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#77964 08-03-2008 04:08 AM
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EzJim Offline OP
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Well, sometime this morning marks the 1st year of my 1st surgery at the James CCC at Ohio State University. The beginning of a lot of things that confused my mouth as well as me. LOL..Pronounced Cancer Free and that was the beginning of a few problems. I could fel the Cancer for some reason in my tongue still. That is when Dr Pollock from Wheeling Hospital in Wheeling , WVa called and sent letters to my home explaining that the margins were way to close and the OC wold be back. Nedless to say he was 100% right. All of this followed with teeth being removed, radiation and Erbitux . Then Feb. 29th, lucky I only get that Anniv. once every 4 yrs LOL, I had the radiation tongue seed implants and 2 complete lost weeks. It seems no one can tell me what occured during this time, not even on my BDay the 21st of Feb. Anyway, I knew I was gonna come out on top of this stuff and outside of a few uncomfortable ball games and races in my mouth, I am still winning the fight. Have a great day all. I need my morning coffee. Gotta go.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #77965 08-03-2008 04:09 AM
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EzJim Offline OP
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I should have added that this was the day I lost part of my tongue and had a left neck dissection. Geez, this old dummy gorgot the most important part of the day. LOL Sorry bout that.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #77966 08-03-2008 04:11 AM
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LOL.. THATS FORGOT TOO NOT GORGOT...


Barb
BarbT #77968 08-03-2008 04:13 AM
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EzJim Offline OP
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LOL Barb,, you know how I proof read. I DON"T but should. Thank you mam.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #77980 08-03-2008 08:37 AM
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Congrats Jim


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #78003 08-03-2008 04:16 PM
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Congratulations Jim and is the coffee tasting OK now ????
Cheers
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #78004 08-03-2008 04:28 PM
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EzJim Offline OP
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I have 6 cups every morning gabe and just gotta have it. Thanks for asking.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #78005 08-03-2008 04:36 PM
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Jim:

What a long road you have had. Glad you are finally doing good. Have a cup of coffee for me smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #78006 08-03-2008 04:37 PM
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Jim,

You continue to inspire me! I can't wait to have coffee again.

Congrats.

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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Congratulations Jim,

It seems like just yesterday. Your continued strength and great sense of humor is an inspiration to us all. Your "speeelinng" leaves something to be desired, however.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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