| | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | EZJim
Pete D named my supplier I buy all my Seltzer water from Safeway - get the 12 fl oz cans though and NOT the one liter bottles. The best and most inexpensive (and how often do those two adjectives apply to the same item) is the Safeway in house store private brand which has Safeway on the lower right and SELTZER WATER in caps on the front of a blue colored part of the can for a label with a Lion rampant insignia. In my area, they have been running a six month sale of 4 six packs of the cans for $5 Don't get any of the flavored ones Safeway sells unless you crave sweet fruit flavors or lemon lime but I can't vouch for them.
Do NOT go to a liquor store nor buy any pre-packaged so called seltzer equivalents - as Patty warned, liquor store mixes are not really pure seltzer even if they are labeled as such or the salesman insists it is. Liquor stores only sell "soda selzter" or else "club soda" or "tonic water". They each have unnecessary added ingredients such as quinine, solidifiers, emusifiers, etc which will mess you up.
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | Thanks Charm I could not come up with the words to warn him why not to buy it and was just hoping he'd listen any way,  Jim - do you have Kroger over there? They are similar to Safeway. I'll make a note and after church I'll see if I can dig up who owns what grocery chain for you - it should be on this web. Then you would know who was likely to carry it. Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Oct 2008 Posts: 246 Likes: 1 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2008 Posts: 246 Likes: 1 | My husband suffered from severe mucositis. At one point he could not tolerate rinsing with water/baking soda/salt solution or any solution.
A nurse suggested warming up the solution and that did the trick. Several seconds in the microwave took the chill off. I don't think I've seen this discussed on the forum.
CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin.
1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED
Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016
| | | | | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 253 | Brian: Thank you for the date info. Sandy
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I have a few comments:
Introduction 2nd paragraph, first line, I would say "one of the" as opposed to "probably the most" debilitating complications. Last line You mention reduction in chemo but I had or at least I thought I had more problems with Mucositis as a result of rad than chemo.
Signs of Mucositis - no mention of lips or trismus?
Consequences of Mucositis - 4th, 5th and 6th paragraph, no mention of hydration issue?
Duration - why was just chemo mentioned and not radiation?
Preventive Steps - Why no mention of Fluoride Trays? I started mine 30 days pre Tx.
Just just quick observations.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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