#93411 04-08-2009 10:08 AM | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | So my ENT doesn't believe that my PET's elevated activity is cancer and instead believes that the plates in my jaw from my fibular free flap are causing inflamation/infection and has prescribed me HBO treatments.
While I'm relieved that he doesn't believe it's cancer, I'm hesitant about HBO tx. I've read posts on here that say it's pretty easy just time consuming. Can I bring a book or my ipod into treatment to occupy my time? I'd love to bring my ipod touch, it's got chess and other strategy games that I love while being able to listen to my music. I used my ipod touch to get me through my chemo and it was wonderful as i could watch movies, play games and music etc...
Anyway if anyone has any insight here I would appreciate it.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Hi Eric
Sorry to dissappoint you but no electronics are allowed in the oxygen chamber. No books either. You are allowed to watch tv but its outside the chamber and you dont even get the luxury of holding the remote. The nurses change the channels fo you. It sounds kinda like a fan running and you can fall asleep while in there. HBO isnt a big deal, its the easiest treatment I went thru.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 | Hi Eric
I ditto everything that Christine has said but would like to add that we were able to play scrabble in each one of my treatments - so the time went really quickly.
Good luck with the HBO and I hope it works wonders.
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Ditto
if you are in a single chamber, then no electronics no books and no synthetics and no jewelry (that one I never got) etc. You can still watch TV through the tube.
I slept through most of the treatments. I think it was worth it. Other than the time requirement it is a non issue unless you are claustrophobic.
Markus
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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