| | Joined: Mar 2009 Posts: 48 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Mar 2009 Posts: 48 | You are so right Suzanne! It made me feel good, and like so many people have said that it will get easier with each visit.
On another note..I think that my mom has gotten to the acceptance stage of this latest news. For the first couple of weeks she sat home feeling sorry for herself, she was completely miserable and slept most of the day. Yesterday she went out, did some laundry and took a walk. She also has showered several days in a row. All positive signs to me-I think that she is ready to put up a fight!
26
Mom 48 diagnosed Sep 08 Stage IV SCC
full glossectomy, neck dissection traech and peg Nov 08
35 radiation treatments and 3 chemo
Mar 09 mets to lungs
Started Erbitux 3/09/09
06/26/09 mets to rib
Stopped Erbitux 6/26/09
Start erbitux/taxol 7/06/09
Started Hospice 7/24/09
Passed away 8/09/09
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Colleen
Thank you for updating about your mom. Its very difficult to explain the feelings you have when given the awful news that you have "the big C". Im glad to hear she has settled into this new phase. Hope your visits are going smoothly.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | I think the fact that she is showering and doing laundry are all great signs. That shows she is dealing with it and can still do the day to day things in life. I'm so happy to hear that Colleen. That just warms my heart for you. Please keep us updated with how she is doing. Maybe you can takes walk with her, it's getting nice in our area now. I walk with my mom sometimes and it's really so nice, such an amazing stress reliever. I'm sure she would appreciate it.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I wish I could take a walk with either of my parents or 3 brothers that have passed on. My mother was like she was energized after she finally agreed and believed the Drs in Pittsburgh that she had cancer. They gave her 3 months to live, which she did almost to the minute, but the only thing she would say to us is, I'm not dead yet and like me, she had to stay busy. We walked thru the Cemetry that was next to my house. That's hers and the rest of my families too. I still have 5 lots and hope it's still 5 20 yrs from now.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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