Previous Thread
Next Thread
Print Thread
Page 11 of 14 1 2 9 10 11 12 13 14
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
OP Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
If you buy Scandi Shakes online, do you get them from Amazon.com? If so, please go thru the Amazon link on the main forum pages. Take a look at the main forum pages at the green box nears the search box. Click on that box and then do your shopping. This will help keep OCF running by giving a 6% kickback from any purchase.

With the holiday season quickly approaching, PLEASE help by passing along OCF's Amazon link to all your friends and relatives. It may not seem like much when its done on a small order, but every cent really does matter to a small non profit like OCF.

Thanks!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Feb 2012
Posts: 38
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 38
I'm tired of all the food commercials, but happy to be reminded what a big mac or steak tastes like, I love to smell my wife cooking in her wok for herself, as I can consume only liquids, and those thru my stomach tube since 5/1/12.

I'm really tempted to waltz into a restaurant and order a cup of mashed potatoes and lots of gravy, any kind, then sneak into the restroom to pump it in.




69yo male, Steam Engineer, Me=4,SCC=0, loving wife, living life as it comes (no other option)
We are all born from Mother, but live and die alone.
Make the best of it, Mommie did all she could, daddy was just a guidance councelor, the rest is ALL up to you.
...and now, 3rd occurance: Surgery 5/1/12
Joined: Sep 2012
Posts: 381
"OCF Canuck"
Platinum Member (300+ posts)
Offline
"OCF Canuck"
Platinum Member (300+ posts)

Joined: Sep 2012
Posts: 381
HA HA Paul!

I would totally pay to see that!

For anyone less adventurous, I can suggest skim milk powder. It has protein (2 teaspoons has 9 grams of protein), and no flavor, so you can add it to anything


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
Joined: Sep 2012
Posts: 64
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Sep 2012
Posts: 64
I'm trying to switch from shakes (935 calories, ea.) to solid foods. The list of soft foods look good, I've been eating scrambled and poached eggs, as well as cream of wheat and oatmeal, but how to add up to 900+ calories per meal? If I eat solids, which take a while to consume, then I'm filled up and don't want a shake and vice versa.


Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
With EVERY meal, EVERY day I drank a VHC (560 cals) in addition to my solid food well into my 2nd year post Tx to help me not only get needed calories but balanced nutrition.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Grits with cheese and butter is relatively easy to swallow and pretty dense calorie-wise. Get the instant grits; if the quaker dude (newly slender) is on the box, there is a perfectly acceptable recipe on the box.

Sausage slides down fairly well, but be careful about the spicing level - Bob Evans Original is fairly safe.

Noodles. Angel hair pasta with olive oil or cream sauce. Soba (buckwheat) noodles are easy and healthful.

Good luck!

Maria

Last edited by Maria; 11-14-2012 12:16 PM.

CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Joined: Apr 2012
Posts: 111
"OCF across the pond"
Senior Member (100+ posts)
Offline
"OCF across the pond"
Senior Member (100+ posts)

Joined: Apr 2012
Posts: 111
My most recent discovery in useful foods is real chocolate. As long as I have a hot drink I can manage to get through 50gs (half a bar) of 70% or higher cocoa chocolate. The hot drink helps to melt it and stops it sticking to my mouth. High % cocoa chocolate has lots of health benefits as well as being high in protein and fat. Even though the fat is saturated it is a healthy fat. This discovery has really cheered up my eating. It is a handy snack that I can carry in my bag. It goes particularly well with a latte, which gives extra calories and protein, though recent research suggests that the useful flavinoids can bind to milk proteins which stops them being available! This is a shame but hopefully there are still some that the body can use. Sally.


Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol.
10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12.
12/07/11 RIG. RIG removed 05/05/12.
4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
Joined: Oct 2012
Posts: 118
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Oct 2012
Posts: 118
Christine,

The scandi-shakes can be bought directly from the manufacturer @ Axcan.com. You may also call them directly.

Last edited by ChristineB; 11-20-2012 07:01 AM. Reason: removed telephone number

Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Bette - Perhaps you could do a price comparison between Axcan and OCF's Amazon link. If you get the shakes from OCF's Amazon link, then Amazon gets a a small 6% on each order. Also, I've found that very often Amazon is cheaper on many things and many items are not taxed. Also on some items (not all) Amazon provides free shipping if the order is over $25.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: May 2006
Posts: 720
Likes: 1
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: May 2006
Posts: 720
Likes: 1
[quote=Anne-Marie]If you get the shakes from OCF's Amazon link, then Amazon gets a a small 6% on each order.[/quote]
I assume you mean that OCF gets the 6%! (And OCF's Amazon link is a great one to use for all your holiday shopping...)


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
Page 11 of 14 1 2 9 10 11 12 13 14

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5