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#9421 01-29-2007 03:19 PM
Joined: Jan 2007
Posts: 735
sharlee Offline OP
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jan 2007
Posts: 735
I saw the Ent today , and i dont think I got much more information thatI had , i had a few more questions that maybe some of you could help me with . On Jan 17th I had a 1 1/2 cm lesion Or tumor removed . Pathology came back and I got diagniosed with Scc on 1/22. My understanding that it is T1 at this point , however I didnt have clean margins so i have to have more removed but they need more Info from the pathologist they need to find out the "depth of Invasion" to see how much more has to be removed and to determine if a possible selective neck dissection. I also have a 2mm tumor in same area now 12 days out that they are pretty sure is the cancer because they know they didnt get it all. My one question is ....Is it true that you can only have radiation once? Another question is if they arent nessacarily recommending the neck dissection should I tell them that is what i want to know for sure if it is in my lymph nodes, for the past year i have been sicker then ever with things like the flu and colds and just exhausted ( I thought It was becasue I had 5 kids LOL) . The pathology should be back tomorrow and he said radiation , chemo all that depends on the depth as well as the nodes. but those are 2 things i was still wondering about .

I also posted this on symptoms and Diag


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
#9422 01-29-2007 03:49 PM
Joined: Sep 2006
Posts: 493
Platinum Member (300+ posts)
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Platinum Member (300+ posts)

Joined: Sep 2006
Posts: 493
Sharlee,

The best advice I can give you is to get a 2nd opinion from a CCC. I'm not saying not to trust your current ENT, but a 2nd opinion could confirm the treatment plan or offer other options. Memorial Sloan Kettering is very good if you can get there.

http://www.usnews.com/usnews/health/best-hospitals/rankings/specihqcanc.htm


Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
#9423 01-30-2007 07:09 PM
Joined: Nov 2005
Posts: 1,128
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
Yes, it's true that one can only have radiation in the same place once -- As the RO told me, that bridge is burnt! If a cancer comes back in the radiated area, more radiation is not an option.

That said, however, I don't know if it's possible, say, to have radiation on one side of the throat and later have it on the other side, or something like that.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.

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