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davidcpa #85418 12-05-2008 08:56 AM
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If you like V8 and still want the vegetables in it there are several different kinds that are available V8 Splash...strawberry bananna flavor, strawberry kiwi for a few...although I found them to have a lot of salt...
Ketchup still burns wierd I didn't like it much before surgery though..


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
davidcpa #85436 12-05-2008 05:39 PM
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Add ginger ale to the list too. It lights you fire real fast. I force the things that burn down sometime just to remind myself what they taste like.. Sugar is ine thing that gets me every time. That I am going to quit trying, even with cereal.. I do use the sugar substitute also.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #85450 12-05-2008 09:05 PM
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Jim--wouldn't it be easier just to smell for the memories! Birch beer burns...I miss Birch beer.

I wonder if sweat and sweaty buffalo wings would burn? Just a couple...one?


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #85605 12-08-2008 04:43 AM
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Yea, I bet the ginger ale does lite you up. I tried Sprite and found out I can't drink soda's. It has been years since I drank a soda but one day at chemo a lady was drinking a sprite so I thought I would try. Big mistake!

Also, I had to start grinding up a few of my meds because they get stuck in my throat. Well one of them is my asprin and let me tell you that one does me up a job. But I can't swallow them no matter what I do other than to grind it up. Everything taste like salt to me. I can't even taste sugar.


SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
angels1313 #85609 12-08-2008 08:45 AM
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Angel,

Ask your doctor for liquid meds. Mine would burn awfully bad but mixing it with warm tea did the trick.

At one point through tx Gatorade was like drinking acid.


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
davidcpa #85615 12-08-2008 10:24 AM
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I had to avoid anything acidic during mid Tx to several months post Tx. Even canteloupe would burn like hell. Hot & spicy didn't work either. Nor did anything too salty. Like David though, after a year or 2 I was eating virtually anything I wanted. I was able to eat pizza and salad with dressing 2 months post Tx (and taste it).

It took longer to have every subtle flavor come back. Sweets took the longest.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Gary #85625 12-08-2008 12:57 PM
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I was extremely sensitive to salt at first (post-nuking), which has now returned to normal, but my sweet tastes have NOT returned, and now my taste is even worse because my wrist didn't have taste buds... I can feel the effects of sugar, like in coffee, but not the sugar itself.

I also couldn't take the burn of regular Gatorade but found their G2 version is OK.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #85632 12-08-2008 02:56 PM
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First everything tasted burnt. It was like eating charcoal out of the firplace. Even water tasted burnt. That thankfully lasted only about 2 months. I was also overly sensitive to salt. Anything with a little salt would burn my mouth and taste awful. That took a long time to get thru. Forget soda, cant drink it at all, still burns my mouth.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #85714 12-09-2008 07:04 AM
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Angels, Can you get the coated aspirin? That's what I have to use but they go down fairly well. I have trouble with some of the uncoated meds. I wonder where they get the ingredients for some of them? Hummmmm any barns nearby??? LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #85745 12-09-2008 02:49 PM
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Ray, I have asked numerous times about liquid meds but the Dr.'s wouldn't give them to me.

Gary, That gives me hope about the 2 months and tasting something. I sure hope i do as I am dehydrated still and so weak.

Pete, I will give the new gatoraid a try. Water and Ensure is all I am trying right now. I tried a burger and it felt like it ripped my throat going down so I don't want to do that again.

Christine, I won't miss soda's because I haven't be a person to drink them for years now. But I sure do miss the taste of food and chocolate and coffee. My mouth taste like salt all the time. I can't brush it out or mouthwash won't get the taste out.

Jim, Yes I do take the coated asparin, Ecotrin. That is one of the ones that won't go dowm and when it gets caught in my throat, it sacares me because it is a long time before I could get it to go dowm. I hope there aren't any barns nearby too. lol Hope you are getting better too. Today was my last treatments. I am on my way to recovery now! Yea! Angel


SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
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