#92464 03-24-2009 03:55 PM | Joined: Mar 2009 Posts: 3 Member | OP  Member
Joined: Mar 2009 Posts: 3 | I found this forum after reading an article in Womans Day about oral cancer. I had a place on my tongue for a couple of weeks that did not heal. Called my primary who immedially referred me to ENT. At that appointment he did a biopsy and it came back cancer. After CT and PET scan I had surgery on my tongue. All margins were clear. That was July. He recommend a neck dissection whick I did in November. That came out good also. I am on 3 month followup, but no other treatment was recommended. I felt very lucky at the time, but after finding out more I believe I am extremely lucky. I am almost more scared now than I was then and that is saying something. I am looking forward to learning even more from this forum. Glad I found this. | | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Hi Patty!
Congratulations on having a successful surgery. Hope that you are recovering well.The further out your get from your treatment the less frightening it will be. I got through my 2nd anniversary of surgery this year and it has made such a big difference. I know this site has a wealth of information-- sometimes too much! It sure is an eye opener as to what other people have to deal with and those who have been less fortunate in thier success with treatments. I thank my lucky stars every day.
I'm so glad that you were diagnosed early! It sounds like your doctors are confident that this was taken care of.
LOVE Kate
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Patty,
As you can see from my signature, I am closing in on 4 years after having been treated exactly as you were.
Congratulations and I hope you are back to 100%.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hi Patty
Welcome to OCF. Sounds like you are one fo the people who was very fortunate to have this caught early so treatment did not need to include chemo and radiation. That is wonderful you have recovered so quickly. Best of luck with your continued good health.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 |
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Patty, you are a lucky one and hopefully, you won't need any of these other treatments. Good luck gal and welcome to our home.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Everything you ever wanted to know about this cancer and more is located right here. Sorry that you got it but glad that they caught it early. Was tobacco involved?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Good job on getting right on that. Luck works a lot better when you act. Welcome to the board.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Mar 2009 Posts: 3 Member | | OP Member
Joined: Mar 2009 Posts: 3 | Four years, sounds good. I had no idea the scope of this oral cancer thing. I had never heard of anyone that had it until I was diagnoised. Of course, I have heard of several people since. I have a wonderful doctor who on top of it and tells me everytime I see him we will get throught this together. I told him I was counting on it. | | | | | Joined: Mar 2009 Posts: 3 Member | | OP Member
Joined: Mar 2009 Posts: 3 | | | |
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