#76290 06-29-2008 10:14 PM | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | I have been gone for awhile. So much going on in my personal life, I have not had time to check in. I hope everyone is doing well, and still fighting! 
An update on us... Dad is doing pretty good. Waiting on results of latest scan. Still not back at work, still has PEG, still having trouble swallowing, still having phlegm issues, and still really thin. Only just now starting to nibble on some food. Not sure if it was lack of ability or stubbornness... haha. (For those of you who remember Dad's personality!  ) He is enjoying the smells of food again and is making all kinds of food for Mom! HAHA. She is complaining that she is gaining the weight he is losing! 
Anyway, just wanted to check in.
*A special hello and thank you to Jim, Dell, Deb, David (and countless others) for helping me get through this....
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Of course you're remembered. Tell your dad that the recovery is soooo slow that it's worst than the treatment sometimes. At least with the treatment you can mark it on your calendar and start your countdown. I really didn't notice much in the way of improvements until my 4th month post Tx and my last recognized improvements came when I was 16 months post Tx so tell him to hang in there as it will get better.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2008 Posts: 73 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2008 Posts: 73 | ^^^ good to hear that hes getting back to nornal, again patience is the key,
My dad will be starting feeds thru mouth this week he has peg and has trach tube also.
am not sure but is your dad Cancer free as of now ?i mean post treatment ?
- Avinash
My Father,
Age 59, T2N1M0, Stage 3, smoker left 5 years back, casual drinker , NACT with TAXOL +5FU+Cisplatin x 2, and 70 Gy in 35# from 03/10/08 to 04/26/08, no surgery, After Chemo cycles tumor reduced 60%,
Cancer Free now !
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Hi David! Thanks for the response. I will be sure to tell him you said that. He always enjoys hearing it straight from the horses mouth! I think it certainly helps to know he is not alone in his journey, and that what he is experiencing both physically and mentally is "typical." Let's see, I think it was February when he completed all of his treatments, so that makes the timeline you mentioned about right. How is everything going with you?
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Thank you chilled_fire. It is a tough one watching you Dad suffer, isn't it? This board has been so very helpful to me, as I am sure it has been to you as well. As of now, yes, he is Cancer free. They believe the treatments have gotten the tumor taken care of. His previous scan showed a "shadow" of some sort, so this last one is to try and determine if it is suspected scar tissue, or something else. We are still waiting on the results. Obviously, we are hoping for good news. I will try and keep the board updated. Have a great day, and I will keep you and your Dad in my thoughts.
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Dec 2007 Posts: 57 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Dec 2007 Posts: 57 | I am glad to hear that you and your dad are doing well. Keeping you and him in my prayers.
Brother diagnosed SCC August 2005, radiation and chemo- 2 rounds, total glossectomy Sept. 2007, passed away May 21, 2008
"Everyday is beautiful" he stated on a cold and foggy Chicago winter day.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 |
Larry's Daughter:
Its been a while since you posted, you are not forgotten. Im glad to hear your dad is coming along and is cancer free. Im hoping the 'shadow' turns out to be nothing. It takes a while after treatment ends to begin to eat.
A couple things your dad might enjoy with just starting to eat. Maybe try yogurt, pudding or chocolate milk is soothing to the throat and mouth.
Keep us posted on your dad's recovery.
Christine
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I sure remember your dad and what all of you were going thru . You were going thru a lot of it long distance and going to them when you could. You are a great daughter for him to have. I remember him as bullheaded for awhile . LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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