| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Peter,
I see you mentioned Listerine which contains alcohol which can damage the cells in the OC so you must stop using any products that contain alcohol in the mouth. There are even those that think that (alcohol based mouthwash) may even be enough to cause the cellular changes necessary for the cancer to begin.
If you are going to continue to post it would be a time saving idea to add your stats to your Signature Line. See mine as an example.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Apr 2009 Posts: 9 Member | | OP Member
Joined: Apr 2009 Posts: 9 | @davidcpa
Of course, I have been thinking a lot about possible reasons for this tumor. Are there really people who can trace back their tumor to the alcohol of Listerine? ( I never used it since March, only a "softer" mouthwash without alcohol). But even more dangerous seems to me the other mentioned chemical. Even more since the package itself contains a warning "do not apply more often than 2 times a day, and not longer than 2 weeks". But this is what I did! So I really should apply for this year`s "Darwin Award" :-(( (readers who should not know the Darwin Award: ask Wikipedia) . But it is so hard to believe: Can a cancer be ignited so rapidly??
Of course I will also fill up a signature. But first I have to understand all those abbreviations, and various data will be available only later.
Age 51 ; non -smoker -drinker
Jan./09: nothing. March 3./09: Biopsy: SCC T4, side of tongue. Reason: perhaps chemical burn by germicide after tooth extraction.
03/09: CT, MRI, scintigraphy, endoscopy etc: Dx T4N0M0.
Then: IMRT+1 week cisplatin
April 15th/09: ongoing IMRT; tumor shrunk by ~50%
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | No I didn't say there were people that traced the cancer back to Listerine but scientists have linked alcohol to the cell damage that can lead to OC and some have said that using a mouthwash containing alcohol may be just as damaging as drinking alcohol as it relates to OC. No you wouldn't even make the first cut on the Darwin Award so don't beat yourself up. Brian would be better qualified to answer the question re the speed of cellular damage resulting in cancer cells but I would think it is possible for damaged cells to quickly go bad but it takes millions to make a spot so noticing it may take longer. This may help on the abbreviations: Acronyms: BaCC = Basil Cell Carcinoma Biopsy = tissue sample removed for microscopic examination BOT = Base of tongue Brachytherapy = Radiation therapy with internal radioactive �seeds� CAT = Computed Axial Tomography (scan) CCC = Cancer Care Center CT = Computed (computer) Tomography (scan) Dives = treatments in a HBO unit DX = Diagnosis ENT = Ear Nose and Throat Doctor and surgeon FNA = Fine Needle Aspiration � (Needle Biopsy) HBO(T) = Hyperbaric Oxygen Treatments HIPAA = Health Insurance Portability and Accountability Act HN = Head and neck HNC = Head and Neck Cancer HPV = Human Papilloma Virus IMRT = Intensity Modulated Radiation Therapy Met(s) = Metastasis or cancer spread MRI = Magnetic Resonance Imaging (scan) NCCN = National Comprehensive Cancer Network PCP = Primary Care Physician PEG = Percutaneous Endoscopic Gastronomy (G tube or tube) Feeding PET = Positron Emission Tomography (scan) PT = Physical Therapist QOL = Quality Of Life RND = Radical Neck Dissection (sometimes Resection) also Modified RO = Radiation Oncologist RT = Radiation Therapy also Radiotherapy (Radio) RX = Prescription or treatment SCC(a) = Squamous Cell Carcinoma also SqCCA and sq cell ca TX = Treatment Xerostomia = low saliva XRT = X ray Radiation Therapy _________________________
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Please just let people fill in thier signature when they feel up to it.
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Peter, when we left Germany, I sold my wife's DB to a Brit who was dating an American schoolteacher and my Trabbi to one of my colleages -- It was an original Fluchtwagen, and I traded a bottle of Jim Beam for it (Sold it for USD 50!) -- I really enjoyed the Trabbi as it was fun to drive at slower speeds -- Prior to that I had a 2CV6 'Ente', but it rusted badly.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Peter, welcome to OCF. If you hadnt told me you were from Germany, I never would have guessed by your phrases and typing. Your English is excellent, be proud of yourself.
Im very glad you have found OCF. You will find lots of support here from others around the world. Please feel free to ask questions, things may be a little different in your country than here in the US.
Best of luck with your treatments.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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