| | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) |  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | You're preaching to the choir here...
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | Oh well can't help it is in my nature... sorry I am just so glad there has been people here to help support and laugh with despite issues no one should have to endure...
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | I think the commercial is great!! I was just saying to Brian the other day that I wanted to see oral cancer commercials on tv. They have one for so many but not oral cancer. It would be so great if we can get oral cancer on the air waves. Since my walk, I have received so many inquiries about oral cancer awareness and that was just from a small walk! Imagine what we could accomplish on a national level!!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | It would have been nice to have a little more notice. If the shoot is in Philadelphia, I may be able to do it depending on the time. Don't know if I qualify since I had NO chemo, but a two time cancer survivor with two neck dissections and trach might do. I will email her but someone is going to have to send me Sarah Palin's wardrobe. I live in dunagarees.
Take care,
Eileen
P.S. Anyone contact Jerry?
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | I think my Mom would be a terrific candidate for this! Brian has all my contact info.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Ok, so I emailed Caroline indicating I prefer Philly and she told me the interviews in Philly are on Thursday the 13th and to call the Philadelphia number. I did and have an appt at 11:00 with the client. This is the website for the casting company if you need directions www.wicklinecasting.com. You MUST call for an appointment. Dress casual, but not dunagrees if possible. They do not have location for this shoot but will be in Philly area. I don't have the date for that. One other thing. They don't care what your treamtent was, they are looking for oral cancer survivors with interesting stories. Take care, Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | I just got this email from Caroline on the NY interview:
If you would like to come to NYC we will be holding audition this coming Wednesday, November 12th between 10-1 and 2-4 at Three Of Us 39 West 19th Street, 12th Floor between 5th and 6th Avenues. You are what we are looking for. There are other canditates but they are hoping to hire many people who have compelling stories (of which yours is definitely one).
Thank you,
Caroline Sinclair
Pick your poison guys, looks like they want several of us.
Take care,
Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | They are looking for several people. And if they do not get the head count they need they will have to fill the void with actors. They don't want to do that but will if it's a must. I would love to go being 45 minutes outside of Philly or a little more then an hour away from Manhattan. I usually let any excuse happen for a Manhattan trip but I'm having a difficult time post-tx and I'm not physically capable of a trip at this time. Hpefully they get the people needed!
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Caroline e mailed me and said:
Hello David:
Thank you so much for responding. We are located in NYC but I am wondering if there is anyway that you could put yourself on tape (telling your story)? Webcam would work.
Tomorrow, I will forward your letter to my producer. They do have different casting directors working around the country so perhaps there is someone in Florida. Lets see what we can work out.
I will be in the office tomorrow and i am always reachable on my cell.
Thank you so much for responding.
Best wishes,
Caroline Sinclair
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | There is a concurrent thread about this commercial with a different casting company (Wickline) in PA -- The other thread contains more info on what they are looking for. http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=83622&page=all
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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