| | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | When I got my post-surgery (free flap) 12 FR, I walked down to radiology in my gown and robe (I'd rather get blood on their stuf than mine) with an aide tagging along but they left me on the gurney for the trip back. They just gave me a local and I got to watch on the fluoroscope when he put the PEG in. No after effects or pain. When I got my big-bore 20 FR pre-surgery, which I HIGHLY RECOMMEND
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | When I got my post-surgery (free flap) crappy 12 FR, I walked down to radiology in my gown and robe and NGT (I'd rather get blood on their stuf than mine) with an aide tagging along but they left me on the gurney for the trip back. They just gave me a local and I got to watch on the fluoroscope when he put the PEG in. No after effects or pain.
When I got my big-bore 20 FR pre-surgery, which I HIGHLY RECOMMEND to anyone who even thinks they will need a PEG (It requires an endoscope down the throat, so as Charm learned for us, they don't like to do it post-op) I had a friend to drive me to and from. They used some kind of 'It must have hurt a bit but I just can't seem to recall it' stuf like Rohypnol. I now have a sort of lateral belly button scar, about three PEGs wide <g>.
I'm going in on the 15th to see the Gastro-Doc who put the 20 FR in for me, to have some granulation removed from around the PEG stoma (I keep asking my nurse practitioner for some of the silver nitrate sticks so I can do it myself, but she keeps turning me down). Now that I've found I'm likely to be on the PEG for an indefinite period of time, I'm wondering if there is a time when the PEG will need changing or if I should just make up a sort of bore-brush to swab it out occasionally, so I'll ask him.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2008 Posts: 130 | I guess since my lovly PEG says 20F, that it's the one I want. I have always wondered how you guys were getting the thing clogged. I could probably put a whole ativan through mine. I don't try though. I like crushing pills. Makes me feel powerfull.
Good for you Charm!
Amy
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
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