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#92854 03-30-2009 04:47 PM
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Jenka Offline OP
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Had my first week of radiations and one chemo. On to week two.

Saw RO for about a second, nutritionist and the nurse. You are doing great! But that's because it's only your first week. By the end of this, mid of next week, you'll start experience difficulties swallowing, be prepared. Sigh. It was nice, even if unrealistic to delude myself for that one week.

But, I am further to the end of treatments than I was a week ago, in the process is moving, which is huge.

I also have very very faint ringing in one ear, no longer than 2-5 seconds, and not particularly bothersome. It could be nothing. Or it could be my first cisplatin's delayed reaction. I'll bring it up to MO when I see him later in the week.

So just checking in. Holding tight.


38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
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I know everyone is different, but I was fine thru the first 3 weeks and then just took each day one at a time, and the 5 days turned into a week and pretty soon I was done! There was a dark tunnel to go through but the light is there, stay focused, many here have been there and we are thinking and praying for you. Bruce


Bruce

Age 57 SCC Stage3 BOT and 1 node PEG 35RADS
7CHEMOS Tx over 9-17-07 tube out 10-12-07 back to work 10-15-07.
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Yor ears will ring and probably hurt and maybe it could get hard to swallow, but it's nothing you can't handle.Just think of it as part of the treatment and it will go away later. Good luck and I would bet by readint the few worda you just posted there that you have a positive attitude and are a fighter.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Hi Jenka

Keep up the good work!!!

Please don't forget to mention to your doctor about the faint ringing that you have in one ear - it is very important that he/she is made aware of anything like that as soon as possible.

Good luck

Karen



46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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Please dont forget to mention the ringing in your ears to the doc. It could be a permanent side effect some get from cisplatin. Hearing loss is very common with that type of chemo.

Hang in there, take it day by day and you will get thru this.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Hi Jenka!

Congratulations on getting through your first week. Hopefully it will all go by quickly with only a bit of discomfort. You will feel relieved when it is all over and glad that you threw the book at this.

Keep yourself entertained and sitracted as possible. Hang in there!


KATE


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
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As you can tell, it affected my mind too. LOL Musn't forget that.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Posts: 8,311
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Jenka,

The ringing is probably due to the Cisplatin so definitely tell your MO and let the MO decide. I was told after my 3rd and last Cis that had my MO known, he would have switched me to Carbo which he said and I quote "Carbo is just as good only without the bad side effects". That was 2 1/2 years ago and whether that's true or not is still not proven but I wanted to strangle him at the time. Heck I still do!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Jenka

Another nag about telling your MO. Cisplatin is VERY toxic to your ears. I found this out after I completed my chemo phase of treatments. I do have ringing in my ears which an ear specialist has given me very low odds of being corrected. My range of hearing is still what is classified as extremely good, however the ringing is very noticeable in quiet environments which can be distracting.

Ask !

Kevin



18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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Jenka Offline OP
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I did mention it. He said it's likely cisplatin. Said to keep an eye on it, and if gets worse after 2nd treatment, we may skip the third.

So far it's getting better, a week and a half after the first chemo.


38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
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