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davidcpa #93146 04-03-2009 05:05 PM
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I found this very helpful site called OCF; check out what OCF has to say about staging and lymph nodes, right here under our noses, so to speak:

http://www.oralcancerfoundation.org/facts/stages_cancer.htm


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
davidcpa #93148 04-03-2009 05:28 PM
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Liz and David,
http://www.oralcancerfoundation.org/facts/stages_cancer.htm

Pop quiz tomorrow! wink

Whoops! Pete beat me to it!


Last edited by RPCV; 04-03-2009 05:31 PM. Reason: Not the fastest draw in the West!

Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
RPCV #93160 04-03-2009 06:46 PM
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Hi Nina,

Welcome to OCF. As you can see, you will always get answers to the questions you ask and then some!! No doubt good information.

That said, I would highly suggest getting a second opinion. Have you done that yet?


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
suzanne98 #93175 04-03-2009 10:39 PM
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Well David now we know.shame on us lol.

I first read that page more than 2 years ago and it hasn't changed that i can see.Perhaps i should cut and paste it and send it to Robs doctors for future reference,although i can see why they staged him as 1,because his primary was 1cm and his secondary was not in a recognised area of spread being on the opposite side and even post dissection and pathology ,they couldn't find out how it had got there as all 67 lymph glands but the affected node they removed were clear of any cancer.







Last edited by Cookey; 04-04-2009 12:01 AM.

Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #93184 04-04-2009 05:49 AM
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Liz,

Apology accepted.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #93194 04-04-2009 09:01 AM
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Cheeky buggar!!!!!


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #93209 04-04-2009 06:13 PM
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U 2 have me rollin. Not like a ball tho. More like a lopsided toad.. That's not a pretty site.LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #93238 04-05-2009 06:34 AM
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Liz,

Thanks, as I assume that was some term of endearment.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #93273 04-05-2009 08:48 PM
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Thanks for your input. I did find out after speaking directly with one of the doctors that it is stage III only as it was in one lymph node. Fortunately it was in the center of the lymph node and was very small. It had not gone anywhere else. The doctor, head surgeon and oncologist doctor at UCSF don't feel radiation is advisable, although it is an option for my mum if she chooses to pursue it. They feel it is likely that the cancer was contained and then removed. After speaking with the doctor, I feel much better. Thanks again for your advice.

ninakelly #93281 04-06-2009 04:38 AM
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Stage III, humm one of our very smart posters said that....lol


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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