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| | Joined: Jan 2004 Posts: 104 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Jan 2004 Posts: 104 | Hi Laura,
My dad found while he was on IMRT that if he mixed baby cereal in with the ensure type drinks, and drank that before he got out of bed especially, he wouldn't be so sick for the day. He struggled with the mucous, and I wonder if he would have been allowed to try Mucinex, and maybe it's available in liquid form?
He didn't have chemo or take amifostine.
My prayers are with you for your Dad,
Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"
| | | | | Joined: Jan 2009 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2009 Posts: 62 | I had Amophostine and it really kicked my butt but I'm really starting to get alot of my saliva back. They infused me before every radiation tx. The cancer center I was at had big buckets similar to the extra large popcorn buckets at the theaters. I had one with me at all times. I used the prescription strength Ensure, strawberry and chocolate flavored, in my Peg. I couldn't handle the "baby-formula" stuff, it made me sicker than a dog. There's got to be a better way, don't you think?
DX 6/05 Rt Tonsil SSC advanced to lymph node. Stage 4b. RND, took tonsils, strips off the back of tongue, throat and nose. 19 lymph nodes removed only 1 bad. Once healed, 7 weeks of treatment including 35 IMRT, 7 Cisplatin, 7 Erbitux and 35 nasty Amophostine. Almost 11 yrs out now. Woooo Hoooo!
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