed potatoes
mashed sweetpotatoes, or candied sweet potatoes
chicken and stars soup
wonton soup
french onion soup (can make very easily at home, just beef broth and sauteed onions, piece of toast on top and provolone cheese broiled to melt it)
pancakes w/ real maple syrup or smucker's blueberry syrup
french toast
canned carrots
peas or green beans mashed
glazed carrots
cottage cheese
buttered soft, fresh white bread with jelly
soft serve ice cream
applesauce
tomato soup made with milk
zucchini squash either dipped in egg and lightly fried or sauteed in butter
jello
canned peaches or pears
asparagus (overcooked)
baked potato with butter and sour cream


Some meats are very tender when cooked in a pressure cooker like turkey legs.

To help balance your diet, add a scoop of dry carnation instant breakfast to milkshakes.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#94931 - 05/05/09 10:47 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
2 things,, the sweet potatoes should be baked, them smothered in a butter brown sugar and just a touch of cinnamon. these potatoes are as soft as anything and you don't need to mash them. and as for the carrots, get the large ones to cook because the baby ones stay too firm. As for peaches, get the elberta freestone ones, they are much more tender.. the cheesecake of Christines is delicious


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#96563 - 06/03/09 01:18 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Mar 2009
Posts: 18
traci Offline
Member
traci  Offline
Member

Joined: Mar 2009
Posts: 18
Decatur, GA
Thank you so much for the list. Any other input from anyone else would be great too. What about rice, oatmeal, grits? Are these too grainy/dry/sticky etc to go down comfortably (beginning stages of trying to eat again)? AND anything with some calories too it?? Thanks.


Traci
*******
Spouse to Lew (59)(5 family members DX)
SCC IVA/T1N2M0 BOT DX 9/08 /Tonsillectomy(cl)/ TX 12/08 (TPF)x2 /RT x35 w 7 wkly (Taxol, Carboplatin, Erbitux) Finish 4/09 / Port /no peg lost 105lbs/ 2/10 CT clear/HBOT x30/all teeth out and implants placed
www.asilentepidemic.webs.com
#96568 - 06/03/09 02:12 AM Re: List of Easy Foods [Re: traci]  
Joined: Jan 2009
Posts: 216
CherylR Offline
Gold Member (200+ posts)
CherylR  Offline
Gold Member (200+ posts)

Joined: Jan 2009
Posts: 216
Indiana
cream of wheat and oatmeal and ramen noodles worked for my H. My best guess is because they were bland and nothing tastes right. Occasionally he can eat some other stuff (when we aren't battling thrush) and then spaghettios work well.


CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
#96582 - 06/03/09 03:20 AM Re: List of Easy Foods [Re: CherylR]  
Joined: Nov 2008
Posts: 14
ehall1 Offline
Member
ehall1  Offline
Member

Joined: Nov 2008
Posts: 14
California
I find that skim milk is great whereas whole milk is too much. Cream of wheat and oatmeal are also not bad. Mayonaise is okay but catsup is deadly. Almost all of the vegetables if steamed well. A quesadilla is not too bad, but a sandwich is not. It is really weird what is good and what is not, and what you can actually eat and what you can't. Cheryl hit it right on the head when she said that nothing tastes right.


Male Age 65 non smoker, non drinker T2N1M0 2 Jun 2008 Partial Glossectomy & neck dissection; lymph node tumor right neck 27 Jan 2009 Modified neck dissection, 26 Feb-16 Apr 2009 Erbitux, 9 March - 20 April RT; 11 Sep 2009 lymph node tumor left neck; 4 Nov removal of manubrium and large tumor
#96588 - 06/03/09 06:10 AM Re: List of Easy Foods [Re: ehall1]  
Joined: Sep 2006
Posts: 1,332
Pandora99 Offline
"OCF Canuck"
Pandora99  Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Sep 2006
Posts: 1,332
Winnipeg, Manitoba Canada
Cream of tomato soup - soak cheese bread pieces in it. Sounds gross but it is wonderful and gives you that carb hit that you need when you are having trouble finding suitable food.

Donna


Donna,63, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV.New primary R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 11 yrs from 1st dx, 7 yrs since 2nd dx. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL!
#96590 - 06/03/09 06:18 AM Re: List of Easy Foods [Re: Pandora99]  
Joined: Feb 2007
Posts: 1,940
Cookey Offline
"OCF across the pond"
Cookey  Offline
"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
Harewood -Yorkshire, UK
oooh tomatoes are very acid,dont they burn the mouth?


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#96611 - 06/03/09 12:49 PM Re: List of Easy Foods [Re: Cookey]  
Joined: Sep 2006
Posts: 8,311
davidcpa Offline
Administrator, Senior Patient Advocate
davidcpa  Offline
Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
Traci,

Re calories, get Carnation Instant Breakfast VHC. It has a whopping 560 nutritionally balanced calories in a small 8 oz can. I drank them during Tx and for over a year post Tx to boost my caloric intake by mixing it with whole milk, half and half. Lew needs a ton of calories daily now to combat this recovery process.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#96613 - 06/03/09 01:55 PM Re: List of Easy Foods [Re: davidcpa]  
Joined: Jan 2009
Posts: 216
CherylR Offline
Gold Member (200+ posts)
CherylR  Offline
Gold Member (200+ posts)

Joined: Jan 2009
Posts: 216
Indiana
The tomatoe thing is pretty "iffy" at our house - some days Mike can eat tomatoe sauce and sometimes it bothers him. Most food doesn't taste right to him yet so when I cook for me and the kids I have him just taste a little of everything to see if we can hit on what comes closest. He's still using lots of Ensure Plus.


CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
#96634 - 06/03/09 08:12 PM Re: List of Easy Foods [Re: CherylR]  
Joined: Sep 2006
Posts: 8,311
davidcpa Offline
Administrator, Senior Patient Advocate
davidcpa  Offline
Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
Cheryl,

Have you considered Carnation Instant Breakfast VHC? It has appx 50% more calories in the same size can.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#96647 - 06/04/09 01:45 AM Re: List of Easy Foods [Re: davidcpa]  
Joined: Jun 2007
Posts: 9,778
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,778
PA
Traci, watch out for the rice. I almost choked to death on it. I have now discovered mashed baked beans are really very good on top of mashed potatoes. Cream of wheat and mashed bananas are good too.

Cream of tomato soup for me is really tasty. I used to do what Donna does with a very lightly grilled cheese. Without my teeth, cant do that anymore. I think the milk in the soup helps to tone down the acid. Im also about 20 months post radiation.

I used to drink a couple chocolate/peanut butter milkshakes daily. Add a scoop of dry carnation instant breakfast and top with whipped cream. My shakes were huge and had about 2500+ calories in them. Believe it or not, I would sometimes drink 3 per day and still didnt gain any weight when I was recovering.

To me its all about texture. Foods that are smooth are easy to eat.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#96785 - 06/06/09 02:02 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Apr 2006
Posts: 583
DM32ASA Offline
"Above & Beyond" Member (500+ posts)
DM32ASA  Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Washington
Hi all, Also for those that want the tomato soup.. do as stated above with milk, add a pinch of sugar & dab of butter. The sugar will help cut the acid in the tomato's.

You can add sugar to home made spaghetti sauce as well.

Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#97832 - 06/22/09 03:02 AM Re: List of Easy Foods [Re: davidcpa]  
Joined: Jun 2009
Posts: 3
Vixmommy Offline
Member
Vixmommy  Offline
Member

Joined: Jun 2009
Posts: 3
Long Island
I recently discovered something (well I was given a some by a friedn who was concerned about my continued weight loss) called Spiru-tien Whey - made by Nature's Plus it comes in a can premade or individual envelopes or large can of powder (that's the one I have been using)- it's a little pricy in the health food stores where it is generally sold but I was able to find it much more reasonably proced on the internet

It comes in a bunch of flavors but I have only had the vanilla so far which I found very tasty ( which suprised me since I don't like the taste of anything very much anymore)

It has 100 % of the vitamins you need - more than the instant breakfast but doesn't supply a lot of calories - ( I think it is actually marketed to people trying to lose weight) so instead of the recommended lowfat milk I have been using whole milk and occassionally (If I have it in the evening) I have been adding a couple of scoops of vanilla ice cream to it to add to the calorie and fat count.

I have not gained any weight since I ahev started using it but I have not lost naymore either which is a good thing! I also feel a lot more energetic.

I also suggest cream soups like cream of potato, cream of tomatoe, lobster bisque. I also find broiled scallops and barbequed baby back ribs (super mild barbeque sauce need ed though!) very easy to eat


#103392 - 09/13/09 12:35 AM Re: List of Easy Foods [Re: traci]  
Joined: Sep 2009
Posts: 1
miss alice Offline
Member
miss alice  Offline
Member

Joined: Sep 2009
Posts: 1
Iowa, USA
Traci, I just got diagnosed and had the surgery 2 wks ago. I am finding baby food tastes pretty good. Just ate rice cereal with some baby food pears mixed in. It even tasted good cold. I have also been using the Gerber baby food spoons that have the silicone 'bowl.' There aren't any rough edges dragging across the tongue. It is still VERY PAINFUL for me to swallow. My ear hurts the worst. They say it is referred pain. I hope this suggestion helps you.

#103417 - 09/14/09 01:39 AM Re: List of Easy Foods [Re: miss alice]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
I tried another experiment yesterday. Cook some tomatoes with green beans , add some onion, garlic, pasley, basil, just a touch of oregano and a shot of sauce that you like. Cook angel hair pasta very well done and pasty for us with no teeth. Mix it and mash it with a fork. It really tasted good and add some romano and parmesan cheese to cover it and go for it. I handed some to the neighbors and they liked it. LOL so did I. Let the beans and tomatoes cook for at least 3 hrs . then mix it.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#104189 - 09/25/09 09:57 PM Re: List of Easy Foods [Re: EzJim]  
Joined: Sep 2009
Posts: 229
boatswife Offline
Gold Member (200+ posts)
boatswife  Offline
Gold Member (200+ posts)

Joined: Sep 2009
Posts: 229
Kingsland, GA
Pot Roast
1 beef chuck roast (the one that has some marbling, about 3 pounds)
1 pack Lipton onion soup mix
2 cans condensed cream of mushroom soup
2/3 can of water
1 small onion, sliced
Splash of olive oil
favorite seasoning

In a large stock pot, heat olive oil in medium heat.
Season the pot roast with salt/pepper or your favorite seasoning.
Sear the pot roast on all sides.
Add onion.
Mix soup, water and lipton package together and pour over roast. (this will be thick, but the roast will put off a lot of juice to make it thinner)
Cover and simmer for 3 hours. I turn the roast over a couple of times during the 3 hours.

At the 3 hour mark, the roast will be falling apart. The bigger the roast, the longer the cooking time.
I always cook my roasts this way and it's great every time, but the key is the cooking time. You'll know when it's falling apart when you move it.....it's done.
This recipe makes a lot of gravy, but if you want more you could add another can of soup and increase the water up to a full can.

I took some roast and added the gravy into the blender. The puree came out nice and smooth. If you don't like mushrooms, I think you will still be ok with this recipe. With it pureed, you just can't taste them.


Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
#104246 - 09/26/09 02:38 PM Re: List of Easy Foods [Re: boatswife]  
Joined: Jul 2007
Posts: 211
Sophie H. Offline
Gold Member (200+ posts)
Sophie H.  Offline
Gold Member (200+ posts)

Joined: Jul 2007
Posts: 211
Maryland
Patty,

That sounds delicious. Thanks for sharing.

Sophie


Sophie T.

CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+
induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear
#104370 - 09/29/09 06:28 AM Re: List of Easy Foods [Re: Sophie H.]  
Joined: Sep 2009
Posts: 229
boatswife Offline
Gold Member (200+ posts)
boatswife  Offline
Gold Member (200+ posts)

Joined: Sep 2009
Posts: 229
Kingsland, GA
I just made this yesterday and it was really good.

Black eyed pea soup:
The last time we had a spiral ham, I saved the bone with some meat still on it and put it in the freezer.
I soaked a pack of dried black eyed peas overnight (filled a stock pot with water and put the beans in). Rinsed them in a colander and added them to my crock pot. I nestled that ham bone in the middle and poured chicken stock (Swanson's) to cover everything.

I cooked it on low overnight and stirred it the next morning. I kept it on low until lunch time then pulled the bone out. The beans were soft and flavorful. The ham was tender, but it might still need a touch of the blender. You could always leave the ham out. I didn't add any other seasoning.

Just wanting to pass this on. I had a very hard time thinking of soft foods, so when I come across something I liked, I don't want to forget it.


Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
#104398 - 09/29/09 10:00 PM Re: List of Easy Foods [Re: boatswife]  
Joined: Sep 2009
Posts: 148
Dianne MH Offline
Senior Member (100+ posts)
Dianne MH  Offline
Senior Member (100+ posts)

Joined: Sep 2009
Posts: 148
Rochester, NY
Hello Friend's, Because I am new to the site, I have not read all that there is posted already. I am just going to throw some ideas out there as "Food For Thought" Here are some of the food items I am able to eat (without choking to death) Water-from a Brita pitcher (change filter @ least every 3 months) I keep my water @ room temp. Breakfast, Instant oatmeal (reg flav.) I add a little sugar @ cin. RaisinBran, I add milk & let it soak for 20min (I add a little coffee too!) I really missed not being able to eat toast, so I came up w/this "gravy"- Melt 3T Butter in small sauce pan, add 2 T of flour, keep stirring, next add milk, cream or water, keep stirring until you get the thin/thickness you like. Add some mustard for color. Make toast, eggs over easy & pour "gravy" over it all. The rest of what I eat is mostly,Soups, Salads & Pasta. A Ballpark Hot dog, boiled and eaten with loose mashed potatoes and (frozen) chopped spinch is good. I don't use my microwave to much. If it wasn't for the high prices, I would eat all organic! I want to keep the pounds off, so this menu works for me. Not being able to eat cookies, cake, bread, pizza etc...is a help!!! The only thing I really miss...Potatoe Chips ! Even w/dip, its just too hard to get down. During the 3rd week of radiation, I never thought I would be able to talk or eat ever again, now I am able to do both...as long as I have water, I'm good to go ! All My best Wishes to you all. Please, don't give up, ever ! Dianne


BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"

*** Admin update --- Dianne has passed away on August 25, 2015 ***
#104435 - 09/30/09 01:33 PM Re: List of Easy Foods [Re: Dianne MH]  
Joined: Sep 2009
Posts: 60
Flip Offline
Supporting Member (50+ posts)
Flip  Offline
Supporting Member (50+ posts)

Joined: Sep 2009
Posts: 60
MI
The first "Solid" food I was able to handle was Mrs. Calendar's Chicken pot pies. Lots of gravy in them and once they cool slide down easily. I must have eaten a hundred of those things. They really kept me from dropping even more weight.


Flip
_________________________________
Age: 54 SCC Tonsil + 3 nodes
Radiation and Carboplatin
Treatment 4/1 - 6/7/2009
No surgery, no PEG
Never smoked
Drink socially (brew my own beer and love wine. A bottle of scotch lasts me a couple of years)
CT 11/4/09 No sign of envolvement in Tonsil or nodes
#104659 - 10/05/09 06:28 AM Re: List of Easy Foods [Re: Flip]  
Joined: May 2009
Posts: 35
JojoFlores Offline
Contributing Member (25+ posts)
JojoFlores  Offline
Contributing Member (25+ posts)

Joined: May 2009
Posts: 35
Manila, Philippines
Hi everyone. This is only my 2nd time to post anything in this Forum, so pls bear with me. It is very encouraging to see your suggested food lists and how you can actually eat these foods. If any of you has a very similar case as I have, I would be grateful if you could share some tips on how to actually 'eat' foods. I made a similar post under "What is the best way to learn to eat?" but have not received any response so far, so maybe here I will solicit one: I had my tongue surgery this March 2nd, where about 90% of my tongue was removed (only a small part of the right side originally remains), replaced with a flap from my front left thigh and permanently anchored to the floor of my mouth. It's now a little over 3 months since completing my chemo (3 sessions, cisplatin) and radiation (30 sessions, @ about 15 min per session) therapies and it was just recently that I am able to drink water/liquids with no problem. But I am still using a PEG for my blenderized food and my challenge now is being able to eat solid or even soft food. Since my tongue flap is anchored to the floor of my mouth, I could only chew food between my teeth but obviously could not manage to control the movement of food in my mouth. I miss eating, as I'm sure all of you also did prior to your being able to eat again. Thank you in advance for your responses.


Diagnosed: 16Feb'09
Pre-op Dx: Tongue SCCA Stage IVB (T4N2cM0)
Opn: 2Mar'09. Total glossectomy, Neck dissection (Levels I-V), bilateral; Anterolateral, Thigh flap recon'n; Tracheostomy; PEG
Decanullation: 24Mar'09
IMRT x30, concurrent with chemo (cisplatin) x3: May-Jun '09
PEG out: 23Oct'09
#104710 - 10/06/09 06:12 AM Re: List of Easy Foods [Re: JojoFlores]  
Joined: Mar 2008
Posts: 403
Karen Rose Offline
"OCF Down Under"
Karen Rose  Offline
"OCF Down Under"
Platinum Member (300+ posts)

Joined: Mar 2008
Posts: 403
Melbourne, Australia
Jojo

I can understand your frustration at trying to move food around in your mouth to swallow it. It can be very upsetting. I have had about 70% of my whole tongue removed and the tongue flap attached and permanently stuck down to become the floor of my mouth.

There are not alot of active posters on the board at the moment who have actually had the same procedure. I have had nearly all of my lower teeth removed due to another surgery so being unable to chew makes it difficult.

I have lots of vegetable and other soups and mushy things. Also mashed vegetables, potato with gravy and things like peaches and cream, pancakes are okay with syrup and icecream, chocolate mouse and custard.

If you start with milkshakes or soups and then slowly but surely you will hopefully move on to the mashed vegetables and so on.

As I said, I know it is soo frustrating, and I miss eating a normal meal more than I can ever express. From my experience, it takes time to go from one step to the next. Just a little step at a time.

Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
#104758 - 10/07/09 03:47 AM Re: List of Easy Foods [Re: JojoFlores]  
Joined: May 2009
Posts: 35
JojoFlores Offline
Contributing Member (25+ posts)
JojoFlores  Offline
Contributing Member (25+ posts)

Joined: May 2009
Posts: 35
Manila, Philippines
Thank you, Karen, for your reply and I'm glad to be writing to someone with very similar experience as I have (I actually empathize with you in that you have obviously gone through more than I have).

I will take up your advise and will send you a PM if I have specific questions.

Will keep in touch.

Jojo


Diagnosed: 16Feb'09
Pre-op Dx: Tongue SCCA Stage IVB (T4N2cM0)
Opn: 2Mar'09. Total glossectomy, Neck dissection (Levels I-V), bilateral; Anterolateral, Thigh flap recon'n; Tracheostomy; PEG
Decanullation: 24Mar'09
IMRT x30, concurrent with chemo (cisplatin) x3: May-Jun '09
PEG out: 23Oct'09
#104899 - 10/09/09 03:04 AM Re: List of Easy Foods [Re: JojoFlores]  
Joined: Oct 2009
Posts: 4
kathyf Offline
Member
kathyf  Offline
Member

Joined: Oct 2009
Posts: 4
New York
Hi JoJO
I just bought a book call "One Bite At A Time" by Rebecca Katz. Her father had throat cancer and she has but together this great book. I was able to get it at borders. I bougtht her first and second edition books. Well written and helps you during differnt times of treatment.
Hope it helps
Kathy

Last edited by kathyf; 10/09/09 03:32 AM.
#105009 - 10/11/09 06:09 AM Re: List of Easy Foods [Re: kathyf]  
Joined: May 2009
Posts: 35
JojoFlores Offline
Contributing Member (25+ posts)
JojoFlores  Offline
Contributing Member (25+ posts)

Joined: May 2009
Posts: 35
Manila, Philippines
Hi Kathy,

Thanks for your reply. I will certainly check out that book in stores here.

Jojo


Diagnosed: 16Feb'09
Pre-op Dx: Tongue SCCA Stage IVB (T4N2cM0)
Opn: 2Mar'09. Total glossectomy, Neck dissection (Levels I-V), bilateral; Anterolateral, Thigh flap recon'n; Tracheostomy; PEG
Decanullation: 24Mar'09
IMRT x30, concurrent with chemo (cisplatin) x3: May-Jun '09
PEG out: 23Oct'09
#105012 - 10/11/09 12:12 PM Re: List of Easy Foods [Re: JojoFlores]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
Jojo. If it sounds as if maybe the food can be blended and made very soft, try it. Just don't try a lot of it just incase it doesn't work for your mouth. I have no teeth and not much tongue left , scar tissue like we all have and Rad burns. Nothing any firmer than thick pudding will work at all. Just keep experimenting with foods . It seems the easiest food for me besides cream of wheat , poached eggs, some juices, spaghetti that has been well over cooked so a fork can pulverize it with a lot of plain sauce and pancakes not burned but just done are the easiest. Soups after being put in the blender and made thin also work as do some other foods. Good Luck Jojo.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#105032 - 10/12/09 03:57 AM Re: List of Easy Foods [Re: EzJim]  
Joined: May 2009
Posts: 35
JojoFlores Offline
Contributing Member (25+ posts)
JojoFlores  Offline
Contributing Member (25+ posts)

Joined: May 2009
Posts: 35
Manila, Philippines
Thanks, Jim.

My intermediate goal is to be able to remove my PEG without of course sacrificing any nutritional value using this.

My breakfast is composed of muesli with additional walnuts and almonds, plus fruits (a small fuji apple, kiwi, a few grapes, banana), with a hard-boiled egg or two, blenderized in 1 cup of non-sweetened organic soy milk + 1/3 cup of yogurt juice drink + some water to make the consistency thinner. A few days ago, I tried taking in orally this concoction but the sandy/gritty consistency, no matter how blenderized it is, and the after-taste it leaves on the walls of my mouth and gums, make it a challenge. So I had to switch back to using the PEG.

For lunch in the office, I take Ensure which I obviously have no problem drinking.

Dinner is even more of a challenge than the breakfast concoction I mentioned above: vegetables (blanched broccoli, grean beans, carrots, squash, onion, garlic) with extra virgin olive oil, plus flakes of either boiled fish or chicken breast, blenderized with 2 to 3 cups of plain water.

I will have to experiment more, as you suggest, to find a better blenderized breakfast or dinner (or even lunch), consistency- and taste-wise, with adequate nutrition.

Thanks again. I'll give you folks feedback.

Jojo


Diagnosed: 16Feb'09
Pre-op Dx: Tongue SCCA Stage IVB (T4N2cM0)
Opn: 2Mar'09. Total glossectomy, Neck dissection (Levels I-V), bilateral; Anterolateral, Thigh flap recon'n; Tracheostomy; PEG
Decanullation: 24Mar'09
IMRT x30, concurrent with chemo (cisplatin) x3: May-Jun '09
PEG out: 23Oct'09
#105062 - 10/13/09 01:45 AM Re: List of Easy Foods [Re: JojoFlores]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
Jojo. I must admit I am jealous and admire you. Nuts too??? Wow,. I used to love nuts and always had a can of them at my computer desk. My biggest treat seems to be beef stew after I removee the chunks of beef , then i blend it. Yep Jojo I added you to my heros list.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#105100 - 10/13/09 03:02 PM Re: List of Easy Foods [Re: EzJim]  
Joined: May 2009
Posts: 127
mightymouse Offline
Senior Member (100+ posts)
mightymouse  Offline
Senior Member (100+ posts)

Joined: May 2009
Posts: 127
Connecticut
Jojo, a great smoothie from someone on this website -- I don't remember who, but I thank them! -- has been a staple for me when I couldn't eat much. And it tastes delicious! Here are the ingredients:

1 Ensure or Boost
1/2 c. oatmeal
1/2 c. vanilla yogurt
one frozen banana (broken into pieces and frozen in plastic bag)
1/4 c. milk
1 scoop protein powder (vanilla is best)

Blend really well -- that way the oatmeal won't be gritty. It makes two LARGE glasses-full, so a complete meal's-worth, at least.

Enjoy.


Chris

Stage 2 SCC upper right palate
Hemi-palatectomy and maxillectomy 5/28/09
Six teeth gone
IMRT x30 starts July 13. Completed 8/26/09
Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.
#105140 - 10/14/09 02:35 AM Re: List of Easy Foods [Re: mightymouse]  
Joined: May 2009
Posts: 35
JojoFlores Offline
Contributing Member (25+ posts)
JojoFlores  Offline
Contributing Member (25+ posts)

Joined: May 2009
Posts: 35
Manila, Philippines
Thank you, Chris. That smoothie does appear delicious just reading the ingredients! I'll try that.

I failed to mention in my earlier post that preparing the muesli with nuts in soy milk + yogurt juice overnight in the fridge helps to soften these ingredients, before adding the fruits in the morning and then finally blending them all. This also helps save time before going to work. Microwave, if one wishes, to desired temp the overnight mixture before blending.

Cheers.

Jojo


Diagnosed: 16Feb'09
Pre-op Dx: Tongue SCCA Stage IVB (T4N2cM0)
Opn: 2Mar'09. Total glossectomy, Neck dissection (Levels I-V), bilateral; Anterolateral, Thigh flap recon'n; Tracheostomy; PEG
Decanullation: 24Mar'09
IMRT x30, concurrent with chemo (cisplatin) x3: May-Jun '09
PEG out: 23Oct'09
#105141 - 10/14/09 02:44 AM Re: List of Easy Foods [Re: EzJim]  
Joined: May 2009
Posts: 35
JojoFlores Offline
Contributing Member (25+ posts)
JojoFlores  Offline
Contributing Member (25+ posts)

Joined: May 2009
Posts: 35
Manila, Philippines
Thanks, Jim. I haven't tried any beef or pork yet as I don't have the 'guts' yet to take these stuff, and I crave a lot when I smell these being cooked by the family. Your suggestions encourage me, however, to start trying these foods, one step at a time...

Jojo


Diagnosed: 16Feb'09
Pre-op Dx: Tongue SCCA Stage IVB (T4N2cM0)
Opn: 2Mar'09. Total glossectomy, Neck dissection (Levels I-V), bilateral; Anterolateral, Thigh flap recon'n; Tracheostomy; PEG
Decanullation: 24Mar'09
IMRT x30, concurrent with chemo (cisplatin) x3: May-Jun '09
PEG out: 23Oct'09
#105156 - 10/14/09 12:15 PM Re: List of Easy Foods [Re: JojoFlores]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
Jojo, I went to the grocery here and got the butcher to cut me off a nice piece of fat, the good tasting fat from pork chops, LOL I brought it home and fried it because that usually melts in you mouth. THat was so good to have pork taste in my mouth, LOL The taste only lasted for one or 2 bites, but sure was worth going for. I wish I could get him to do that for me with the tail of a porterhouse or T-Bone.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#105157 - 10/14/09 12:17 PM Re: List of Easy Foods [Re: EzJim]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
By the way, I can't chew but have to mash or just suck the juice out of foods. Right now I can't even do that with this pain.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#106312 - 11/03/09 03:40 PM Re: List of Easy Foods [Re: davidcpa]  
Joined: Sep 2009
Posts: 148
Dianne MH Offline
Senior Member (100+ posts)
Dianne MH  Offline
Senior Member (100+ posts)

Joined: Sep 2009
Posts: 148
Rochester, NY
I received this via email from Everyday Health; 10 Cancer Fighting Foods; 1.Garlic 1 bulb per day. 2. Berries; Blueberries, blackberries & strawberries; handful per day. 3. Tomatoes (make marinara sauce pour over whole wheat pasta) 4. Vegetables; broccoli, cabbage & cauliflower. 5.Tea; Green(best) & black. 1 or more cups per day. 6.Whole Grains; Oatmeal, barley, brown rice & whole wheat bread & pastas. 7. Tummmeric (orange colored spice). 8. Spinach,lettuce, cooked;collard greens, mustard greens & kale. 9. Red grapes, grape juice & red wine. 10. Beans;pinto & red kidney beans.


BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"

*** Admin update --- Dianne has passed away on August 25, 2015 ***
#109691 - 01/02/10 01:51 PM Re: List of Easy Foods [Re: davidcpa]  
Joined: Jan 2010
Posts: 1
RAGHAV Offline
Member
RAGHAV  Offline
Member

Joined: Jan 2010
Posts: 1
Chandigarh, India
My relative is suffering from oral cancer, stage 1 or 2. He cannot eat anything solid, are their any suggestions for diet through mouth which he can swalllow straightaway, withour having to chew it.

#109712 - 01/02/10 11:53 PM Re: List of Easy Foods [Re: RAGHAV]  
Joined: Nov 2009
Posts: 91
Pam M Offline
Supporting Member (50+ posts)
Pam M  Offline
Supporting Member (50+ posts)

Joined: Nov 2009
Posts: 91
Kentucky
RAGHAV,

Lots of people here will be able to give you some helpful ideas on ways you can help. Do you have access to nutrition supplement drinks?

I do know that several people also have worked with blending or pureeing foods so that they can be taken as a drink, rather than chewing.

Wish I could be of more help. Others will be checking in later, who are perhaps not here because of the holiday. Perhaps they can be of more assistance.

I get info here by reading old posts, sometimes. Perhaps you could click on the "Hop to: Menus, food ideas" "Go" button near the bottom right of your screen and look at what some others have discussed.

It's good of you to want to help. I wish you well.

- Pam


44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS!
#109822 - 01/05/10 08:33 AM Re: List of Easy Foods [Re: Pam M]  
Joined: May 2009
Posts: 35
JojoFlores Offline
Contributing Member (25+ posts)
JojoFlores  Offline
Contributing Member (25+ posts)

Joined: May 2009
Posts: 35
Manila, Philippines
RAGHAV,

I'm into my 3rd month now without a PEG and have been taking only blenderized / pureed food since I still can't take solid food yet. I can chew solid food but because of total glossectomy my tongue flap is permanently attached to the the floor of my mouth and therefore could not control the food in my mouth. Hence it's a lot easier for me to just swallow pureed food (for now, until I find the right technique).

If there are no dietary restrictions, your friend can practically have anything that can be pureed, for whatever is acceptable to your friend's taste. Your friend can try experimenting different mixtures. You will find this generic suggestion in this forum, as I have when I myself was asking similar questions.

Here is what I have for my meals:
Breakfast/Lunch - bowl of muesli with walnuts and almonds soaked overnight in unsweetened organic soy milk (flavor varies depending on my mood), added with various fresh fruits the following morning, with two hard-boiled eggs and some carrot juice. I also add a few scoops of Ensure. All these blended to a smoothie, adding some water (or more carrot juice) as needed to get the consistency I want.
Lunch/Dinner - blanched vegetables (usually: broccoli, green beans, carrots, other green vegetables), sauteed in a few teaspoons of extra virgin olive oil with minced onion and garlic, finally adding flakes of boiled fish fillet or chicken breast. All these are pureed in either chicken or beef broth, with a small banana, adding broth as needed to get my desired consistency. Occassionally, I would also add a few scoops of Ensure.

I have to say that between these two sets of pureed meals, I prefer the taste of the the first set by 3x...at least.

My weight has been constant between 63 and 65 kg, which is ideal for my BMI (body mass index). Except for slightly low iron level in my blood (which I augment by taking iron supplements), all my CBC results post-surgery have so far shown normal readings. And I haven't suffered from colds since then. So from these indicators, I guess I can safely assume that my pureed meals work for me.

Hoping that you and your friend find the right non-solid food meals.

Jojo


Diagnosed: 16Feb'09
Pre-op Dx: Tongue SCCA Stage IVB (T4N2cM0)
Opn: 2Mar'09. Total glossectomy, Neck dissection (Levels I-V), bilateral; Anterolateral, Thigh flap recon'n; Tracheostomy; PEG
Decanullation: 24Mar'09
IMRT x30, concurrent with chemo (cisplatin) x3: May-Jun '09
PEG out: 23Oct'09
#109863 - 01/05/10 08:09 PM Re: List of Easy Foods [Re: JojoFlores]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
I fix dressing for turkey, chicken or to go with beef flavors. Then I make gravy and saturate it with this. It goes down pretty easy and gives you a break from the normals we seem to all eat. As for nuts and anything esle solid. That would tear my mouth apart or what is left of it. Nut flavored Cheerios is as close asI dare go. I made fatty ribs for the NY and let it cook all day in a crock pot. The fat was delicious and even managed a couple pieces of the well done pork.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#109864 - 01/05/10 08:10 PM Re: List of Easy Foods [Re: EzJim]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
This was cooked in kraut for the flavor I love.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#109938 - 01/07/10 12:49 AM Re: List of Easy Foods [Re: EzJim]  
Joined: Nov 2009
Posts: 91
Pam M Offline
Supporting Member (50+ posts)
Pam M  Offline
Supporting Member (50+ posts)

Joined: Nov 2009
Posts: 91
Kentucky
MM, Jim - we do Pork and kraut for New Year's.


44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS!
#109947 - 01/07/10 02:42 AM Re: List of Easy Foods [Re: Pam M]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
You have good taste Pam. That fat was delicious for sure. I will never have dentures according to my Oncologist unless I go and get them just for show and not tell him.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#109965 - 01/07/10 04:11 AM Re: List of Easy Foods [Re: EzJim]  
Joined: Nov 2009
Posts: 396
homershoney Offline
Platinum Member (300+ posts)
homershoney  Offline
Platinum Member (300+ posts)

Joined: Nov 2009
Posts: 396
spring, texas (houston)
wow, that sounds delish jim!


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
#110020 - 01/08/10 01:08 AM Re: List of Easy Foods [Re: homershoney]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
I sure thought it was the best thing that has been in my mouth the last 2 1/2 yrs. Go for the gold. Teresa....


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#110386 - 01/15/10 12:37 AM Re: List of Easy Foods [Re: EzJim]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
Here is one I tried about 1:30 this morning while waiting for my computer to end the system restore. I was thinking of food, so I mixed up about1/2 of a soup bowl with pancke batter, then put about 2 tablespoons of Skippy Creamy peanut butter into the microwave to melt it. Mixed them together and fried the best pancake I have had. Put lots of butter and spread a small amount of syrup on the top. This one is worth trying for sure.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#110687 - 01/19/10 04:02 PM Re: List of Easy Foods [Re: EzJim]  
Joined: Nov 2009
Posts: 396
homershoney Offline
Platinum Member (300+ posts)
homershoney  Offline
Platinum Member (300+ posts)

Joined: Nov 2009
Posts: 396
spring, texas (houston)
mmmmm....im hungry!


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
#110763 - 01/20/10 10:26 PM Re: List of Easy Foods [Re: EzJim]  
Joined: Mar 2008
Posts: 3,082
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)
Charm2017  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Alexandria VA
EZJim

Wow - sounds great, especially to someone who has not been able to eat even one bite of food since February. Enjoy those pancakes brother.
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
#110846 - 01/22/10 12:42 PM Re: List of Easy Foods [Re: Charm2017]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
If it can mashed between what's left of a tongue and the roof of the mouth,, it's a banquet. LOL I really feel bad for you charm. Man you have had your share of troubles.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#110850 - 01/22/10 02:34 PM Re: List of Easy Foods [Re: EzJim]  
Joined: Mar 2008
Posts: 3,082
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)
Charm2017  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Alexandria VA
EZJim

Not half as many troubles as you have endured brother. If the cancer had not come back, my story would have been more like Lance Armstrong positive, but since it did come back, I am trying to be more Christopher Reeves like in optimism. Reading about your indomitable spirit helps me keep it all in perspective. Finally, I feel blessed and lucky in having a world class caregiver. You and Christine are doing the hero & heroine act on your own for the most part - so please don't feel bad for me. In the end, I have it quite good.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
#110863 - 01/22/10 08:09 PM Re: List of Easy Foods [Re: Charm2017]  
Joined: Sep 2009
Posts: 148
Dianne MH Offline
Senior Member (100+ posts)
Dianne MH  Offline
Senior Member (100+ posts)

Joined: Sep 2009
Posts: 148
Rochester, NY
Enjoyed a meal from McDonald's today for the 1st time since 2/08 ! The new BigMac Wrap with small order of french fries. I put it all on a plate (@home) then poured my "cream sauce" over the entire thing, then added a little Thousand Island dressing. (cream sauce:Melt butter in small sauce pan add flour, mustard and milk or water). Feel a little guilty for eating any McDonald's, but it was a treat for just a change !


BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"

*** Admin update --- Dianne has passed away on August 25, 2015 ***
#110868 - 01/22/10 09:46 PM Re: List of Easy Foods [Re: Dianne MH]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
Man am I jealous Dianne. I wish I could even gum a burger or fries. LOL I wonder how that would work in my blender. I bet that was like a gormet meal to you tho.Keep up the good work. CHARM, I agree you must have a world class caregiver and she is a hero too just like you. You are an inspiration.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#111017 - 01/26/10 06:06 PM Re: List of Easy Foods [Re: EzJim]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
Yesterday I made bean and split pea soup with bacon . I wish the bites after the 1st one or 2 tasted as good. I kewpt it soupy and overcooked it so the beans were like mush. Buttered bread heavy and put the sooup over it to soak. Very easy to make and I guess good for you too.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#112599 - 02/17/10 02:14 PM Re: List of Easy Foods [Re: EzJim]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
This morning, I added not only peanut butter to pancake mix but some peach preserves as well. It was very good but a different type of preserves might have been better. Somethinmg with a more pronounced flavor like raspberry or a stroger fruit flavor.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#112823 - 02/20/10 02:12 PM Re: List of Easy Foods [Re: EzJim]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
Today I blended a can of peaches to a liquid and added it to the pancake batter, I added quite a lot and it had a great taste. I used plenty of creamry butter to it after it was done, It had great flavor, much better than preserves did.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#118929 - 07/03/10 11:38 AM Re: List of Easy Foods [Re: EzJim]  
Joined: Jun 2007
Posts: 9,778
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,778
PA
Bringing this back up to the top for newer patients.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#119002 - 07/04/10 10:12 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Jun 2010
Posts: 153
Stily1 Offline
"OCF Canuck, across the pond"
Stily1  Offline
"OCF Canuck, across the pond"
Senior Member (100+ posts)

Joined: Jun 2010
Posts: 153
London England
Great stuff on here. I have it better than many of you, in that I've had no surgery and I still have all of my tongue. I'm ~2.5 months from 7 weeks of radiation (33 sessions) with three rounds of chemo (Cisplatin). Did not require a feeding tube or port. Lost ~20 lbs during treatment.

My salivary function is very low (dry mouth). My taste has returned to a degree.

My tongue is heavily coated and I'm debating with myself if this might be an infection, or just a more-heavily coated tongue due to dry mouth.

Anything acidic triggers sore "water blisters" in my mouth and at the top of my throat, these may be "secondary salivary glands" that are plugged by damaged mucosa? Acidic things that I can't eat include tomatoes, salad dressing, red grapes, wine. Sometimes it just seems that eating too much of anything "solid" triggers these as well. It's difficult to predict what will set off my blisters and/or sore throat.

I've had good luck with bluberry pancackes and french toast (with lots of butter and real maple syrup), cheese and wilted spinach omlets with ketchup (ketchup is sweet enough to not sting?), rare filet mignon (it's very tender), rich salmon (mind the bones!), cucumber/cooked beets/blueberry salad (watch the dressing), melon (water, cantelope), steamed asperagus (again, lots of butter), baked sweet potatoes (with lots of butter), cottage cheese (good with honey, but there was a time when I coldn't eat this for some reason.....dry mouth? became a disgusting paste in my mouth), sweet yogurt.

Things like other cuts of beef, or beef that's not rare, and poultry tend to take on a "fibrous wad" character in my dry mouth and are very difficult to swallow, and drag on the way down with painful result. Also, anything that could be described as "massive and sticky" is a no-go: mashed white potatoes (you'd think they'd go down great), grilled cheese sandwich (even if chased with milk), ground beef.

Hope some of these are useful to some of you.

-Seth


47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.
#119004 - 07/05/10 02:35 AM Re: List of Easy Foods [Re: Stily1]  
Joined: Jun 2007
Posts: 9,778
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,778
PA
Seth, your coated tongue coould be thrush. Please ask your doc to check this. It takes prescription meds to clear this up.

You are doing very well with your eating and recovery.

Best of luck with continued improvements.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#119008 - 07/05/10 06:48 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Jun 2010
Posts: 153
Stily1 Offline
"OCF Canuck, across the pond"
Stily1  Offline
"OCF Canuck, across the pond"
Senior Member (100+ posts)

Joined: Jun 2010
Posts: 153
London England
Thanks ChristineB. Several weeks ago I had my Rad OC look at my tongue and he didn't think it was thrush. It's only on my tongue, and there is no associated tenderness. Also, it's been like this for quite a while and has not progressed or expanded. However, I would love to have it cultured just in case it's something like that. I will see what I can arrange.

Thanks again,

-Seth


47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.
#120716 - 08/20/10 05:21 PM Re: List of Easy Foods [Re: davidcpa]  
Joined: Aug 2010
Posts: 10
JScott Offline
Member
JScott  Offline
Member

Joined: Aug 2010
Posts: 10
Mooresville NC
Though not a gourmet food, spaghetti O's with meatballs was my first real food for a few weeks other than mashed potatoes and gravy. The tomatoe sauce is pretty watered down and didn't burn my mouth at all.

I am now trying to find something sweet I can eat, cake ,candy even cheese cake burns my mouth and ice cream/milk shakes taste terrible and I am not a big fruit eater


54 yr old male, Tongue and neck cancer , left side of tongue base and 1 lymph node on carated artery on the same side.Cells checked and they were HPV virous Positive. Dx 4/09 finished treatment in July 09, Clear cat scan and pet scan in june 10, also have MS Dx 8/08 and am type 2 diabetic.
#122562 - 10/01/10 06:20 PM Re: List of Easy Foods [Re: davidcpa]  
Joined: Oct 2010
Posts: 2
Memphisman Offline
Member
Memphisman  Offline
Member

Joined: Oct 2010
Posts: 2
Memphis, TN
Are these food ideas okay during treatment too or just post treatment?

#122570 - 10/01/10 08:53 PM Re: List of Easy Foods [Re: Memphisman]  
Joined: Jun 2007
Posts: 9,778
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,778
PA
This list is easy foods for those of us who struggle to eat. They are softer and usually not spicy so will be better tolerated in sore mouths. Its not specific to only after treatment. It would be good to eat for anyone with a sore mouth or any of the other issues faced by oral cancer patients.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#124315 - 11/07/10 12:43 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Jan 2009
Posts: 225
Cecilia Offline
"OCF across the pond"
Cecilia  Offline
"OCF across the pond"
Gold Member (200+ posts)

Joined: Jan 2009
Posts: 225
London suburbs- United Kingdom
We cook lamb stew because lamb is slippery.
But the dietician told us the best way for Martin to put on weight again easily was though dairy products. And it has worked! Martin is now a healthy slim. He changed to full fat milk, and eats creamy bio yogurts, creme caramel, panna cotta puddings, soft cheese like philadelphia, and dairy ice cream.


Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
#124316 - 11/07/10 01:00 AM Re: List of Easy Foods [Re: Cecilia]  
Joined: Aug 2007
Posts: 1,301
Gabe Offline
"OCF Down Under"
Gabe  Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Sydney NSW Australia
I am always amazed at the number of different dips at the supermarket.
If you can taste it may make a nice savoury change and if a little thick thin out with milk or cream.
I used some of these when I could first swallow slight solid food.
As I said variety is endless but you many need to go mild.
Here are some of the dips I liked ... salmon, caviar, hommus, avocado, beetroot, babaganoosh, spinach, char-grilled Eggplant etc etc


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

#124330 - 11/07/10 01:16 PM Re: List of Easy Foods [Re: Gabe]  
Joined: Sep 2010
Posts: 179
minniemoo066 Offline
"OCF Down Under"
minniemoo066  Offline
"OCF Down Under"
Senior Member (100+ posts)

Joined: Sep 2010
Posts: 179
Perth, Australia
That's a good idea Gabe, never thought if it. Do you eat the dips by itself or with something?

Minh


35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
#124340 - 11/07/10 07:47 PM Re: List of Easy Foods [Re: minniemoo066]  
Joined: Aug 2007
Posts: 1,301
Gabe Offline
"OCF Down Under"
Gabe  Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Sydney NSW Australia
At the time I could only eat them by themselves.
Now with corn chips or crackers but most dips are high in calories which is good for those that need to put on weight.
I can now eat mostly anything...just a bit slower than most!


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

#124363 - 11/08/10 06:45 AM Re: List of Easy Foods [Re: Gabe]  
Joined: Sep 2010
Posts: 179
minniemoo066 Offline
"OCF Down Under"
minniemoo066  Offline
"OCF Down Under"
Senior Member (100+ posts)

Joined: Sep 2010
Posts: 179
Perth, Australia
Thanx Gabe,

my mouth is watering thinking about it!! I'm definitely checking them out next time i do groceries shopping!!

Minh


35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
#125343 - 11/28/10 11:13 AM Re: List of Easy Foods [Re: minniemoo066]  
Joined: Sep 2010
Posts: 179
minniemoo066 Offline
"OCF Down Under"
minniemoo066  Offline
"OCF Down Under"
Senior Member (100+ posts)

Joined: Sep 2010
Posts: 179
Perth, Australia
The dips are great Gabe! have been trying all the different ones, my fave is smoked salmon wink


35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
#126834 - 12/27/10 04:05 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Dec 2010
Posts: 11
Susan t Offline
Member
Susan t  Offline
Member

Joined: Dec 2010
Posts: 11
New york
That is a great list. It takes that long after treatment to taste again?
You have been very kind and helpful

Thank you


Have been undergoing biopsies since 2008 until last October it can back cancerous tumor 2c on right side of tongue. Had surgery to remove and also neck dissection. That was Nov. 8th. After that extensive dental work an now Currently undergoing radiation on my second week.
#132788 - 04/10/11 08:10 PM Re: List of Easy Foods [Re: davidcpa]  
Joined: Mar 2011
Posts: 20
chrisclu Offline
Member
chrisclu  Offline
Member

Joined: Mar 2011
Posts: 20
CA
As far as tomatoes, I found after about 3 weeks into radiation, that I could enjoy raw tomatoes but got vill at cooked, like tomatoe sauce. Also enjoyed pasta with an olive oil based sauce.
Try angil hair pasta with broccoli and shrimp in Olive oil, garlic and white wine. I was able to enjoy that throughout the seven weeks of treatment.
Keep a journal of what (and when) you can eat and what to avoid as it will be of tremendous help to athers down the road.

Hang in there,
Chris


Stage 4 squamous cell tonsil cancer. Two lymph nodes involved surgically removed before source found to be tonsil. Implant radiation right on tonsil, regular mask radiation therapy for two months and a final Implant radiation. All clear confirmed by PET scans for 6 years.
#133225 - 04/21/11 06:29 PM Re: List of Easy Foods [Re: chrisclu]  
Joined: Jun 2007
Posts: 9,778
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,778
PA
My new favorite food is tiramisu!!!! I have always liked it and recently tried it to see if I could eat it. Well it was the best thing I ever tasted smile Its also high in calories with lots of protein too! Here is a picture in case you arent sure what it is, plus a nutrition breakdown (not the healthiest food).

tiramisu photo/info

tiramisu nutritonal info


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#133238 - 04/21/11 09:06 PM Re: List of Easy Foods [Re: chrisclu]  
Joined: Jan 2011
Posts: 168
Michelle Ann Offline
Senior Member (100+ posts)
Michelle Ann  Offline
Senior Member (100+ posts)

Joined: Jan 2011
Posts: 168
Massachusetts
Hi Chris: You were able to eat throughout radiation. I am impressed. Did you get mouth sores at all? -Michelle


SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
#133415 - 04/25/11 05:44 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Apr 2011
Posts: 2
Diane M-J Offline
Member
Diane M-J  Offline
Member

Joined: Apr 2011
Posts: 2
PA
I am so glad you mentioned tiramisu. It is one of my husband's favorites, and I did not think of it. I am going shopping!
Thanks,


Diane
#133431 - 04/25/11 11:24 PM Re: List of Easy Foods [Re: Diane M-J]  
Joined: Nov 2009
Posts: 493
zengalib Offline
Platinum Member (300+ posts)
zengalib  Offline
Platinum Member (300+ posts)

Joined: Nov 2009
Posts: 493
NW Ohio
Creme brulee is great, too!


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
#133433 - 04/26/11 12:20 AM Re: List of Easy Foods [Re: zengalib]  
Joined: Jun 2007
Posts: 9,778
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,778
PA
Oh yeah, I forgot about creme brulee. I love that stuff!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#133617 - 04/30/11 02:56 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Feb 2011
Posts: 79
Dave1989 Offline
"OCF Down Under"
Dave1989  Offline
"OCF Down Under"
Supporting Member (50+ posts)

Joined: Feb 2011
Posts: 79
Brisbane, Australia
Hey everyone.my newfound favorite food is sour cream!I wasn't a big fan of it before all this happened,but it's honestly made me enjoy my food alot more since I tried it recently.you can mix it with almost anything,and it's been delicious..you just get enough taste out of it.it's good with pastas,lasagna,etc.but I add it to almost everything I eat now.it makes swallowing easier too.just an idea..so if you're capable of eating it,it's definitely worth a shot.my fridge is now full of them smile


21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
#133624 - 04/30/11 06:22 AM Re: List of Easy Foods [Re: Dave1989]  
Joined: Aug 2007
Posts: 1,301
Gabe Offline
"OCF Down Under"
Gabe  Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Sydney NSW Australia
Hi Dave,
Have a look at my post on Page 7 of this topic on the 6th Nov 2010. If you love the sour cream ya gotta love the dips and there are so many flavours there is no need to mix...Give it a go mate crazy


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

#133628 - 04/30/11 01:13 PM Re: List of Easy Foods [Re: Gabe]  
Joined: Feb 2011
Posts: 79
Dave1989 Offline
"OCF Down Under"
Dave1989  Offline
"OCF Down Under"
Supporting Member (50+ posts)

Joined: Feb 2011
Posts: 79
Brisbane, Australia
Will do Gabe.cheers!I have tried a few different dips recently with cabana &/or soft,suitable buiscuts.very nice smile


21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
#140757 - 09/29/11 08:50 AM Re: List of Easy Foods [Re: davidcpa]  
Joined: Jun 2011
Posts: 188
Caco Offline
Senior Member (100+ posts)
Caco  Offline
Senior Member (100+ posts)

Joined: Jun 2011
Posts: 188
eastern us
going to bump this one up hoping it helps someone. the foods listed are great and we tried most of them. with limited to no taste buds, flavor wasnt really an issue.

his bigger thing is mental, my dad antcipates texture, chewing, how the food will "grow" in his mouth, leaving our best cullinary attempts untouched. carnation vhc only, and only vanilla works. we force him to drink one of those a day mixed with unflavored wey and vanilla icecream, and believe me, he still looks like a chipmunk storing nuts. he does make it work though as it is this or a peg, and he would not hear of a peg.


Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
#140774 - 09/29/11 01:58 PM Re: List of Easy Foods [Re: Caco]  
Joined: Jul 2010
Posts: 531
SUEZ Offline
"Above & Beyond" Member (500+ posts)
SUEZ  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
AURORA, OH
Ron always eats spoonfuls of Helluva Good onion chip dip! He also eats lots of small curd cottage cheese. The other day he got down for the first time Sourkraut and a little bit of Hillshire Farm smoked Keilbasa he cut up real small. He also always eats those little Michelena frozen meals in those little boxes or smart ones cuz he likes certain ones. He eats canned asparagus but has to watch out for the harder pcs and spinich he can get down too. He's sucked down fat from my brisket I made on the grill too! Also Bob Evans sausage biscuit and gravy and Stouffer's chip beef on toast he can suck down. So he's doing pretty good I'd say. Still skinny though but looking a "healthier" skinny.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
#142513 - 11/05/11 10:27 PM Re: List of Easy Foods [Re: SUEZ]  
Joined: Aug 2011
Posts: 10
missyb Offline
Member
missyb  Offline
Member

Joined: Aug 2011
Posts: 10
Lincoln, Ne
I puree Chunky soup and he eats that with mashed potatoes(with butter and milk). I also make gravy (or use canned) mix it with chopped up meat(beef or chicken usually) poured over potatoes.He eats lots of ice cream, Carnation, Boost. He recently discovered cake soaked in milk or cake mashed up in ice cream. I will make him anything he is willing to try because he has always been a picky eater.


Wife, he was diagnosed early 8/11, SCC-floor of mouth. Surgery 9/6/11, removal of cancer, part of tongue, salivary gland and lymphnodes, skin and vessels from arm to reconstruct, graft from leg to repair arm. T3N0. Radiation to start 10/11.
#142701 - 11/09/11 04:09 PM Re: List of Easy Foods [Re: missyb]  
Joined: Nov 2011
Posts: 5
momentsandmemories Offline
"OCF Canuck"
momentsandmemories  Offline
"OCF Canuck"
Member

Joined: Nov 2011
Posts: 5
Manitoba Canada
This has been very helpful, I have not had any treatments yet but being able to plan ahead is very much appreciated!

#142709 - 11/09/11 08:22 PM Re: List of Easy Foods [Re: momentsandmemories]  
Joined: Jul 2010
Posts: 531
SUEZ Offline
"Above & Beyond" Member (500+ posts)
SUEZ  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
AURORA, OH
I can add another if I didn't already but now I get from Walmart their Ham Salad it is chopped up pretty small and he just adds more Miracle Whip to it, ya he's not a Mayo person. lol


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
#142981 - 11/16/11 03:05 PM Re: List of Easy Foods [Re: momentsandmemories]  
Joined: Oct 2011
Posts: 4
B Ellis Offline
Member
B Ellis  Offline
Member

Joined: Oct 2011
Posts: 4
North Carolina
I survived on scrambled eggs cooked with goat cheese so they were more runny. For a while I tolerated apple sauce, mashed potatoes with no salt or pepper.

The truth it, what I could eat changed almost daily and so we just kept a bunch of stuff on hand.

Best wishes.


Swollen node, Diagnosed 04/05/10. Stage IV BOT SQCCA, 1 Lymph Node, Radiation and Erbitux, 5 weeks of Ethyol to protect Salivary Glands,no PEG. 10/20/10 PET clear.

I want to make sure other people know about this disease and HPV.
#143726 - 12/08/11 03:50 AM Re: List of Easy Foods [Re: B Ellis]  
Joined: May 2011
Posts: 267
msmac Offline
Gold Member (200+ posts)
msmac  Offline
Gold Member (200+ posts)

Joined: May 2011
Posts: 267
california
My friend came over last night and made me a shake containing one avocado, one can sweetened condensed milk, half a cup of vanilla ice-cream and a little regular milk. it had a really mild flavor, was easy to drink and had lost of calories and protein. Those amounts made an entire pitcher so I've been drinking it all day. Made a nice change from the canned supplements.


Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.
#143744 - 12/08/11 09:40 PM Re: List of Easy Foods [Re: msmac]  
Joined: Jul 2010
Posts: 531
SUEZ Offline
"Above & Beyond" Member (500+ posts)
SUEZ  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
AURORA, OH
I found yet another thing that Ron is getting down quite well and is exclaiming how good it is every time he eats it AND he has eaten the whole large crockpot that I made, I took to lunch 1 time this week the rest he has eaten and I froze a container for later in the winter.
Stuffed Pepper Soup! He puts it over 2 pcs of BUTTERED white bread with crust removed and he sucks that right down! Wahoo!
he told me "make sure you eat it with bread" when I took some for lunch.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
#144391 - 12/31/11 04:54 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Dec 2007
Posts: 138
x28007 Offline
Senior Member (100+ posts)
x28007  Offline
Senior Member (100+ posts)

Joined: Dec 2007
Posts: 138
Virginia
I am 4.5 years out now. Learning which foods I can no longer eat was easy....like POPCORN, for example. Learning the new mechanics of how to eat the foods I can has taken some time, but now I'm almost a "pro" at it. I'm into trying things again that I could not eat a year ago and thinking up simple new recipes that are quick and nourishing since I am on the go a lot. I just wanted to share a delicious little recipe for a hot breakfast that I concocted this week. If you like oatmeal, bananas and raisins then you should LOVE this! Bananas are not a problem but I cannot eat raisins by themselves for risk of getting them hung up in my throat. However, I was determined to find a way to eat them and still enjoy them! I open one packet of instant brown sugar and maple oatmeal into a bowl then add water just to the top of the oatmeal. That much water is usually sufficient so the oatmeal won't be too thick, but you can add a little more after it is cooked if you like the oatmeal thinner. (You can use plain oatmeal or any other flavor you like) Microwave on high for 40 secs. Slice up a whole banana and add to the cooked oatmeal then sprinkle with a handful of yogurt raisins or plain raisins, whichever you prefer. DELICIOUS, and very filling! Good for you too! Enjoy! Happy New Year to everyone!

Last edited by x28007; 12/31/11 04:57 PM.

Nine years out. New normal with limitations, but surviving and living life to the fullest.
#144394 - 12/31/11 06:19 PM Re: List of Easy Foods [Re: x28007]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
That is delicious! I like the Instant Peach Oatmeal, cut up dried prunes and add handful of cranraisins. Add just a little more water or milk than recommended on package. I like it with bananas, too. Serve with a little 1/2 and 1/2 after it's cooked.

BTW - Did you know that the Gourmet Jelly Beans (Jelly Bellies?) make a popcorn flavored jelly bean? For anyone having to be off the popcorn but still craving the taste.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#144400 - 01/01/12 04:45 AM Re: List of Easy Foods [Re: Anne-Marie]  
Joined: Jun 2007
Posts: 9,778
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,778
PA
If Im very careful, I can break up pieces of popcorn and manage to get a few pieces down. I used to LOVE jelly beans, how I wish I could eat those among other things.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#144405 - 01/01/12 04:37 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Nov 2009
Posts: 493
zengalib Offline
Platinum Member (300+ posts)
zengalib  Offline
Platinum Member (300+ posts)

Joined: Nov 2009
Posts: 493
NW Ohio
Went out to a restaurant in a nearby town called Mon Ami yesterday afternoon. Had a wonderful bowl of lobster bisque with a puff pastry crust, and creme brulee for dessert. I almost didn't even miss having a glass of wine. Always order creme brulee if it is available or flan when I am at a Mexican restaurant.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
#144448 - 01/03/12 03:12 AM Re: List of Easy Foods [Re: zengalib]  
Joined: Jul 2009
Posts: 38
MarkInOregon Offline
Contributing Member (25+ posts)
MarkInOregon  Offline
Contributing Member (25+ posts)

Joined: Jul 2009
Posts: 38
Tigard OR, United States
With over 2 years post tx, multiple dialations without improvement I've grown strangely fond of what I call the "picnic side dish" diet: baked beans, macaroni salad, and cole slaw. The slaw can be a bit catchy so I mix all three together in the bowl.


Mark
BOT Squamous cell, stage IIIa
#144458 - 01/03/12 03:44 PM Re: List of Easy Foods [Re: MarkInOregon]  
Joined: Jul 2010
Posts: 531
SUEZ Offline
"Above & Beyond" Member (500+ posts)
SUEZ  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
AURORA, OH
Saurkraut is another that Ron is able to get down with some mashed potatoes and mixes that all up with some juice from say pork roast or kelibasa! And the prime rib I made New Years day I took the fat and some really soft meat and cut that up for him very fine and he was able to get that down too and enjoy it!


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
#144469 - 01/03/12 10:28 PM Re: List of Easy Foods [Re: SUEZ]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Ohio
A trick that I do with harsh, raw veggies is to microwave them for a minute or two. When I do potato salad, I microwave the celery and onion before adding them to the other ingrediants.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#146771 - 03/05/12 03:46 AM Re: List of Easy Foods [Re: davidcpa]  
Joined: Feb 2012
Posts: 38
seattlepaul Offline
Contributing Member (25+ posts)
seattlepaul  Offline
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 38
Washington
One nice thing about OC, lets you think outside the box; mix foods you'd never otherwise.
Carrot salad w/raisons + canned pears
Yogurt/apple/bannana/cinnamon/bran muffin + cream of wheat
whole grain bread & milk or Mtn Dew or coffee.
Chinese wife makes boneless whitefish Chinese fashion (boiled in WOK), when osterized, is great break from chicken/beef tastes.
Wheat noodles mixed with anything makes the "anything" slippery, ditto with ensure.
I've found I can eat anything I like, as long as I can find a compatible liquid to liquidify it with.
Coffee is good liquid to add to fruit/vegies/bran muffins.
Be sure to add your fiber powers, nothing worse than constipion on puree diet
Since eating is no longer fun, you have to inject something 'odd' into it to make it interesting.

Last edited by seattlepaul; 03/05/12 03:47 AM.

69yo male, Steam Engineer, Me=4,SCC=0, loving wife, living life as it comes (no other option)
We are all born from Mother, but live and die alone.
Make the best of it, Mommie did all she could, daddy was just a guidance councelor, the rest is ALL up to you.
...and now, 3rd occurance: Surgery 5/1/12
#147502 - 03/28/12 01:14 AM Re: List of Easy Foods [Re: EzJim]  
Joined: Jun 2007
Posts: 9,778
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,778
PA
I have found a liquid high protein drink that I began using about a week ago. I think it might be helpful to other OCF members who also struggle to get enough protein in their diets. Its 25 grams of protein in 2.9 oz. I buy mine at Rite Aid but it is easily available thru the OCF Amazon link too. I dont care for the taste but it does come in many different flavors, I put it in my J/G tube.


Last edited by Brian Hill; 03/29/12 04:14 AM.

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#147591 - 03/30/12 01:22 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Jul 2010
Posts: 531
SUEZ Offline
"Above & Beyond" Member (500+ posts)
SUEZ  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
AURORA, OH
Baked Beans is Ron's favorite meal as of the past 3 weeks. I make a smaller roaster of them and he eats them ALLLL week long, he is exclaiming how his umm "bodily functions" are working quite well daily. smile that's a good thing I told him! Also he's actually been getting down Fresh Strawberries with sugar on them. Whatever it takes and whatever he wants go for it! Also I made Tuna patties yesterday recipe from the back of one of those packets of Tuna Herb and Garlic seasoning and he ate half of one with some Miracle Whip to help it down. Wow look at him go!! Finally his mouth is feeling so much better he isn't in pain from it like he has been. Fingers crossed it is finally healing up. So happy to see him eat again! And that's without teeth and his flap sewn down! But he still refuses to drink any liquids to help swallow. Good for him! Keep them muscles going.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
#148046 - 04/10/12 03:45 AM Re: List of Easy Foods [Re: Cookey]  
Joined: Feb 2012
Posts: 26
mick Offline
Contributing Member (25+ posts)
mick  Offline
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 26
boston,ma
everyone has a different reaction to their treatment. i also thought tomato sauces would be bad, but i had no problem, which was great because i could carbo up on pasta. try anything to get the calories and just find what works


after 3 sarcma flr mouth,fially removed, reconstruct from thigh muscle. 1/2 saliva glands removed, plus more glands than i can remember
#148336 - 04/16/12 12:23 AM Re: List of Easy Foods [Re: davidcpa]  
Joined: Apr 2012
Posts: 32
KenEggman Offline
Contributing Member (25+ posts)
KenEggman  Offline
Contributing Member (25+ posts)

Joined: Apr 2012
Posts: 32
VA, USA
Thanks for all the good info. Great suggestions.
Ken


48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer
#149267 - 05/08/12 01:31 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Feb 2012
Posts: 117
John of arc Offline
Senior Member (100+ posts)
John of arc  Offline
Senior Member (100+ posts)

Joined: Feb 2012
Posts: 117
New York
What do you do when everything makes your tongue burn?


Taking a break from the forum for a while. Thank you so much for your support if you've been supportive.
#149268 - 05/08/12 01:48 PM Re: List of Easy Foods [Re: John of arc]  
Joined: Jan 2009
Posts: 1,844
EricS Offline
Patient Advocate (1000+ posts)
EricS  Offline
Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
Idaho
Ask your Dr for Magic Mouthwash, it has lidocaine in it and will help with the burning. Pain meds should be your friend at the moment


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
#149276 - 05/08/12 04:54 PM Re: List of Easy Foods [Re: EricS]  
Joined: May 2012
Posts: 25
PepperPotts Offline
Contributing Member (25+ posts)
PepperPotts  Offline
Contributing Member (25+ posts)

Joined: May 2012
Posts: 25
South Carolina
I haven't had to have radiation or chemo but my tongue has felt as if it was burning from pretty much right after my surgery. My surgeon prescribed viscous lidocaine - it doesn't taste great but it helps a lot. I take some gauze and pretty much kind of soak it with the lidocaine and shove that in my mouth - just sort of leave it in there - right at the spot where my stitches are on my tongue - it takes a little bit to work but when it does, it is a HUGE relief. That stuff has saved me because the burning I was feeling was pretty intense and Lortab wasn't helping that at all.

For what to eat - I have a "Magic Bullet" which is basically a little blender system that blends 1-cup at a time. I became quite proficient at pulverizing chicken noodle soup to the right consistency so that I could take it through a straw. I also added a teaspoon of metamucil for fiber since all the meds can make you constipated. I tell you, it works like a charm and I was able to get all my protein that way. The Home Health people came by to check on me after surgery because they were going to teach me to feed myself through the feeding tube at home but I didn't need it when they saw how I was able to manage soups and such through a straw.

Gross as it may sound, I stocked up on some basic baby foods - I would use the green beans and sweet potato baby food and mix it with some chicken noodle soup and pulverize it in my bullet until I got it to the right consistency and that way I got my protein from the chicken, carbs from the noodles and veggies. The home health lady was a bit surprised but she said i was doing great. I was determined not to have the feeding tube when I left the hospital so that was my goal.

I use Biotene mouthwash and it doesn't irritate me at all - I also use their toothpaste because it doesn't burn like regular toothpastes do.

I have to be careful with some fruit juices because the acidity makes them burn my mouth - some tomato sauces, too...

Plain mashed potatoes were great when I wanted something a little more substantial but I still couldn't do anything solid... I also had cream of wheat but that can be challenging because you really, really have to rinse well afterward.


Carpe Diem!!
38, non-smoker, otherwise perfect health. Biopsy: 3/8/2012, SCC Dx Right Underside Tongue: 3/12/2012, Surgery: 4/11/2012 Partial Gloss + Neck Dissection to remove 29 nodes (all clear). No Rads or Chemo req'd. I believe my SCC was caused by product used in dental work.
#157291 - 11/08/12 06:50 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Oct 2012
Posts: 118
Bette Offline
Senior Member (100+ posts)
Bette  Offline
Senior Member (100+ posts)

Joined: Oct 2012
Posts: 118
Central California
My husband loves Scandi-Shakes made with ice cream. I buy them on the internet. They're a little pricey but well worth it. 600 calories without the icecream and just made with milk. And they don't taste like medicine.


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
#157326 - 11/09/12 04:17 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Jun 2007
Posts: 9,778
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,778
PA
If you buy Scandi Shakes online, do you get them from Amazon.com? If so, please go thru the Amazon link on the main forum pages. Take a look at the main forum pages at the green box nears the search box. Click on that box and then do your shopping. This will help keep OCF running by giving a 6% kickback from any purchase.

With the holiday season quickly approaching, PLEASE help by passing along OCF's Amazon link to all your friends and relatives. It may not seem like much when its done on a small order, but every cent really does matter to a small non profit like OCF.

Thanks!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#157409 - 11/11/12 04:18 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Feb 2012
Posts: 38
seattlepaul Offline
Contributing Member (25+ posts)
seattlepaul  Offline
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 38
Washington
I'm tired of all the food commercials, but happy to be reminded what a big mac or steak tastes like, I love to smell my wife cooking in her wok for herself, as I can consume only liquids, and those thru my stomach tube since 5/1/12.

I'm really tempted to waltz into a restaurant and order a cup of mashed potatoes and lots of gravy, any kind, then sneak into the restroom to pump it in.




69yo male, Steam Engineer, Me=4,SCC=0, loving wife, living life as it comes (no other option)
We are all born from Mother, but live and die alone.
Make the best of it, Mommie did all she could, daddy was just a guidance councelor, the rest is ALL up to you.
...and now, 3rd occurance: Surgery 5/1/12
#157411 - 11/11/12 05:35 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Sep 2012
Posts: 379
tina77 Offline
"OCF Canuck"
tina77  Offline
"OCF Canuck"
Platinum Member (300+ posts)

Joined: Sep 2012
Posts: 379
Edmonton, Alberta, Canada
HA HA Paul!

I would totally pay to see that!

For anyone less adventurous, I can suggest skim milk powder. It has protein (2 teaspoons has 9 grams of protein), and no flavor, so you can add it to anything


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
#157574 - 11/14/12 03:01 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Sep 2012
Posts: 64
LeftyS7 Offline
Supporting Member (50+ posts)
LeftyS7  Offline
Supporting Member (50+ posts)

Joined: Sep 2012
Posts: 64
Reno, NV
I'm trying to switch from shakes (935 calories, ea.) to solid foods. The list of soft foods look good, I've been eating scrambled and poached eggs, as well as cream of wheat and oatmeal, but how to add up to 900+ calories per meal? If I eat solids, which take a while to consume, then I'm filled up and don't want a shake and vice versa.


Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13
#157582 - 11/14/12 01:09 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Sep 2006
Posts: 8,311
davidcpa Offline
Administrator, Senior Patient Advocate
davidcpa  Offline
Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
With EVERY meal, EVERY day I drank a VHC (560 cals) in addition to my solid food well into my 2nd year post Tx to help me not only get needed calories but balanced nutrition.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#157595 - 11/14/12 07:14 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Ohio
Grits with cheese and butter is relatively easy to swallow and pretty dense calorie-wise. Get the instant grits; if the quaker dude (newly slender) is on the box, there is a perfectly acceptable recipe on the box.

Sausage slides down fairly well, but be careful about the spicing level - Bob Evans Original is fairly safe.

Noodles. Angel hair pasta with olive oil or cream sauce. Soba (buckwheat) noodles are easy and healthful.

Good luck!

Maria

Last edited by Maria; 11/14/12 07:16 PM.

CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#157601 - 11/14/12 11:28 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Apr 2012
Posts: 111
saxicola Offline
"OCF across the pond"
saxicola  Offline
"OCF across the pond"
Senior Member (100+ posts)

Joined: Apr 2012
Posts: 111
Edinburgh, UK
My most recent discovery in useful foods is real chocolate. As long as I have a hot drink I can manage to get through 50gs (half a bar) of 70% or higher cocoa chocolate. The hot drink helps to melt it and stops it sticking to my mouth. High % cocoa chocolate has lots of health benefits as well as being high in protein and fat. Even though the fat is saturated it is a healthy fat. This discovery has really cheered up my eating. It is a handy snack that I can carry in my bag. It goes particularly well with a latte, which gives extra calories and protein, though recent research suggests that the useful flavinoids can bind to milk proteins which stops them being available! This is a shame but hopefully there are still some that the body can use. Sally.


Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol.
10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12.
12/07/11 RIG. RIG removed 05/05/12.
4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
#157727 - 11/18/12 03:57 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Oct 2012
Posts: 118
Bette Offline
Senior Member (100+ posts)
Bette  Offline
Senior Member (100+ posts)

Joined: Oct 2012
Posts: 118
Central California
Christine,

The scandi-shakes can be bought directly from the manufacturer @ Axcan.com. You may also call them directly.

Last edited by ChristineB; 11/20/12 02:01 PM. Reason: removed telephone number

Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
#157737 - 11/18/12 08:36 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
Bette - Perhaps you could do a price comparison between Axcan and OCF's Amazon link. If you get the shakes from OCF's Amazon link, then Amazon gets a a small 6% on each order. Also, I've found that very often Amazon is cheaper on many things and many items are not taxed. Also on some items (not all) Amazon provides free shipping if the order is over $25.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#157745 - 11/18/12 04:07 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: May 2006
Posts: 719
Leslie B Offline
"Above & Beyond" Member (500+ posts)
Leslie B  Offline
"Above & Beyond" Member (500+ posts)

Joined: May 2006
Posts: 719
Washington DC
Originally Posted By: Anne-Marie
If you get the shakes from OCF's Amazon link, then Amazon gets a a small 6% on each order.

I assume you mean that OCF gets the 6%! (And OCF's Amazon link is a great one to use for all your holiday shopping...)


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
#157746 - 11/18/12 04:08 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Oct 2012
Posts: 118
Bette Offline
Senior Member (100+ posts)
Bette  Offline
Senior Member (100+ posts)

Joined: Oct 2012
Posts: 118
Central California
To answer Anne Marie question about price comparison. I just looked on Amazon and they sell a 4 pack for 12.38. From Axcan a 4 pack sells for 10.00. I buy them 3 (24 pk) boxes at a time and it's roughly 150.00 includes shipping. 72 pkgs. I think the manufacturer is cheaper.


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
#157830 - 11/20/12 02:05 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Jun 2007
Posts: 9,778
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,778
PA
I just checked on Amazon and Scandi Shake has several varieties. Which is the one you are using? Is it the weight gain one?


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#158004 - 11/24/12 09:25 AM Scandishake  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
II went to Amazon's OCF link just now at:

Amazon Scandi shake

And when I punched in "Scandishake", the "Black Friday Deals of the Week" came up with what looks like some good deals on Scandishake, one of them I noticed was 1 case (36 each) for $106.18 (down from $205.34). Don't know how long the "Black Friday" deal lasts, but it might be worth checking out.

Last edited by ChristineB; 11/24/12 01:43 PM. Reason: fix link

Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#158053 - 11/25/12 02:25 AM Re: Scandishake [Re: ChristineB]  
Joined: Oct 2012
Posts: 118
Bette Offline
Senior Member (100+ posts)
Bette  Offline
Senior Member (100+ posts)

Joined: Oct 2012
Posts: 118
Central California
Christine,

The Scandi-Shake that we use doesn't appear on the Amazon.com website. That's not to say they are not the same. My husband likes the strawberry flavored instant shake mix that has 600 calories when mixed with 8 oz. of whole milk. I decrease the mix by 2 oz and a big scoop of vanilla ice cream extra rich and they told me at the hospital that bumps it to 800 calories. He really likes these because they taste like a real shake. He uses Ensure plus when we travel but they have a mediciney taste for him. I also get their Scandi-Cal which is a tasteless powder and add 3 tbsp to each shake. (1 tbsp. = 35 calories) I can bump his shakes another 100 calories and he doesn't have to drink as many. They really fill him up. I understand that Amazon donates to OCF but they seem a little high. I buy directly and get 72 packs for $150 and no shipping. I'm not sure what the scandi cal costs but I just ordered some and when I recieve it will post that price as well.

I often buy the vanilla as back up for when Reg gets tired of the strawberry. With the vanilla I can add all sorts of fruit to give him different flavors and textures. I think it's a great way to get calories and it's what the Dr.'s at the hospital recommended.

IT also says on the pkg. Calorie Rich Weight Gain. The pkg. is white with red lettering

Hope this helps.

Last edited by Bette; 11/25/12 02:28 AM.

Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
#159327 - 12/23/12 07:33 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Nov 2012
Posts: 58
Stacey Offline
Supporting Member (50+ posts)
Stacey  Offline
Supporting Member (50+ posts)

Joined: Nov 2012
Posts: 58
Ohio, USA
My husband thinks the Ramen Noodles are the tastiest of everything. The RO recommended dropping an egg into the soup as it cooked. The egg is tastier and it is more nutritional than just the noodles.


Stacey (Caregiver to Husband)
Lymph Node Removed 10/12
Dx SCC MET 10/12
No Primary Tumor Found
IMRT x 33 (Started RT late 11/12)
CT Scan and PET Scan Clear 4/13


#159328 - 12/23/12 09:14 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
I remember beating the egg first and then dropping it slowly into the soup when my kids were little. It made tiny thin pieces of noodles and that went down very easily.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#161887 - 02/20/13 09:56 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Feb 2013
Posts: 3
ImaGoat Offline
Member
ImaGoat  Offline
Member

Joined: Feb 2013
Posts: 3
Farmington,MO
I am a first time reader, member and poster. 2012 was a rough year with my diagnosis, 5 - surgeries and 33 Radiation treatments. As of today they say I am cancer free however, I have lasting effects I am still trying to deal with. My jaw is at a 13 gauge per my Therabite gauges as well as my physical therapist. I am trying to get my feeding tube removed but right now I am dependant upon it. I am aggrevated at this point because I can't eat anything with acid in it or anything to pasty. I am looking for ideas because my tube is coming out Friday. I keep getting infections around it and the stitch broke free from my stomach which held the tube in place.

I am looking for advise at this point. I don't have the money to buy cookbooks at this time due to outstanding medical expensesand my loss of income.


Ima Pierce
Mucoepidermoid Carcinoma T4A N2B MO Stage IV-A
Lost right palate of my mouth. An opterator closes the gap between my mouth and Nasal Cavity. I have sinus infections/swelling on my right facial area. I can not open mouth enough to get a spoon in. All lymph nodes in my neck/chin are gone.
#161911 - 02/21/13 02:24 PM Re: List of Easy Foods [Re: ImaGoat]  
Joined: Jan 2013
Posts: 1,291
donfoo Offline
Patient Advocate (1000+ posts)
donfoo  Offline
Patient Advocate (1000+ posts)

Joined: Jan 2013
Posts: 1,291
CA - SF Bay Area
It seems like you should stay on the PEG for a bit longer if you are feeling taking all your liquid and solid is going to be hard. Also the cans for the PEG should be covered by your insurance so no expense. When you go off PEG you have to purchase all your food.

Charm just starting a thread on BD (Blended Drinks) recipes, tune in over there.

Good luck,
don


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
#161912 - 02/21/13 02:56 PM Re: List of Easy Foods [Re: donfoo]  
Joined: Sep 2009
Posts: 697
AnitaFrances Offline
"Above & Beyond" Member (500+ posts)
AnitaFrances  Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2009
Posts: 697
Media, PA
Hello,Everyone,

I have been experimenting with recipes that are nutrient rich and tasty with a smooth consistency. My goal has been to offer alternative meal choices to my husband, Clark, that are palatable. I have a photo of the finished dish but I don't have a way to post it. Any suggestions? It seems that I need a weblink to get it on here, but I could be wrong.

I use a blender for the following soup but if you have a Vitamix, all the better. Before you use this soup in your PEG, or J tube, you may have to add water. The best part about this recipe is that it is so good to serve for anyone and everyone!

Hearty Vegilicious Puree

Too many vegetable soups have little or no protein. I developed this recipe with the goal of combining ingredients that would be an excellent source of protein, carbohydrate and fat all in one bowl. The result is a colorful, tasty, full-bodied puree perfect for dinner on a cold winter night. Include a loaf of crusty Italian bread and watch it disappear!

Large Yellow Squash
1/2 Red Pepper
1/3 Sweet Onion
Granny Smith Apple cored
Medium Zucchini
2 Large Carrots
3 Cups Chicken Broth
1 Can Great Northern Beans or Cannelini Beans
Salt and Pepper
Extra Virgin Olive Oil
Plain Greek Yogurt
Minced Fresh Parsley

Cut first six ingredients into chunks, place in medium pot with 2 cups chicken broth. Cook gently until carrots are soft. Cool. Puree in batches and return to pot. Drain and rinse beans, adding them to blender with remaining chicken broth and puree. Add pureed beans to pot and stir to combine. Add salt and pepper to taste. Reheat mixture til hot. Ladel into bowls, drizzle with olive oil. Add 2 teaspoons of greek yogurt and chopped parsley. Serves 4.

Enjoy-
Anita


Anita (63)
CG to husband, Clark, 73,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
#163719 - 04/07/13 07:51 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Apr 2013
Posts: 9
DanfordE Offline
Member
DanfordE  Offline
Member

Joined: Apr 2013
Posts: 9
California
Wow, so many great ideas. I'm hungry!!!! Looking forward to trying many of these suggestions, thanks.

-Dan


11/2012 - Symtoms: earache
12/21/2012 - Diagnosed SCC, right tonsil
1/21/2013 - First Treatments, weekly Erbitux, Cisplatin, daily Ethyol, 7.5 weeks daily radiation
04/01/2013 - Last day of radiation!
#169009 - 08/09/13 12:32 AM Re: List of Easy Foods [Re: ChristineB]  
Joined: May 2013
Posts: 11
PatriciaC Offline
Member
PatriciaC  Offline
Member

Joined: May 2013
Posts: 11
North Carolina
Christine,

Thank you for the list! There are several soups, which most people eat warm to hot. Basically, I have not been able to bring myself to eat anything warm for almost seven months. Just the thought makes my mouth dry and hurt. Am I wrong and should I just try?

You are so right about how the taste buds and saliva change all day everyday! It is kinda funny the looks you get from friends, and family when you tell them this. They can not comprehend at all! The reality that I am having to live with this hits me hard at times. But the key word is live! My PET scan on 8/29/13 came back cancer FREE!!!!God answered hundreds of prayers!!!!!


1/31/13 CAT scan right tonsil, thyroid, lymph node,brain
2/5/13 MRI brain-no tumor smile
2/15/13 surgery,biopsy,removed 1/2 tonsil.
2/28/13 PET, diagnosis Oropharyngeal cancer stage IV
3/12/13 PEG
3/19/13 chemo(7 total)
3/22/13 radiation(35 total)
5/10/13 last treatment
7/29/13 2nd PET scan- CLEAR!!
10/28/13 PEG removed
smoked 20 yrs ago
54


#171090 - 09/15/13 05:49 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Aug 2013
Posts: 144
sunderwood1111 Offline
Senior Member (100+ posts)
sunderwood1111  Offline
Senior Member (100+ posts)

Joined: Aug 2013
Posts: 144
Sacramento CA
So on the topic, I am looking for a good shake type supplement . Where might I find the Carnation Instant Breakfast VHC? I am post mod. left neck dissection and left tonciectomy. All major structures in neck were spared save for the jugular.


. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
#171095 - 09/15/13 08:05 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Apr 2013
Posts: 92
rosymonroe Offline
Supporting Member (50+ posts)
rosymonroe  Offline
Supporting Member (50+ posts)

Joined: Apr 2013
Posts: 92
Oklahoma
Its now Boost VHC and Amazon has it, they ship it to you and if I remember correctly its about $45 for a case


AGE 38 10-2012 thru 3-2012 swollen lymph node,painful jaw and ear,2 antibiotics,X-ray,CAT scan,needle biopsy,scope, no answers
3-4-13 tonsillectomy and selective neck dissection, DX R tonsil SCC,METS to 1 lymph node,BOT,HPV+, stage IV
TX 35 RAD,3 chemo cisplatin/Taxol started 4-8-13
rad end 5-29-13
#171101 - 09/15/13 11:47 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Jun 2007
Posts: 9,778
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,778
PA
Please dont forget to use the Amazon link on the main forum page. That can be used for any purchase (please remember this when doing your holiday shopping). By clicking on the green Amazon box, OCF receives a 6% kickback from all Amazon purchases. This may seem like its not much but it does add up and is an easy way to help OCF.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#195086 - 09/01/17 02:04 AM Re: List of Easy Foods [Re: kathyf]  
Joined: Aug 2017
Posts: 6
Sally 2 Offline
Member
Sally 2  Offline
Member

Joined: Aug 2017
Posts: 6
Thank you. I just ordered it.

Page 1 of 13 1 2 3 12 13

Support OCF


Help OCF

Shop Amazon and Help OCF

Who's Online Now
0 registered members (), 25 guests, and 1 spider.
Key: Admin, Global Mod, Mod
Forum Statistics
Forums23
Topics17,027
Posts190,582
Members11,402
Most Online306
Aug 21st, 2016
Top Posters(All Time)
ChristineB 9,778
davidcpa 8,311
Cheryld 5,260
Brian Hill 4,738
Gary 3,552
Newest Members
Akki, Melba, Deusexvelo, Hamguy, Thiswillbemymainpa
11402 Registered Users
Brag Box
Powered by UBB.threads™ PHP Forum Software 7.6.0