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#79868 09-03-2008 07:53 PM
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Okay, I finished treatment a little over a month ago (radiation and chemo) and I feel like I have healed up and recovered extremely fast. But here's my problem : since I started eating by mouth again (about 3 weeks ago) I have been getting these water blisters that pop up as I am eating and they stick around for maybe 30 minutes after I'm done and then they are gone. The blasted things hurt like crazy when they pop up too. They are just little water blisters on the back of my soft palate and near my uvula and sometimes on my cheeks (so all the softer tissue in my mouth). I just assumed they were from being irritated by food because they only pop up when I am eating. I guess I'm just complaining and wanting to know if anyone else had this problem and how long they stuck around after treatment. Right now I just drink a lot of water or whatever when I am eating to try and keep stuff from sticking in my throat and irritating it.


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


sobradley #79879 09-04-2008 04:26 AM
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Relax!
I had that too and it did freak me out as well. These are the little glands that are trying to work. Actually they are working but need new "plumbing" It should disappear soon as you continue to heal (1-2 weeks?) at least it did so in my case if I recall correctly.

M

Of course if this persists you should talk to your medical team anyway. It would be nice if one was warned about stuff like this beforehand.


Last edited by Markus; 09-04-2008 04:30 AM.

Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
sobradley #79960 09-04-2008 07:42 PM
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Soft palate blisters...
If I have read your post correctly you have had radiation therapy that included your soft palate and uvula area either directly or indirectly via scatter radiation.
Radiation and Scatter radiation damages the outer layer of mucosa. Minor salivary glands mucous and serous are located in your soft palate forward of your uvula. These glands aid in lubricating things (food) you intend to chew and swallow and provide some enzymes to help break down food.
When minor salivary gland orifices are damaged they sometimes become covered by the overlying mucosa rather than the minor gland duct openings due to the fact that mucosa forms faster than gland duct tissue. When theses minor glands are stimulated they produce fluid and if the gland duct is blocked the fluid builds up underneath the mucosa and appears like a blister. These can be painful, until they break and there can be many or few.
The duration of this occurence depends on the area that was damaged and the amount of damage this area recieved. In most cases this situation will resolve itself.
Drinking plenty of fluids and chewing food very methodically can reduce the severity and length of the problem.
Cheers,
Mike


Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
Dr. Mike #79962 09-04-2008 07:59 PM
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Thanks so much for the responses. I did have radiation in the area so I was almost certain that was what caused it. I do take a sip of water or tea or juice with every bite of food to keep the irritation to a minimum. I ate PF Changs for dinner tonight and it was the first meal in a few weeks that didn't make the blisters wage war against my mouth - those little buggers hurt! I guess with everything I'll just have to be patient and wait it all out! Thanks again!


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


sobradley #79966 09-04-2008 08:23 PM
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You are doing so well Steph everyone is proud of you and you are such a trouper...It must feel like you mouth is made of bubble wrap...sorry about that if it was in bad taste but that's kinda what it reminded me of...I just hope it doesn't last too long for you dear.


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
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Bubble wrap.... what an apt description. This is exactly what you want to do with it when you see it the first time!
... and it was not in bad taste ... because Stephanie probably does not have much taste yet.... (but she will)

Knowledge of a thing makes is much less frightening, especially if you know that is it benign and only temporary.

M




Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Markus #79983 09-05-2008 05:08 AM
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What is PF Changs?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #79992 09-05-2008 07:49 AM
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PF Changes is really really good Chinese food! And surprisingly I've always had really good taste throughout this whole ordeal. I only lost my ability to taste sweets, but it has come back and is almost back to normal. And yes, bubble wrap is a good description, except bubble wrap is way more fun (but luckily they only pop up in a few spots, not everywhere).


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


sobradley #80077 09-06-2008 01:05 PM
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That's great re your taste. Must be cause you're sooooooooooo young!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #80130 09-07-2008 06:55 PM
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Ah, yes, so young! It has it's perks but I'm planning on living a really long time, which means I have a really long time to worry about a reoccurrence!


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


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