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#75978 06-20-2008 04:29 PM
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EzJim Offline OP
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I can sit and read posts for a couple of hours. My problem is I am too sensitive and get teary eyed with some post. Anyone else experience this?? I"m not ashamed to show my emotions but I have no fears either.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #75980 06-20-2008 04:54 PM
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That just shows that you are a very kind, caring and strong person. Your family must be very proud of you. Angel


SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
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I thought I was the only softie. It's life and it's sometimes painful. It is the hearts and souls of people reaching out for some sort of comfort. Not everyone around us knows what it is to go through this pain. This place lets you realize that you are not alone. It is a place where I feel better even though I cry when I read. You are caring and you are understanding of the pain.

Noemi


Brother diagnosed SCC August 2005, radiation and chemo- 2 rounds, total glossectomy Sept. 2007, passed away May 21, 2008
"Everyday is beautiful" he stated on a cold and foggy Chicago winter day.
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Jim, There are many times I get teary-eyed reading something here. This disease is just heartbreaking sometimes.


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
Nelie #75994 06-20-2008 07:28 PM
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Jim,

You can bet that you're not the only "guy" here that gets teary eyed. Sometimes I get so down, that I have to stay away for a couple of days. Every day there are new people.

5505 members and I'm 2154. That's some increase in just over 3 years.

And don't worry about your signature...we all know what you've been through and we admire and love you and pray that you stay cancer free from now on. Keep that "good humor" flowing.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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Hi Jim

joined the redeyed brigade then lol.
sometimes i read the board behind my newspaper so mum cant see me blubbing.I have been here for 16 months and my number is in the 3,000's .The newbies just keep on coming.

liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
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Sometimes it's so overwhelming that I just have to take a break from it from time to time. I get my head wrapped around other things so I can keep my sanity. It's creepy that over 5,000 people have joined the forum since I did. Everytime that someone dies here or has a recurrence, impacts me deeply. I have professional counseling training and you still never get used to it. One of the hardest things was the first OCF meeting in Las Vegas. It was great putting faces to the names but the dark side was many of those are no longer with us. It made it very difficult and very personal. I met their wives and kids - it was heart wrenching. Danny boy said it well when he called it "a bastard of a disease"...


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Gary #76001 06-21-2008 05:54 AM
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My husband has found me crying at the computer several times. He thinks I'm torturing myself but I think it's more like validating my feelings and fears. Sometimes when I try to talk to people about what I'm going thru-they say "be positive". At least on this board people aren't afraid to tell me the truth of what they are going thru also. The losses are devastating though. I had just started getting advice from Brenda when she passed. That really brought home the severity of this devil. The doctors had been telling me that everything was going to be fine. One even asked why I looked so sad after my husband's surgery went on for 12 hours. This place and the people here made me feel ok about being sad. We will all lose someone we know-this is not the bed of roses some paint it to be. That said I'm in tears again.

Sue

Last edited by suemarie; 06-21-2008 05:55 AM.

cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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Every time I read about someone's recurrence, or some of the terrible side effects they are having, it affects me deeply. I mourn deeply the people that have been lost. Sometimes I too have to stay away for a little while... but as others have said, I also feel like this is the only place where people really DO understand the fears, the tears, and sometimes if we are lucky, the wonderful feeling of relief that a negative test or passing a milestone give us....while at the same time feeling sad for others not so lucky.


Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
Me2 #76004 06-21-2008 06:26 AM
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There have been many times that a post has swelled me up but the worst time I've had so far is dealing with someone face to face that passed away from this crap. I can't imagine what some of you have gone through watching your loved one succumb to this disease.

For some reason I also think that I'm more sensitive now than I've ever been. I can get swelled up watching movies now and that never happened before. I wonder what has been changed mentally in me or perhaps a lot of us that was caused by ourselves being so close to death?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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EzJim Offline OP
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I have always been sensitive, even to a really good movie that is moving. Happy endings or sad ones. They both can get to me. I'm glad to see so many people in here with feelings such as mine.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #76011 06-21-2008 07:38 AM
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Jim

I was never one to cry. Maybe once a year at most. That was before I got sick, then lookout, I became Ms Emotional. I would cry at anything and everything usually a few times per day. There are alot of posts on here that have made me cry. I think its only natural to cry when you read these stories because we all know first hand how bad OC really is.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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EzJim Offline OP
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I agree with you on that. I have always been overly sensitive about happy or sad occasions. I'm like my dad was I guess. He would fight anyone , big or small but was as tender as mashed potatoes and give anything away if someone was in need. I am that way too. LOL But I think it's good way to be. My Mom was just everybodys sweetheart that knew her, so I got double barrells thru them.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #76056 06-22-2008 11:06 PM
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Jim,
Sometimes it is so difficult to read the posts here because of the see saw of emotions. I feel that the more we can help one another through the good and the bad, the stronger our fight against this ordeal. There are times when I realize that someone has not posted and I start worrying.
My grandson is just turning 10 and is full of questions about cancer. He recently lost a 92 yr old greatgrandmother to pancreatic cancer, my sister has been fighting breast cancer for several years, my husband had colon cancer and now I am up to number 3. He asked me why I "talk to the cancer people." I told him that we help each other with information and encouragement and prayers. It is so difficult seeing him trying to understand the realities of life. Today he told my husband he expects him to still be alive when he gets married.
We certainly understand more than a l0 year old, but we still want miracles and are entitled to cry and be angry when things happen that we don't fully understand. We also need to be able to cheer when someone has good news and to be silly at times.
Thanks for bringing this up.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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Malka #76091 06-23-2008 06:32 PM
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EzJim Offline OP
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I bet that young man at 10 is smarter than a lot of were at 16 a few years ago. My how things have changed over the years. I have los a few to cancer in the family. My Mother was the closest relative and my best buddy New Years morning of 2007. The world can be a sad place if we let it. We will make it better for those that follow us thru life I hope.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #76175 06-25-2008 04:19 PM
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Jim,
You only have to read a few of my posts to see that tears have been in my eyes more than once. I am also a little overly sensitive and emotional at times, I blame my mother as well.
I have shed many a sad tear in the last ten years but almost as many happy ones. My brithday this past February was a great day for many happy tears and I posted to let you all know.
It's all good Jim. We have put a lot of anxiety and stress in and everyday there is someone new joining and looking for the same things we were. That gets hard on those who choose to hang around and listen, post and help others, or post about their own experiences. I believe emotions are healthy and tears equally so..letting others know about our collective bad and good tears I'm sure in some way will help someone.
We gotta let it out.
Cheers,
Mike


Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
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EzJim Offline OP
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I wish I would have read you post in Feb Dr Mike. That is my Birthday month also, but I was getting ready for the implants. It makes me feel good to know that there are a lot of overly sensitive people. I don't remember a thing about my BDay on the 21st of Feb. What is bad is the fact I didn't have the implants until the 29th, but was getting other tests .


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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