| | Joined: Aug 2008 Posts: 113 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Aug 2008 Posts: 113 | How do I get involved in this ? I will do anything to get the word out.........pamphlets, buttons, etc.............It amazes me, the number of people that never heard of OC..........I never heard of it either for that matter. Oh, I am changing the subject here, but Jim had his 5th and last cyberknife treatment on his jaw and needless to say the tumor in his mouth shrunk due to the cyberknife treatments. He is still very ill, but that was the first good news that i've heard in a year................
Husband 2/3 tongue removed March 2008. Free flap. . Stage IV. Radiation and 3 chemo's (cisplatin,taxol & erbitux). .Pet scan Aug 08 showed mets to lungs .Oct 08, recurrence. - In the arms of Jesus, July 15, 2009
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Claudia...I am so happy you got some good news. That is just wonderful.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Very good news Claudia!!! You have been long overdue for some positive news. Congrats.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Claudia,
Congratulations on the improvement. It's always good to hear that someone is responding to treatment.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Claudia, great news for you! WE would love your help in passing out information!! I will have Brittany send you some information. Could you email her your mailing address so she can get that out to you. I was out of town for few days so Idon't know if you already contacted her. But I will let her know you will be sending it.
This is so great that so many OCF members are really into passing out buttons and brochures. The people on this board are the true meaning of courage and no one better could represent OCF than all of you. Thanks to all!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Brian and Brittany, I got my pins today. Very nice. I will proudly wear one everyday. Thank you!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | WOWs - Just now finished plowing through the accumulated mail that my wife did spot as bills and there was a HUGE envelope bursting (literally) with Buttons and cards from OCF. Way to use the flat rate !!! Actually I will be taking a somewhat different approach in distribution. Turns out my son's girlfriend's saw the bag of buttons that came while I was still in hospital. She immediately exclaimed can I have one of each? Her brother is unfortunately in and out of the hospital on long basis and these teenagers are big on buttons. I will be giving Sam plenty along with the OCF cards to distribute in the local high school here which covers the entire city. As this terrible plague catches people younger and younger, so too do we need to educate the youth.
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Aug 2008 Posts: 113 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2008 Posts: 113 | I would like some buttons and literature. I asked on a previous post and everybody ignored me..........lol.............Now, I'm asking again.............How can I help ?
Husband 2/3 tongue removed March 2008. Free flap. . Stage IV. Radiation and 3 chemo's (cisplatin,taxol & erbitux). .Pet scan Aug 08 showed mets to lungs .Oct 08, recurrence. - In the arms of Jesus, July 15, 2009
| | | | | Joined: Dec 2008 Posts: 11 Member | | OP Member
Joined: Dec 2008 Posts: 11 | Claudia, I want to send you some but i need your address.... you can PM me or send it to my email [email protected]. As soon as you give me your address i will send the materials off to you!!' thanks Brittany | | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Claudia, Just send your address to Brittany and she will send stuff out to you. Thanks for your help! [email protected]. If you know of anyone who wants to be a volunteer in their state as well, let me know! WE will be organizing screenings in the near future. So we could use more energetic people to help OCF! Thanks Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
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