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Joined: Sep 2006
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Suzanne,

Keep in mind just in case.... that we do plenty of weddings and receptions right at my wife's restaurant. I am a Notary and have performed probably 15 +- weddings and I'm proud to say not one has ended in a divorce (that I know of). I've married people on boats, on docks, many on the beaches and one in the restaurant that was at the cash register and was kinda strange but they are still going strong after 8 years.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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lol.....at the cash register?!?! That is funny. I don't know why I just saw this post today.

I'm still home recovering today. I did go back to work but it hurts so bad. I was thinking after 3 weeks I should be ok. Am I being too impatient?


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
Joined: Sep 2008
Posts: 489
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Everyone heals at a different speed. If you feel better at home right now, then you should be at home. Maybe when you go back you should try 1/2 days or only a couple of days a week to start with. Ease back into it instead of jumping - this is advice that people give me all the time because I am such a jump off in the deep end type of person - or should I say WAS.

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
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Your laws concerning Marriage are different than they are in Ohio. Ministers, Judges, and Mayors are the main 3 here to perform the Wedding ceremony. I was a 2 term Mayor and performed quite a few. Like you David, the ones I peorformed are still intact. THe 1st was a friend of mines daughter. I was more nervous thn anyone there. LOL But we made it thru.Thses were some wealthy people too and I grew up with the Father of the Bride . We were and are still good friends.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Every one gets impatient with this cancer so you're normal and don't forget that.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Dec 2008
Posts: 1,004
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Thank you David...it's good to know I'm normal. I'm usually pretty patient but last night I had a breakdown. It was the straw that broke the camels back when I had some problems getting an Rx filled. I hadn't eaten dinner, had to use the ladies room, was in pain, had been out of the house for 14 hours and still had to drive and hour and half home to NJ. I cried almost the entire way!! lol


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Suzanne, I think maybe 4 hrs work every other dy until you see how you can handle that many. Hate to see you harm your self in anyway by overdoing things.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: Jun 2007
Posts: 10,507
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Suzanne

Im sorry you had such a rough day. Even recovery from surgery takes a while. A long day doesnt help you right now.

Last year I thought I would bounce right back from having the tumor removed from my cheek. It took me months, a long hospital stay and 55 HBO to heal and recover.

Im wondering if you are like me when it comes to being hungry. If I get hungry I must eat something right away or I end up feeling very sick. When you are so limited to what to eat, it makes it very difficult. Do you get that too?

Please dont rush getting back to your regular routine. It makes you feel better mentally, but physically you might not be ready. Try to take it one day at a time. Hope you feel a little better every day.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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