| | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Sep 2008 Posts: 130 | 49F and falling.
I think it as the smoking,drinking and fooling around.
What movie is that from?
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
| | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Sep 2008 Posts: 250 | Hmmm. "My Life Story"? "It's a Wonderful Life"? "Chickens Come Home to Roost"? My goodness, so many to choose from.
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
| | | | | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2008 Posts: 130 | Nope, I figured it out
MEATBALLS. It was a song.
Last edited by AmyK; 10-28-2008 07:22 PM.
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I woke up this am and had to Buddy, our 11 mo old "puppy", for his p walk and I could see my BREATH. I just went swimming Sunday, give me a break. I too hate the cold and I hate people here in Florida saying things like "it (the cold) will be a welcome relief". They need to move back up north if they like it so much and take IT with them. I'll take sweat over chills all the time.
Amy,
Glad to see you among us again.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
I did live in FL for a couple years, Vero Beach. I do know how it can feel incredibly cold when you are used to it beign so warm all the time. I remember in Feb it sure was cold. One year during a cold spell, we went to the beach at Sebastian Inlet. It sure was a funny sight seeing all the Northerners actually swimming when the temp was only in the 40s.
Here, Ive had 2 days of snow. My yard, deck and roof are covered. Roads are wet or in places slushy, go 3 miles from my house and there is nothing at all. Thats the weather here in the mountains. Some places closeby got hit with a foot of snow, I was lucky. Oddest part is that 20 minutes south and they got nothing but rain.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Amy,
It's ok not to feel "positive". I read a study that attitude made NO difference to survival outcome (prayer didn't make any difference in outcome either).
It does help those around you though - that's why so many tell you to "be positive" (they're the ones who need to think "positive").
You have my permission to be scared sh*tless - there were many times I was - even with the anti-anxiety meds. It's like going into combat - if anyone tells you they're not scared - they're lying.
Remember to breath in and out. Take it one day at a time and stay out of the future.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Gary,
Good for you for telling it like it is! It is scary to hear
how brave everyone is when you are scared to pieces and you
think you are a wimp and a "goner". I have been there - even though everyone (even my psychologist) saying to not ever let my husband see me cry and not to let anyone know I am upset. ( I did not
go back to him, by the way).
You are right-one day at a time. One day may be scary and the next
wonderful, until you get more good than bad hopefully.
Take care
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Sep 2008 Posts: 250 | I haven't seen Amy K back here since her first radiation treatment Tuesday. I can see she hasn't posted since then. Has anyone heard from her by PM?
Amy, You seemed in pretty good spirits on Tuesday, so I'm thinking you've probably just been busy, but OK. If you need/want to talk, though, please write a post here, or PM me if you want. We can talk by phone, too, if you want. Just let me know.
Lani
Last edited by Lani G; 11-02-2008 04:30 PM. Reason: Added paragraph
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Lani:
Try sending her an email. Her email is posted on her profile. Its not unusual for people to not post often while goint thru tx.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Sep 2008 Posts: 250 | Christine,
She wrote me a PM shortly after I had posted this and we've been writing back and forth since then by PM. She's been checking in to the Forum from time to time, just not posting.
She's doing just fine so far with the Rad - says it's a breeze, but the chemo is knocking her for a loop each week so she's feeling really bad for a couple of days afterward.
Her spirits are still good though. She's a champ (You are, Amy) and I told her she should start a new thread because she's worked through her "Panic attack".
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
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