#75971 06-20-2008 02:25 PM | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Hi All,
A few days after my last post about my dad doing so well things went south.
We saw the H&N surgeon on Tuesday who has informed us that Dad's cancer is back. The surgeon has told us that it is now time for pain management. It doesn't look like surgery or radiation and chemo will be options.
He has a PET scan scheduled for next month so we can find out just how far the cancer has spread.
Needless to say we are heartbroken over the news. This is the 3rd time in 15 months that we have heard the words....it's cancer.
I wanted so bad to post that he was doing better and when he had two good weeks, I waited an additional week because I didn't want to speak too soon, but it looks like I did anyway. I think we always knew it would come back but we had so hoped that he could have a few good months to feel somewhat normal again.
I'm just really at a loss for any further words right now.
Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Aw Joy,
There aren't words to capture the sorrow you are feeling now. I'm sorry your Dad is having to struggle once again. My thoughts are with you and your Dad.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Sorry to hear this news, Joy. It certainly is what we all want to read posted, that these folks who have grown dear to us, are "doing so much better". I am sorry you have to face this once again, but our thoughts and prayers are with you and your Dad. Please keep posting. Warmly, JaneP
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Joy, I'm so sorry you got this bad news. You and your Dad are in my thoughts and I hope you will keep posting as you need to.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Dec 2007 Posts: 57 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Dec 2007 Posts: 57 | Hope. That's what we all share. It hurts when you hear those words. It hurts so much that you can not repeat them. I know how you feel. Your loss for words is o.k. Your heart is speaking to you not your head. Keep your head up and do whatever you possibly can to let your father know that you will support him. It is time to focus on him. He knows you and your loved ones feel the pain. My brother never wanted us to feel the pain. He said to keep our head up. He didn't want us to be sad around him. Believe me is wasn't easy but you do the best you can. I will pray for your father and your family so that you have the strength. Hope is good. You never know. It's what comforted us at the time. Take Care of yourself.
Noemi
Brother diagnosed SCC August 2005, radiation and chemo- 2 rounds, total glossectomy Sept. 2007, passed away May 21, 2008
"Everyday is beautiful" he stated on a cold and foggy Chicago winter day.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | This cancer is just so unpredictable. I wish I had the power to make it go away.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | One day hopefully, someone will come up with a cure. I jhave no idea what to say but do know how you and your dad must feel. Why are they waiting until next month to do the Scan? Push them into doing it now. Have you & your dad in my prayers.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Thanks everyone.
I'll post more after our appointments. The next month is full of them.
Hugs,
Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Joy:
Sorry to hear the bad news. Its hard enough going thru it once, and twice is much worse. For a third time, that is truly terrible. Please keep us updated, you know all your friends are here for support. I will keep you and your father in my prayers.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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