| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | You're a fighter and will do good without the tube. Good luck and keep us informed.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Karen, Congratulations on being rid of the PEG!
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Jun 2008 Posts: 28 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jun 2008 Posts: 28 | Happy 4th of July!!!
Thanks everyone on congrats and good luck wishes.
Katrina - Thank you for letting me know for certain that getting another tube is possible (just in case). I'm sorry circumstances caused you to need another one though.
Karen-age 47 5/07stage 1 tongue right side partial glossectomy 3nodes removed on right. 6/07 didn't get it all-2nd partial glossectomy. 11/07 stage 3(?) partial glossectomy,flap.all nodes removed on right side. 1/08 peg tube. IMRT 39tx,chemo-cisplatin. 5/08 left side 1 lymph node w/cancer - removed
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I had a PEG installed in Nov05 prior to radiation and removed about Apr06. During my recent experiences, I had a PEG installed two weeks ago, so it certainly can be done and I was glad to have it done. Naso-gastric tube is much smaller in diameter and harder to keep clean.
BTW, first PEG was by gastro-doc with endo-scope and anesthesia; second PEG was done by pre-radiation team using X-ray and local anesthesia only. First PEG had larger diameter, so gravity feed was OK, but current PEG requires pushing with the plunger.
It is also apparently easy to remove a PEG and immediately replace it using the previous holes.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Aug 2007 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 42 | Congrats on getting the tube taken out. Don't let doctors make you do things that you don't want to do. Mom had a tube for a year then was rid of it for 3 and now she has it again with no problems. You and she must be alike about the anesthesia. She hates anything to do with it. Always has some kind of awful reaction.
As far as the port is concerned, Mom hates her. It has caused her a lot of problems. Has constant shoulder pain from it. She told the doc that she is having it out after her chemo is done and if she has to have chemo again she will just do it through an IV. But that�s her, others who get treated with her are incredibly thankful for their ports.
Good luck!
Amy
Lost my mother, Minnie, to Oral Cancer October 29th, 2008. I am so thankful she had the OCF to help her through her five year struggle.
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I was talking to my nurse practitioner today during followup treatment and mentioned that my current PEG has two small diameter tubes instead of the single large tube that my previous one had. She said that if I wanted, we could replace the current PEG with a larger one (current PEG requires forcing food with syringe instead of just gravity feed). As I mentioned above, the current PEG was installed with just a local anesthetic and some X-ray instead of using the endoscope and was a much easier procedure for me.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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