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Malka #86399 12-19-2008 09:46 AM
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Malka--could you be talking about Jack Daniels?


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Malka #86400 12-19-2008 09:46 AM
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My RO said no problem to ocassional beer or wine - he seems to heve a much stronger opinion against liquor. That worked for me as beer was always my drink of choice and a cold one going down does feel good on my pipes now. The taste is not as good as it once was but making a come back. Cheers to all for the Holidays.


Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
Malka #86402 12-19-2008 10:10 AM
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Dianne,

I was told not to drink during the vital years, the years that have a high percentage of the cancer coming back--the first two years post tx. However, my RO told me not to drink at all forever. He explained that alcohol is strong enough to damage the cells in our mouth, he added for a healthy person it's not a big deal but for someone who has had OC the outcome can be detrimental. My RO also told me his patients that did not stop drinking or smoking after OC diagnosis did not make it, that cancer has always won. Now, even though he didn't tell me I know he was talking about excessive drinking...But why take that chance. I was never a hard drinker...maybe a few drinks here and there...maybe 1 or 2 cigars every year or two on special occasions. Maybe just a few drinks and 1 cigar a year was enough to give me cancer...The point is I don't know.

Will I go out and drink casually? No. Will I have a glass of wine at a wedding or special occasion? Yes, but not for a couple of years or so. Why take a chance during the vital years. Will I have a cigar if I ever have a child? ABSOLUTELY NOT. I'm addicted to breathing.

Last edited by Ray1971; 12-19-2008 10:13 AM.

7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #86406 12-19-2008 12:10 PM
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Once again thank you all for you imput...I just never realized what drinking had to do with oral cancer exactly. I understood having to do with liver kidney stomach and other parts but the mouth?...I understood smoking. Just seems all the "fun" stuff is bad. I never used to drink much either. Usually weddings, christmas new years and birthdays. So I rather doubt I will. This is probably nothing new to anybody here but it would be nice for a night or even a few hours of no pain and let loose. Seems to do that naturally has been harder than I anticipated. We still have fun but to let guards down seems to btake a few. Funny my friend and I used to go to bars and drink coffee. At the end of the night everyone thought we were as drunk as they were cause we fit in so well. We just had to let everyone else catch up to us on the crazy side... We were that naturally...So whether I will or wont have a drink I think I will go with the flow and how I feel. Right now it is a big fat Maybe lol


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
darkeyedlady0 #86411 12-19-2008 01:24 PM
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LOL, Dianne, you know you will have 1 or 2 drinks. Then you ccan have my share. Just don't fall off the stool and sue me.LOL You are such fun on here. I likes ya lady.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #86414 12-19-2008 01:35 PM
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An oral surgeon told me that I shouldn't be using mouthwash with alcohol -- It's the irritant on the mouth cells that is the problem -- I asked him if it was OK, from a cancer standpoint, to shoot the stuf into my veins and he admitted that way would be alright, just not putting it into my mouth!

Ya pays yer money and ya takes yer choice!


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #86417 12-19-2008 01:54 PM
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Ray,
It was Johnny Walker Blue. It costs about $250.00 a bottle (maybe cheaper at Walmart??)


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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Malka #86421 12-19-2008 06:03 PM
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You know Jim I will probably wuss out as usual...I have too much trouble with my concience to begin with and if something happens I will think I caused it with a glass of wine or couple of beers over the holidays. I would just have to beat myself up. Wow starting to feel a lot of restriction like I did in my rebelleous teen age years...Can't do this can't have that...grrrrr...Only now I am old and know better...but this sucks...A whole new normal...no drinking no smoking what else can be taken away ...BUT WE ARE STILL ALIVE to complain about it!!!! not that all that stuff is so good for you anyway but they say breathing can be harmful to your health too!!! Happy Holidays ....


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
darkeyedlady0 #86425 12-19-2008 07:45 PM
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LOL I guess that's the good thing where you can say the devil made me do it. You could go with Pete's shoot it in the veins. If it works let me know and we'll get the staggers together Dianne.But on steps going down,, you have to go 1st.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #86427 12-19-2008 10:00 PM
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Ok just be careful where I would lead you....you never know with the devil made me attitude...
hee heee...


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
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