#91997 03-17-2009 04:20 PM | Joined: Mar 2009 Posts: 6 Member | OP  Member
Joined: Mar 2009 Posts: 6 | Husband is in hospice. Since Dec. 19, he has had rad. neck diss. on right side, totally diseased inside, lost muscle, vein, tissue, nerves. Tumors back within 1 month. IMRT and Cisplatin Jan. 19 - both ceased on Feb. 20. Right side of face, neck, head, front of throat 100% tumor covered. Has lost 35 pounds, can't talk, frail, PEG 100%, hand tremors, constant fatigue, tumors breaking open and oozing, now on oxygen, sleeps most of time.
We have 2 teenage boys watching this--who knows what this is going to continue to look like day by day?
Last edited by Pete's wife; 03-17-2009 04:42 PM.
| | | | | Joined: Feb 2009 Posts: 20 Member | | Member
Joined: Feb 2009 Posts: 20 | I'm so sorry to hear this. Was your husband just diagnosed in December? I wish you and your teenage boy's the best.
Kelli | | | | | Joined: Mar 2009 Posts: 6 Member | | OP Member
Joined: Mar 2009 Posts: 6 | Diagnosed in Oct. spot under tongue, partial gloss, partial neck dissection Oct. 6. Lymph nodes clean, new tumors detected in early December, radical neck diss Dec. 19. | | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | I am so sorry about what you are going through. Watching something like this is the hardest, I am thinking of you at this time.
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im very sorry you are going thru this. Wishing you strength in this difficult time.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | So sorry to hear this news. This time is so hard. I will be thinking of you and your boys.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Nothing else that can be said, I'm sorry it has come to this.
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
| | | | | Joined: Mar 2009 Posts: 4 Member | | Member
Joined: Mar 2009 Posts: 4 | My heart is with you - weeping.
| | | | | Joined: Mar 2009 Posts: 6 Member | | OP Member
Joined: Mar 2009 Posts: 6 | My husband was never a smoker. He has also battled lung disease in the last 3 years. The medication that suppressed his lung scarring has shut down his immune system. Drs. have not seen such aggressive cancer take its toll so quickly. I am grateful for Carepages.com for being such an awesome support vehicle for us. My husband's name is Pete Greve.
I am devastated. | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | This cancer is horrible and we all share your grief.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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