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I went to the dentist today and was mentioning to her long-time hygenist about the fluoride trays that have been used by so many in here. She asked if I would pose the question as to what kind (brand name, etc.) folks used, as the ones they use in her practice are very runny. When they tried a new one, it hardened like cement, so could you help by just mentioning what kind of fluoride your dental or ENT office suggested? Thanks so much...JaneP.


Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
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I use a 1.1% sodium fluoride gel which is a prescription gel and the brand name I first started with was Prevident. It was very expensive so I have now switched to a generic brand and I can't think of it's generic name.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Look in the bathroom on the container LOL . Sorry David but had to say that.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Jane

Colgate Gel-Kam

0.4% Stable Stannous Fluoride Preventive Treatmnet gel

Use it every night, haven't had any dental issues...yet.

Stoj


Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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I use Acclean - Home Care Gel 1.1%. Neutral Sodium Fluoride.

My dentist gives me "samples" The tubes have 2 Fl. oz


Bill Van Horn-53 ex-smoker, social drinker, Biopsy 8/24, Diagnosed 8/30/07 BOT T2N2-B MX Stage IV. Started treatments 10/1/07. IMRT 35 x, Cisplatin - 3 cycles - completed treatment 11/16/07. CT Scans on 1/15/08 all clear Selective neck dissection 1/28/08. All nodes clear.
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I use Neutra Maxx 5000 Gel.
It is 1.1% Sodium Fluoride and comes in a 4.3oz bottle.
I purchase it at the CCC's dental group office for $12.
It says RX only, but I just walk in and buy it.
It seem to work fine in the trays.

I used to use Omni Gel 0.4% Stannous Fluoride.
It stained my teeth, but otherwise worked fine.
They told me that Stannous Fluoride is a bit better than Sodium Fluoride but the difference is insignificant so they switch when staining is a problem.


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

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THANKS to all who reported - I will pass this info on to my dentist's hygenist! Warmly, JaneP. smile


Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
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Lostpassword

Hope it's not too late to chime in. I started off with the Colgate Prevident but it was too thick and didn't work well especially since it came in this bottle with a big hole in the top- it was actually labelled as a toothpaste. Very expensive also at $16 a bottle
Switched pharmacies and now I get a generic version: Cypress pharmaceutical's "SF 5000 Plus" 1.1% soldium flouride prescription dental cream. It is super cheap as it is covered by my insurance (unlike Colgate Prevident) and I get two tubes a month for $3


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

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That's it Cypress. That;s the generic I get. Ugh Chemo Brain.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Just happen to be my dentist today for my 3 month cleaning. He wanted me to try a couple of types of Prevident, one for Dry month, one for sensitive teeth. They are 3.3 oz
Also gave me my supply of Acclean - Home Care Gel 1.1%. Neutral Sodium Fluoride.
He always gives me these sample...not sure how it works. You may want to askk your Dentist for ant freebies.


Bill Van Horn-53 ex-smoker, social drinker, Biopsy 8/24, Diagnosed 8/30/07 BOT T2N2-B MX Stage IV. Started treatments 10/1/07. IMRT 35 x, Cisplatin - 3 cycles - completed treatment 11/16/07. CT Scans on 1/15/08 all clear Selective neck dissection 1/28/08. All nodes clear.
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John just got his fluoride trays and his understanding was that he's to wear them (w/the fluoride paste) all night. I don't see that mentioned by anyone here in the postings. The instructions on the paste say to keep it three minutes, I believe, then rub the stuff around w/one's tongue, then spit it out and rinse off the trays. Maybe it's different if one's using the fluoride b/c of cancer treatment...Anyone else here been told to use them all night?


GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
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I was told to wear them 5 minutes daily, then not to eat or drink anything for an hour.


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

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Gretchen

Mine were only for about 10 mins per day but my dentist said the longer the better.

There have definitely been several people that I can think of who have posted that they did wear them all night.

Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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Generally the instructions are to put them on at night right before bedtime for 5 minutes and not to drink for 30 minutes. I keep them on for entire 30 minutes and take them out and go to sleep without drinking anything. I just figure it can't hurt and maybe more time is better. Nobody has told me not to do it this way either.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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I think it is supposed to be about 20 minutes at nighttime. Nothing to eat or drink afterward for a half hour or longer. If he showers at night, have him put them in when he showers and 'kill two birds with one stone'. What is he using for fluoride?

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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I use a gel instead of the paste, I use them at night and leave them in from 5-30 minutes and then go to bed. I am not suppose to eat or drink for 1 hr after use. Hope this helps. Semper-Fi Bob


Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
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I read the instructions on the tube I use (Cypress) and it says to keep it in the mouth for 1 minute and do not drink or eat for 30 minutes after. I still just keep mine on for the entire 30 minutes and have not been told to do otherwise.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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I keep mine in for 5 minutes and do not drink or eat anything for 30 minutes afterward.


Age 57 at dx on 3/30/2009 by Dentist
SCC of R tonsil S2 Poorly Differentiated - 2.5 cm
Rad - IMRT 5x a wk for 8 wks starting 5/4/2009
No Chemo
Last Rad treatment was 6/26/2009.
Two years down as of 3/30/2011!
God bless all affected by this monster called cancer!
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John called the dentist to verify and the dentist said yes, keep the trays in overnight. we'll see how long that lasts, with his increasing nausea, etc...


GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
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Wow, that's the longest I've ever heard recommended. I would imagine the first episode of nausea and those suckers are history.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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That's one dentist's opinion. I don't think anyone on this board uses them all night or much longer than 30 minutes.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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I can't keep mine in more than about 10 minutes. They make me gag (tray nausea)!



Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

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Like David, I put them in for a full half hour. I've tried leaving them in all night, but I wound up ingesting most of the fluoride, which is not good. If I am grinding my teeth (Happens occasionally), then I wear them all night *after* rinsing them out.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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No one has really talked about how often to use the trays.

My dentist (oncology patient specialist) has advised they need to be used twice per day. This is consistent with other information I have found on the internet that suggests that the flouride is more effective if used twice per day.

Anyway, that nothwithstanding, I usually just leave mine in for 1/2 hour, although I was advised I only need to keep them in for 5 minutes then leave the flouride alone (no water) for the next 25 minutes.

Best wishes,

Chris


SCC left tonsil, 2 lymph nodes, modified radical neck dissection, IMRT (both sides) completed 10/25/06, Erbitux and Cisplatin weekly, Ethyol daily
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That's the same instructions that my husband was given. He has his trays but is not using them until after he is done with treatments and his mouth heals up.
Pat


Crgvr to Husband 55-yrs, surgery to remove cyst-diagnosed as SCC, 4/3/09 CT & Pet Scan showed more cancer in left lymph node and primary at the base of the tongue.TX Radiation 7 weeks 5 days a week last day is 6/25/09
Chemo completed 6/19/09
Peg Tube 5/22/09
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Pat,

Encourage him to listen to what his Doctors say, not what he thinks his best for him.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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I wish my husband could wear his trays. His mouth is so full of sores. He hates magic mouthwash says it makes him sick. Aney other ideas? I beg him to eat yogurt. Got 4 teaspoons in him today. Any ideas or brand names of Yogurt for a non eating yogurt eater?


dx 04/09 BOT Stage 4b, scc, met to leison 6th cervical spine, May 15th, 2009, 12 rounds rt to spine. no relief for pain, top of back and right arm. started 38 rounds of rt and Carboplatin and Erbitux June 2 once a week at least while receiving RT, RT daily. Port and peg.
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I found during radiation that inserting and removing the trays was making me gag, so I just brushed with the paste/gel. Better than nothing, if he can handle that.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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I feel like my husband is the only one who didn't get flouride trays...should that worry me?

His dentist told him to brush daily with flouride instead of toothpaste and he does. For those of you who are through treatment...do you still use your trays?


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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He can also put some on his finger and just swipe his teeth. I can't tell by your signature line, but is he having rad presently? I started wearing my trays one month pre Tx and there were a few days during Tx that I couldn't so I didn't. No big deal according to my docs. Almost 3 years now and still wearing them.

Also Agent Orange has never been associated with SCC.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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SpouseofJRyan,

I am not a yogurt lover, but I love Stony Brook vanilla yogurt. This time of year, you can add fresh berries to it if he can handle them.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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