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Joined: Jul 2008
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marma Offline OP
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Joined: Jul 2008
Posts: 101
SO simply put my question today is what's the best kind of scan is used for detecting recurrence? Aside from clinical detection my FIL is having a PET scan tomorrow. I suppose he'll be getting these every three months for the next few years, but I wanted to know what the latest opinions are on them? Are there any other types of scans recommended?

I haven't been here in a long time, after 4 months in India and being the main decision maker for my father in law's care, I guess I just sort of tuned out everything once he was finished with his IMRT. But now I am glad to be back because 1. I know a small amount about this stuff and hope to be a support to somebody. 2. What you all go through really matters to me, and if somebody's not doing well or somebody has good news it matters to me.


Thanks,
Tasha


FIL completed treatment 10/08. CG to father in Law in india who had SCC oral tongue T2N2M0. FIL underwent surgery, neck dissection, IMRT, and erbitux without losing weight or getting nauseated. Completed October 2008. SO far so good.
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My RO told me he's not going to schedule any kind of scans for a while because of false positives and he said I've been through enough and I don't need the added stress. I see my dentist every 4 months, my RO every 3 months, my ENT every month, and my Primary every 6 months. It will be that way for one year...I finished tx 11-4-08


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
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I'm scheduled for PET scans every six months - and I think they are the standard. I had my first one three months out of treatment and I will have my next one in April - 6 months after my first one.


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


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Patient Advocate (old timer, 2000 posts)

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PET scans show many false results. They light up for a simple inflamation. Ive had the false positive results and its terrifying. Usually the first PET after treatments have been finished is around the 4 month point. Then its every 6 months then will go to yearly.

For the PET scan, your FIL should avoid sugar, exercise, carbs and drink tons of water. Preparing like that and resting will give more accurate results.

Hope the test comes out clear.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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