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#90965 - 03/02/09 02:35 PM My tongue's SPLIT
davidcpa Offline

Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 8309
Loc: Gulfport, Florida
I woke up yesterday with a sore tongue (tip) and it was sensitive to eating or drinking. This am I still had the same feeling so I looked at it and I see a 1/4 inch split right down the center close to the tip. Now I googled "split in tongue" and I was directed to some medieval ritual which doesn't apply and also to Dry mouth which is obvious but since I've had DM for 2 years now and it's better now than before I'm curious if anyone else has encountered this. I know some of you wish you had my problem and I feel for you but if anyone has had this before I'd like to hear what you were told.
_________________________
David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 14, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

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#90969 - 03/02/09 04:54 PM Re: My tongue's SPLIT [Re: davidcpa]
Cookey Offline
"OCF across the pond"
Patient Advocate (1000+ posts)

Registered: 02/20/07
Posts: 1939
Loc: Harewood -Yorkshire, UK
My basic understanding David is that this could be caused by a)thrush b)vitamin deficiency c)lack of fresh friut and veg,and of course the obvious one.....telling fibs!!
whatever it must be very uncomfortablle.Hope it gets better soon.

love liz


Edited by Cookey (03/02/09 05:58 PM)
_________________________
Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.

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#90970 - 03/02/09 04:57 PM Re: My tongue's SPLIT [Re: Cookey]
Pandora99 Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Registered: 09/14/06
Posts: 1319
Loc: Winnipeg, Manitoba Canada
I have not heard of it before, and it sounds painful. Have you eaten pineapple or other fibrous material which could actually cut the tongue? Give it a couple of days and if it isn't better I'd be getting it checked. Keep us posted.

Donna
_________________________
Donna,60,SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV.New primary R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 10 yrs from 1st dx, 6 yrs since 2nd dx. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! Cancer does not eliminate vanity - I would still rather be 59!

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#90972 - 03/02/09 05:11 PM Re: My tongue's SPLIT [Re: Pandora99]
Good1 Offline
Platinum Member (300+ posts)

Registered: 09/17/08
Posts: 489
Loc: Illinois
David,

Why not give the dentist a call today and have him take a look at it?? Please.

Patty
_________________________
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace

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#90980 - 03/02/09 08:32 PM Re: My tongue's SPLIT [Re: Good1]
Malka Offline
"Above & Beyond" Member (500+ posts)

Registered: 11/26/07
Posts: 681
Loc: New Orleans
David - I certainly wouldn't want my CPA to respond to any IRS questions with a forked tongue - leave that to the politicians who also so adept at speaking from both sides of the mouth at once. Please post that you have made an appointment to check it out ASAP.
_________________________
SCC stage II Partial mandibulectomy w. neck dissection 7/27/05. Renal cancer w. partial nephrectomy Jan04. 4/08, breast cancer discovered in routine mammogram. Sucessful lumpectomy, sentinal nodes clear. RT only. Reconstruction of mandible w fibula free flap Jan 5/09. Now cancer free.
Support OCF

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#90985 - 03/02/09 09:14 PM Re: My tongue's SPLIT [Re: Malka]
JeffL Offline
"Above & Beyond" Member (500+ posts)

Registered: 02/10/04
Posts: 596
Loc: Ohio, USA
David -- I had that early on after treatment, and was told it was due to thrush, and exacerbated by dry mouth and the radiation.

Here is a tip -- do not Google "split tongue" -- this is apparently becoming something of a fad among the piercing crowd. Disturbing . . .

Let us know what you find out!

_________________________
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!

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#90992 - 03/02/09 10:41 PM Re: My tongue's SPLIT [Re: JeffL]
davidcpa Offline

Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 8309
Loc: Gulfport, Florida
Jeff, No I Googled "split in tongue" not split tongue.

Malka, Cute!!

Liz and Patty, I have a client who is my dentist so I saw him at 2:30 and we spent 15 mins talking about my wife who he also treats. I finally had to say "what about meeeee". Anyway he looked in my mouth and said he thinks (comforting) that I have a yeast infection and told me to eat the cultured yogurt stuff and gave me a prescription for Diflucan. I then said "what about my split tongue?" and he said probably due to the swelling of my tongue and I said "what swelling?" and he said the swelling caused by the infection. I gave up and started talking about my wife again.

I already ate some strawberry yogurt (yum) and will P/U my prescription after 6 tonight. I hope my tongue grows back together at least for my clients' sake.

_________________________
David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 14, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

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#91000 - 03/03/09 01:40 AM Re: My tongue's SPLIT [Re: davidcpa]
EzJim Offline
Patient Advocate (old timer, 2000 posts)

Registered: 06/12/07
Posts: 5260
Loc: Mingo Jct., Ohio
David, my tongue has been split since right after the 3rd piece of mt tongue was taken in Jan of 2007 and those implants didn't help it either. Thrush is what I was told maybe and to brush until it hurts, which I do. I hope yours doesn't go on for this length of time old Buddy. It gets ridiculous with the pain it brings with it. My tongue muscle is very visible and the split is directly in front of it.
_________________________
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here

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#91006 - 03/03/09 02:21 AM Re: My tongue's SPLIT [Re: EzJim]
Good1 Offline
Platinum Member (300+ posts)

Registered: 09/17/08
Posts: 489
Loc: Illinois
David,

Thank you for having your tongue looked at. When I first noticed my cancer it was a split place on the underside of my tongue. I only wish that I had gone that day to have it looked at instead of almost 3 months later.

I hope that the yogurt and antibiotics help it heal and that it grows back together.

Patty
_________________________
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace

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#91009 - 03/03/09 02:41 AM Re: My tongue's SPLIT [Re: Good1]
mhupe Offline
"Above & Beyond" Member (500+ posts)

Registered: 06/02/07
Posts: 718
Loc: Wisconsin
How deep is the split, David? I mentioned this to Dan and he says he gets this on and off...I had no idea. But, he said it was more like a cut than a split. So not really a forked tongue like the one people are referencing above. :-)

He said that it comes and goes and he hasn't had it for a while. Am wondering if he should go to the dentist next time.

Be curious to learn more! Dan went to the dentist today for a regular check up and out of the blue the dentist gave him a book to read about the relationship between calcium and cancer. We haven't read it yet, so we don't know what it is about. Anyone ever heard of it?

Details, David...I need details. I always track your progress because Dan seemed to follow in your footprints on the recovery side. Except it took him a heck of a lot longer to get his endurance back. And, he can't bike 120 miles a week here because there's just way too much snow. But, he's been skiing a lot. :-)

M-
_________________________
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.

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