#83148 10-29-2008 11:52 AM | Joined: May 2008 Posts: 43 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2008 Posts: 43 | did my 6 weeks of chemo then 7 weeks of radiation and more chemo. Now they are going to biopsy the tonil base of tongue and tet it right away right there and if it i negitive they will give me a neck disection if not nthen they wake me up and i guess plan a bigger operation. Has anyone had the operation like this after rad and how long a recovery i just started eating again it been a month since rads ended now there gonna mess me up again.
Tonsil into base of tongue 3to4cm tumor. Giant lemon sized 9cm lymphnode. Squamos cell carcinoma
April 5 diagnosed. June 5 started treatment. Cetuximab Carboplatin Paclitaxel once a week for 6 weeks.Then 7 weeks of radiation plus chemo cisplatin then 4 weeks rest then neck disection was Nov 7 2008
| | | | | Joined: Oct 2006 Posts: 46 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2006 Posts: 46 | Hi victor,
My husband had a big surgery after radiation. The initial plan for him was just IMRT to the tonsil, but one month after completing that, his PET lit up in that area with obvious residual tumor. So he had surgery including neck dissection and resection of the tumor with a forearm free flap as many of the posters here have had and described. There was worry that the radiated tissues would be slow to heal, but Mike actually healed fairly quickly and had a great cosmetic result from the surgery. Of note, he did not have a PEG tube. He had not had one with radiation because he didn't have concurrent chemo (and was 40 pounds overweight). With his surgery they put in a nasogastric feeding tube, but he had that removed after one week since he was able to swallow a little bit. Swallowing and eating were certainly no fun, and he lived on Boost/Ensure for the first few weeks following surgery, but doing it this way worked well for Mike and helped him maintain his ability to swallow. Now 18+ months out from surgery he still has some trouble with certain foods (any meat that isn't super tender, large pieces of lettuce, etc.), but can eat and drink pretty much anything he wants. He still complains about the taste of certain foods, especially sweets, but laughs that that doesn't seem to stop him from eating them! All in all his graft has healed well (both inside his mouth and on the forearm)and he is thankful that the docs were able to get in there and remove the cancer since the radiation hadn't completely done the trick.
Best of luck to you, Victor. There are lots of people here who will be able to give you advice and support.
CG to spouse, tonsillar SCC, T2N0M0, tonsillectomy 9/06, 35 rad tx finished 12/06, no chemo. Positive PET 3/07 in tonsillar fossa (residual tumor), surgery 4/2/07 composite resection tonsillar fossa and BOT w/forearm graft and right ND.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 |
Victor
Wishing you the best of luck with your surgery tomorrow. Sorry but Im not familiar with what you are going thru. Just wanted to wish you well.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Victor,
A BIG GOOD LUCK TO YOU.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2008 Posts: 219 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: May 2008 Posts: 219 | Victor, I also wanted to wish you all the luck in the world tomorrow with your surgery. Angel
SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Hoo, Boy!! You are just having a lot of fun! Hang it there and know that we all care!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | |
| Forums23 Topics18,168 Posts196,924 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
