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SandySt. #92178 03-19-2009 11:03 PM
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Bottom right hand pages have a edit date on them. All pages are minimum reviewed on a 6 month time period, pages that have constantly updating information, facts page, HPV page, etc. have this date as it is something that we recently started doing for our advisory doctor board more than the public. Pages in which information is less dynamic we have not done this to. You will not find an more up to date site on this disease on the web. Please note that the NCI oral cancer page has not been updated in two years, the CDC site has not been updated in three. The expenditures for these trusted government sites are at the bottom of their priority lists of things to spend money on, especial with the budget cuts they are all operating under. If there is a doubt in your mind that the information is current, please contact me directly and I have a master list of updates and schedule for review. THe science advisory board in the about us section of the OCF site will tell who is updating and / or reviewing our pages.

If you are not conversant in how computers cache pages so they view quickly and let you sometimes see a page with is out of date, but has been updated please ask.

Remember to dump the cache on your web browser on a regular basis to be sure you are seeing the most current version of the page, and not one from a previous visit to it that it has cached.

Note bottom right hind corner of this page http://www.oralcancerfoundation.org/dental/dental-complications.htm


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
SandySt. #92221 03-20-2009 12:34 PM
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Brian, you are very good writing medical articles. The article was well written and informative. Im sure many more people understood it more than didnt. Personally, I am not the best at reading anything too complex, not just medical things. If it was written any other way then you are correct, there wouldnt be such valuable info included inside the article.

Thanks for everything you do.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #92254 03-20-2009 05:30 PM
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Seems I am walking behind you Christine. LOL Not a bad type view either..{~~} yahoooooo LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Brian Hill #92280 03-20-2009 11:50 PM
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Brian and John

Just to clarify: my comments were about mucositis not mucous. I never developed a viable coping strategy for the gagging mucous unless you count vomiting. That did work but I don't recommend it. Actually, one of the unexpected benefits of the traechestomy this time around is that huge gobs of mucous get expelled out of the stoma. Otherwise, it's still upchuck for relief.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #92283 03-21-2009 02:59 AM
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Brian and John

I know this comment should await:
[quote]We will start another treatment complication page on excess mucous production which is NOT mucositis.[/quote]
but having just been woken up again by mucous, I should add that vomiting was reserved for those really thick semi solid mucous "plugs" that hang in the back of your throat and got more prevalent as the radiation GY total grew. They were the ones that made me vomit up my Ensure and cry over the lost calories or had me retching in the hospital. For the old run of the mill [quote]all the crud that is constantly draining and clogging up things that is a result of the sinus irritation from the treatments[/quote] my beloved SELTZER did indeed work as swish and spit. I never had a suction machine until this surgery - both the hospital built in and home portable - and it only works on the latter no former mucous, When you start up that page, I'd suggest noting there are these two types (or maybe it was just me lucky enough to have thick and thinner)
Kudos to DebandBill for pointing it out here where technical accuracy is important. I have often seen this confusion in threads here but since I knew from the context whether they meant mucositis or mucous, I did not "correct" the posters.
I only put this in so those to whom I recommended SELTZER for both, do not get confused. Another reason why I love what our over the pond friends call "soda" but I don't use that for fear of people using Coca Cola. wink


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #92290 03-21-2009 05:18 AM
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Posts: 5,260
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I am still looking for Seltzer Water. Where is the best store to find it?


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #92305 03-21-2009 01:44 PM
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Posts: 489
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Jim

I would think that a liquor store would carry it as it is used as a mixer. Or possibly Walgreens?? Just no buying the stuff that they mix with it ok?

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Good1 #92307 03-21-2009 01:48 PM
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Got ya Patty. I haven't drank anything for years and forgot about Liquor stores, I will do as instructed and not buy anything premixed. There are no Walgreens open in this area yet but one is due to pop it's doors soon.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #92309 03-21-2009 01:52 PM
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Posts: 489
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I have not tried it because I still have trouble with anything carbonated. I have a Pepsi sometimes, but I have to open it two days before I want to drink it and that just takes a lot of pre-planning. LOL

Selzter water is different from club soda too so don't be tricked by some well meaning sales person. You do sound like you are feeling a little better. Must be the DQ. smile
Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Good1 #92310 03-21-2009 03:07 PM
Joined: Nov 2005
Posts: 1,128
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Safeway has selzer water in cans and bottles.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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