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TomT #80129 09-07-2008 06:21 PM
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the docs base everything on stats .. i for one never listened to them, the stats in the beginning were very nice .. but once the cancer came around the second time, the stats were junk .. and as the treatments went on the stats kept getting worse ...

i didnt let it get to me,, but i think about those stats quite a bit.... i would ignore it all and keep supporting ur wife with all u got


the world brought me to my knees...
Update: Feb 10/08: Mom passed away on Jan 31,08 - infection (unknown) in her lungs with her weakened immune system resulted in cardiac arrest - T2NO SCC of tongue surgery 6/30/06, SCC left neck and lungs detected Sept 07, 7 weeks rad/3 rounds chemo had no effect.
herson #80152 09-08-2008 02:28 PM
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Hi Herson,

Glad to see you back out here. Hope all is well.

Joy


CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
TomT #80153 09-08-2008 02:38 PM
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Tom, I am now 9 months post tx and my TEAM never gave me any numbers as none of them (all six) belive in them! First and foremost is that both of you follow the Doctor's orders to a "T", both need a positive attitude as this is going to be a hard fight for you both, the sacrifices will be well worth the effert when this is completed! I attacked my Cancer as if I was back in a WAR, I fought this enemy on a day to day basis and would have had a harder time without my caregiver having the same mentallity. Make sure she gets plenty of calories and drinks plenty of fluids to maintane her weight. The members of this site will help you both thru this ordeal, they are the best!Semper-Fi Bob


Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
Bob Whyte #80391 09-13-2008 09:46 PM
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The numbers don't help. Nothing is set in stone and there are too many variables for any of us to be thrown into one percentage or the other. You have smokers, chawers, drinkers, viruses, cheek biters, tongue chewers, dentures, rough teeth, gum diseases, chemicals...multiple causes...too much to mention, the list goes on. Sure, the obvious may give one an idea...but why go there? The most important thing is to know what is bad and what is good for your situation and live accordingly, i.e., if you smoke...STOP. Sometimes it's better just to listen do the best you can and pray for a healthy outcome.

We were getting ready to go out and my buddy says, "I'm starving to death..." His father looks at him and says, "If that was true you'd be A LOT THINNER!" Twenty years later he's still on the heavy side.

I wouldn't fret the numbers...The only one that matters is the one we're doing now...breathing.


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #80668 09-18-2008 11:21 AM
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Tom,
One of the first lessons in any course on statisics is the "Gambler's Fallacy." Every penny toss has a 50/50 chance of being heads or tails. This does not mean that if you toss a penny 100 times it will fall 50 heads and 50 tails. It means that every time you toss that penny it has a 50/50 chance of being one or the other. The only statistic that is 100% accurate is that if you are born there is a 100% chance that you will die some day. Any other statistic is based on the premiss that all relevant factors have been considered and they will not change.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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Malka #80673 09-18-2008 02:57 PM
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When I finished my radiation treatments, my ENT told me that I had roughly a 60% five-year non-recurrence prediction. A year later, having had a clean CT/PET scan, he said the number was now in the 90's, but a year and a half after than I had a bad biopsy, meaning my number was now ZERO...

Now that I've had my free flap done and more cancer removed, I don't know what my new numbers are and I don't much care because they don't mean much.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #80858 09-21-2008 05:32 PM
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I heard a horrifying stat for me anyway....I was told that if only one spouse tries to quit smoking that they might as well not bother cause the spouse quitting is doomed to fail...odds are nill for success sure made my day


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
darkeyedlady0 #80881 09-22-2008 04:54 AM
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That sounds like something someone who really doesn't want to quit would say -- Indeed, it is more difficult to quit if others around you are smoking, but it's not impossible.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #80893 09-22-2008 06:39 AM
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That's bull. If you want to quit, you will quit, PERIOD!! It's an addiction, a powerful one, but you can do it with or without ANYONE'S SUPPORT.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #80976 09-23-2008 02:41 PM
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this was actually what my nurse told me she was trying to encourage my husband to quit with me and told me that the chances of me being successful decrease or are almost nill because of the spouse not quitting...and I have I just was passing on what someone had told me...


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
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