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#76162 06-25-2008 12:18 PM
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EzJim Offline OP
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My tongue felt a little different this morning so I did the usual and went into the bathroom to have a look. It is either a very dark grey or black and right in the center of it is a lump. The lump isn't hard mbut you sure can see it. Looks like a volcano. LOL I called the Drs office and will go in Friday at 9AM. He isn't available tomorrow as he won't be in Town. Anyone else ever have this??? I know it's a 1st for me.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #76165 06-25-2008 01:01 PM
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Gosh, Jim, You sure do have the weirdest things! I have no idea what that could be. As always, none of us will really know, but some thoughts occur to me...Is your tongue sore? swollen? It sounds like maybe a blood vessel burst inside your tongue somehow. Have you ever burst a vessel in a finger and had it turn dark and swell? I don't know about the bump, unless that could be the site of the ruptured vessel.....

I'm just clutching at possibilities here. I imagine that you were stunned to find this first thing in the morning!! Please keep us posted! I wish you could see someone sooner, but if things are stable right now, I guess it's ok to wait. If your tongue swells or gets really sore or darker, I sure would find another doctor to go to....maybe your doctor's partner.

XOXO--Colleen


Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
August #76166 06-25-2008 01:35 PM
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Jim:

Do a search on it. I know I have read something about it on here before.

Christine


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 1,244
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Jim
are you on antibiotics?
If so it will go soon. But I agree it looks pretty YUK..
Sunshine.. love and hugs
Helen


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
helen.c #76169 06-25-2008 03:41 PM
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EzJim Offline OP
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Christine, I did go to the site you posted. There is an article about black hairy tongue. LOL I hope I don't have to shave it. J/K I did try to brush my tongue with noresults earlier today. I see where the stats for 5 yrs are still at 50%. I'm glad we are all in the surivor 50% and will beat this stuff. Thanks for the posts all. Jim


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #76170 06-25-2008 03:41 PM
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EzJim Offline OP
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Not on antibiotics at the time Helen. Meant to post that with the other one.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #76181 06-25-2008 06:27 PM
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Jimk, yeah that sounds like balck hairy tongue and yeah, I've had it (of course. I get all the fun stuff) . It was when I was a few months out from radiation, as you are, and I can't recall if it was treated with antibiotics or what but it did eventualy go away. It's gross looking isn't it?

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
Nelie #76182 06-25-2008 06:31 PM
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EzJim Offline OP
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Yep Nelie, it is very nasty looking. LOL The thing on my tongue is getting bigger too. I just checked it. Maybe my mouth is too big and the Lord is filling up the space. LOL J/K


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #76222 06-27-2008 09:41 AM
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EzJim Offline OP
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Saw Dr this morning and he thinks the black tongue is a fungus . He gave ma a script and made an appointment for me to get a CTscan of my neck and shoulder area to see why I hurt so bad in this area. I get the Ct Tuseday afternoon.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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