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AmyK #90511 02-22-2009 10:14 PM
Joined: Apr 2006
Posts: 583
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
AmyK,

I know you are really stressing right now. Try if you can not to upset your self beyond what will be. I know that sounds easier said, than done.

The Dr's. have tried their best to be upfront on what COULD be ? That does not mean you will end up with all. Remember what they say "it's not cancer until they say it's cancer" Maybe this could be looked at the same way.

It is hard for us to face what we will have or live with. I pray that you come to a place where you will find peace with what is coming up. Know that all of us here are here for you and will be thinking of you.

Please take care... Diane



2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
AmyK #90513 02-22-2009 11:07 PM
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
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"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
Hi Amy

i must just say that it does seem a little bit off the norm to have radiation AND chemo before a BND.It is my limited understanding,that in the case of large tumours,they may need to be shrunk before surgery can take place,but it sounds like your treatment plan was intended to be more curative than that.Having surgery now,will be more difficult,and i wonder what the follow up will be to the surgery with such recent radiotherapy.
Compared to the rads ,Rob found his bilateral (radical one side and modified the other side) neck dissection a breeze and was only in hospital for three days.He had 58 staples from ear to ear,but healed beautifully,healing of radiated skin may be a little more difficult.

So get the nutrition going and get what strength you have left rallied for this next round.Why and how this disease choose its victims is not something i would dwell on too much concentrate your energy on getting well.

good luck

liz

Last edited by Cookey; 02-22-2009 11:09 PM.

Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #90526 02-23-2009 09:20 AM
Joined: May 2005
Posts: 31
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: May 2005
Posts: 31
My husband had chemo and radiation followed by neck dissection. His lymph nodes were still enlarged, but smaller. He did fine with the surgery and healing. Good luck. Linda


Husband diagnosed 2/9/05 SCC Larynx (piriform sinus)Stage IV,T4,N1,MO
cisplatin/5FU 3/21-3/25 & 4/11-4/15, began 39 rad 4/21/05 last rad 6/17/05, mrnd 10/7/05
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