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Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
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OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
Charm - it would be better to give the what you need to know about oral cancer brochures out at schools. There's info in it that anyone can use. The cards really only have information about how to find the OCF web site and this message board. They are really targeted for treatment centers where we can get more patients directed to this forum where all of you veterans can help them. If you have the wrong mix of supplies, just email Brittany.

For those of you that haven't heard yet, Brittany is going get back into working in environmental issues, probably in Colorado. She has a history of working with AmeriCorps and that work, as it turns out, is her true passion. She is in the process of interviewing for her replacement, and will be staying a week or two to train that new person. She will be dearly missed as she has learned so quickly, has such a big heart, and really wants to make a difference in the world. I personally will miss her many contributions and ideas, as well as her unfailing help, even though she was only with us here in California for a short time.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
My daughter is the charge nurse of the Heart Unit in Steubenville, Ohio at Trinity Hospital. She took some OC info to work to put in the area where she hooks her patients to the treatment machines they get hooked to. She also put them in the waiting room in her area.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
brian
will do


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jun 2008
Posts: 475
Platinum Member (300+ posts)
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Platinum Member (300+ posts)

Joined: Jun 2008
Posts: 475
Thanks so much, every little bit helps!


Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!

*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker

LETS MAKE ORAL CANCER HISTORY!
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