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#77964 08-03-2008 04:08 AM
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EzJim Offline OP
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Well, sometime this morning marks the 1st year of my 1st surgery at the James CCC at Ohio State University. The beginning of a lot of things that confused my mouth as well as me. LOL..Pronounced Cancer Free and that was the beginning of a few problems. I could fel the Cancer for some reason in my tongue still. That is when Dr Pollock from Wheeling Hospital in Wheeling , WVa called and sent letters to my home explaining that the margins were way to close and the OC wold be back. Nedless to say he was 100% right. All of this followed with teeth being removed, radiation and Erbitux . Then Feb. 29th, lucky I only get that Anniv. once every 4 yrs LOL, I had the radiation tongue seed implants and 2 complete lost weeks. It seems no one can tell me what occured during this time, not even on my BDay the 21st of Feb. Anyway, I knew I was gonna come out on top of this stuff and outside of a few uncomfortable ball games and races in my mouth, I am still winning the fight. Have a great day all. I need my morning coffee. Gotta go.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #77965 08-03-2008 04:09 AM
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I should have added that this was the day I lost part of my tongue and had a left neck dissection. Geez, this old dummy gorgot the most important part of the day. LOL Sorry bout that.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #77966 08-03-2008 04:11 AM
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LOL.. THATS FORGOT TOO NOT GORGOT...


Barb
BarbT #77968 08-03-2008 04:13 AM
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LOL Barb,, you know how I proof read. I DON"T but should. Thank you mam.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #77980 08-03-2008 08:37 AM
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Congrats Jim


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #78003 08-03-2008 04:16 PM
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Congratulations Jim and is the coffee tasting OK now ????
Cheers
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #78004 08-03-2008 04:28 PM
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EzJim Offline OP
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I have 6 cups every morning gabe and just gotta have it. Thanks for asking.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #78005 08-03-2008 04:36 PM
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Jim:

What a long road you have had. Glad you are finally doing good. Have a cup of coffee for me smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #78006 08-03-2008 04:37 PM
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Jim,

You continue to inspire me! I can't wait to have coffee again.

Congrats.

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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Congratulations Jim,

It seems like just yesterday. Your continued strength and great sense of humor is an inspiration to us all. Your "speeelinng" leaves something to be desired, however.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
wilckdds #78076 08-04-2008 07:25 PM
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WTG Jim!


Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
wilckdds #78140 08-05-2008 06:16 PM
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Jerry, I was the champion speller even in grade school. LOL I just can't type worth a damn. I tried to learn in Business College but figured if I ever got into business, which I did, I would have a secretary. LOL Let her do the typing.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #78147 08-05-2008 07:31 PM
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Jim,

I used to be able to do addition and subtraction without a calculator. What's happening to us? I think the grandkids turned my brain to mush.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
wilckdds #78154 08-05-2008 09:24 PM
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Jim....congrats! Every milestone takes us farther away from that terrible first day. I am pleased for you and proud of your ever-positive attitude. I imagine that you have some private moments when you aren't totally upbeat..don't we all??....but I do so enjoy you here! You lift my spirits every time I read your posts.

I, too was a champion speller. Oops...maybe I should check my typing before I post this! I actually taught typing one semester (by filmstrip and a book) when I taught at a small private school where I taught English, Spanish, religion, and typing. I decided that getting pregnant was easier than that!!

And it was.

XO


Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
August #78160 08-05-2008 09:53 PM
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I can't type worth a damn either, Jim. Even though I've always been a good speller.I also have a hard time proof-reading what I've typed on a computer screen. I'm much better when it's on paper.

Anyway, CONGRATULATIONS!


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
EzJim #78166 08-05-2008 10:29 PM
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Jim -
You can gorget anything you like for as long as you like. I lost my taste for coffee, so have one on me.

Marlene


Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
Marlene41 #78179 08-06-2008 05:49 AM
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Congrats Jim !!

Looking forward to MANY more !!!


Kevin


9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
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I was always the first to sit down in those damn spelling bee's even if I were last in line!! Thank heaven for Administrative Assistants and now spell check.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
wilckdds #78193 08-06-2008 07:29 AM
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Congrats Jim . . . I need to start drinking coffee as latest articles now say a couple of cups is good for your health. How we seem to go full circle on so many food and drink issues.


Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
William1949 #78200 08-06-2008 08:03 AM
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I just have to say I really enjoyed these posts by all of you. Maybe I can quit smiling before I go to bed tonight. LOL,, I sure hope all of you have great days for the next 50 years or so.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #78277 08-07-2008 11:30 AM
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Wow! I had to get my 2 cents worth in. I remember writing about my 1 year 6 months ago! I loved how happy everyone was for me. I just danced around the room!!! I am smiling for you. You are an inspiration to all of us! I love to read your posts.
Wish I could share a cup of coffee with you. I love it too.
I did read also, that it was good for something or other. I had
switched to green tea, but when it got cold, I just wanted coffee.
And so it goes....
So absolutely happy for you!!! Keep up all the good habits that you can.
SMiling for you,
Debbie


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
EzJim #78284 08-07-2008 12:29 PM
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Jim...you STILL inspire me! smile


Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08

JUNE 30, 2008 Officially CANCER FREE!!!
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Va isn't that far away Debbie, who knows LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #78296 08-07-2008 03:56 PM
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Larrys daughter, you are one great caregiver to your dad , even if there are miles between you. Thanks to all of you, I have a lot of heros here to look up to.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #78315 08-07-2008 06:38 PM
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Hi Jim,

Just wanted to add my name to the list of people who finds you an inspiration! I hope that one day I too will be able to celebrate being cancer free for 12 months. In the meantime I get immense pleasure from your postings! Thankyou and may you have many, many more anniversaries!

Sue


55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva
Sue G #78355 08-08-2008 01:01 PM
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Hey Jim,
I quess it really is not that far away. We all should have
not a "re-union" but a "union". What would you call it. A get
together somewhere, as many as can, for a little positive
push of the moral.
Maybe we will figure it out one day soon. We should all infiltrate into a hospital waiting room of one of our favorite(or not so favorite) doctors.
Debbie


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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Jim - Congratulations on the anniversary. I remember when I hit one year after my glossectomy, I was so happy I would only have to see the ENT every three months instead of every month. Time keeps marching on and we get stronger every day. I never had to give up coffee - THANK GOD! CMB


Partial Glossectomy (Right) March 2007, Clear Margins, SCC T1N0M0
TinaB #78386 08-08-2008 08:36 PM
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Jim,
All the best my friend and congratulations!!
(I guess the gas, matches and dynamite will be used for a celebration..HeHe!)
Seriously though...you have been a strong force and someone for me to look up too and I wish you many more years and look forward to your realistic comments and uplifting sense of humour.
Keep on trucking!
Peace and happiness are in my prayers for you and your family.
Cheers,
Mike


Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
Dr. Mike #78441 08-09-2008 05:20 PM
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Awe man, thanks to all of you I made it thru the 1st year. Debbie sounds like she's scheming to get even with some Dr at a hospital in Va. LOL Lets go for it Debbie one day soon. At least we would mostly all have some of the same features. Just sitting here smiling.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #78489 08-10-2008 09:31 AM
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Actually, I haven't been cancer free for a year. It was a year since I was told I was cancer free and it came back in about 2 months, that is if I was cured for such a short time. This was months before the rads, chemo and seed implants. The implants happened on the 29th of Jan . I have been pronounced cancer free for the past4 or 5 months tho, LOL So that counts big time.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #78521 08-10-2008 09:45 PM
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Jim,
Keep up the good spirits and stay well so we can enjoy your posts.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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EZ,
Did the docs at James sort of miss the mark?
thnx

Mike

dx scc right lateral tongue, fializing decision on where to get treated

wilckdds #85379 12-04-2008 04:54 PM
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I was just rereadubg the posts in this one. Got me laughing and feeling good for sure, just to have you all as friends.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #85380 12-04-2008 04:54 PM
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Rereading that is.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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