Previous Thread
Next Thread
Print Thread
Joined: Mar 2009
Posts: 18
traci Offline OP
Member
OP Offline
Member

Joined: Mar 2009
Posts: 18
Another new issue to deal with.....husband was receiving fluids by iv due to the fact that he quit eating. (still)...the doctors have yet to do anything about it because he was gaining weight (ie all the fluids they were pumping in him daily- i think it was 2 liter per day for 7 or 8 days. Now he has developed severe swelling from his knee down. Did an ultrasound and no blockage. The oncologist do not seem too worried about it but we are. Where should i take him next to find out whats going on. His ankles look like small tree trunks and measure close to 13 inches around. Has this happened to anyone else?

BTW he has 2 radiations left!! They resumed today even though has had deep radiations burns. You can see them at www.asilentepidemic.webs.com/photos


Traci
*******
Spouse to Lew (59)(5 family members DX)
SCC IVA/T1N2M0 BOT DX 9/08 /Tonsillectomy(cl)/ TX 12/08 (TPF)x2 /RT x35 w 7 wkly (Taxol, Carboplatin, Erbitux) Finish 4/09 / Port /no peg lost 105lbs/ 2/10 CT clear/HBOT x30/all teeth out and implants placed
www.asilentepidemic.webs.com
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
I tried going to that site and it won't come up at all. I sure hope you find something out for peace of mind if nothing else. I have no idea about this at all. Good luck and I hope you find out today.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: Oct 2007
Posts: 104
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Oct 2007
Posts: 104
I think you should be persuing an explanation from his medical oncologist as this sounds like it could be a problem caused by the chemo drugs. Has his cardiac and renal status been evaluated as it sounds like he is just retaining a lot of fluid, hence the weight gain. Is he short of breath? Insist on answers, it your right as a healthcare consumer. Good luck.


Caregiver to husband Dx. Stage 4 SCC of gingiva with 3 nodes pos. Partial mandiblectomy with bone graft from iliac crest Dec. 2006. IMRT x30, Cisplatin x3. Completed Tx. March 15, 2007. Osteonecrosis & removal of graft & plate Oct. 2007. Recurrence of SCC Dec. 2007. Deceased Jan. 17, 2008.
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
Offline
"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
I couldn't access the blog either.


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Joined: Mar 2009
Posts: 54
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Mar 2009
Posts: 54
Traci, he has too much fluid in his system. He needs a diuretic prescribed to flush the fluid. His kidneys will be busy removing the excess fluid. The medications I take for my arthritis can do that to me, so I take a diuretic everyday to prevent it. Tea, coffee and beer are natural diuretics, requiring frequent trips to the Loo. I hope this helps.










Sweetpea
********
2/09 MEC Rt Submandibular Gland,Tumor Exc,age 68; 4/09 Rt Neck Resect, Excise Rt Lingual Nerve, 10 nodes; 1 month later- Lge Abscess Drained 5/09; 4 more cancers, final path report; 6/09 IMRTx33
Joined: Mar 2009
Posts: 18
traci Offline OP
Member
OP Offline
Member

Joined: Mar 2009
Posts: 18
It might of helped if i had posted the link correctly. sorry to all.


http://asilentepidemic.webs.com/apps/photos/



Traci
*******
Spouse to Lew (59)(5 family members DX)
SCC IVA/T1N2M0 BOT DX 9/08 /Tonsillectomy(cl)/ TX 12/08 (TPF)x2 /RT x35 w 7 wkly (Taxol, Carboplatin, Erbitux) Finish 4/09 / Port /no peg lost 105lbs/ 2/10 CT clear/HBOT x30/all teeth out and implants placed
www.asilentepidemic.webs.com
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Oh man,, those poor guys, I am very lucky to have nothing that bad. Thank you angels.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
Sorry to see all that you are dealing with. Nice job on the blog site, it puts a face on our disease, and some good information out in the world. A link to OCF as a source of information would be appreciated in the list that you have assembled.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: Mar 2009
Posts: 18
traci Offline OP
Member
OP Offline
Member

Joined: Mar 2009
Posts: 18
OMG!! I am so sorry. I thought that I had posted the link as soon as I found you guys. Apparently I forgot but I have fixed it immediately as well as suggesting this be the first place to stop for information. Again, my apologies


Traci
*******
Spouse to Lew (59)(5 family members DX)
SCC IVA/T1N2M0 BOT DX 9/08 /Tonsillectomy(cl)/ TX 12/08 (TPF)x2 /RT x35 w 7 wkly (Taxol, Carboplatin, Erbitux) Finish 4/09 / Port /no peg lost 105lbs/ 2/10 CT clear/HBOT x30/all teeth out and implants placed
www.asilentepidemic.webs.com

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5