 
#7565 05-19-2006 04:47 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello All, I haven't posted my situation for quite some time. A good time to let my friends know how i'm doing. First of all the Erbitux didn't work so well on me. I took it for 8 weeks and got bad headachs every day. On a one to ten I would classify them as a seven. I also have pain in my teeth that are slowly rotting away. Continue to have only 20% hearing in my right ear. It's a hassel , one talking to understand me is diffucult. What a pain in the butt being asked to repeat everything. I am in Hospice now. They come in as much as I need them and supply all my pain meds and support. Who knows how long this process takes, Only one person knows that. I am not giving up yet and hope to be around for awhile. If there's anyone out there in a similier sitition I would be happy to talk or email you. All my Best, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
| | | 
#7566 05-19-2006 05:15 PM | Joined: Mar 2006 Posts: 99 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Mar 2006 Posts: 99 | Danny,
I see your posts and often think of you and have wondered how your treatments were working... I'm so sorry to hear this news. You are right that only one person knows for sure so keep the FAITH. I will be praying for you and thinking of you...Kerry
Kerry/wife of stephenm
StageIV - Base of Tongue T4N0M0
XRT x42 / Taxol and Carboplatin x4
Tx. Finished 5/08/06
| | |
#7567 05-19-2006 11:11 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | Hi Danny Boy,
Of course we know you won't give up and you can't give up because so many patients here have been encouraged and supported by you. Your presence and participation are so important on this forum. Keep fighting!
Karen
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
| | |
#7568 05-20-2006 01:06 AM | Joined: Oct 2005 Posts: 122 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Oct 2005 Posts: 122 | Thank you Danny Boy, for the update. You are so so special to all of us.
Much love,
Lisa
SCC Tongue T1N0M0\Dx 3-10-03
Hemiglossectomy, alloderm graft, modified neck dissectomy 4-14-03
3 Year Survivor!
| | |
#7569 05-20-2006 03:01 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | I Love you Danny Boy, you are in my thoughts and prayers......Carol xoxoxoxoxox
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
#7570 05-20-2006 05:02 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Danny,
I'm sorry your teeth are hurting you, I can sympathize with that. Your courage is a lesson for all of us.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | |
#7571 05-20-2006 05:50 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | DANNY, We all love you here... no individual on this planet knows the hour of hour death. Peace to you and may God grant you manageable pain levels before he is ready to call you home. This world is not our home we are merely passing through on our way home....
My metastic disease is responding to Chemotherapy.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
| | |
#7572 05-20-2006 08:12 AM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi Danny Boy, When people ask me how I am, I say "I'm not going anywhere yet, I'm going to stay here to annoy you all"...if you were closer I'd send you some of my home-made pate  (loads of garlic, mushrooms, bacon and cognac, plus other herbs et al). Love, Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | |
#7573 05-20-2006 08:41 AM | Joined: Apr 2006 Posts: 5 Member | | Member
Joined: Apr 2006 Posts: 5 | I identify, with tears streaming down my face. How many more doctors? how many more needles ?How many more tests? how many more surgerys? Is 21 enough? My dream is to be able to have a big drink of water.With no choking no pain. i hope this doesnt ruin your forum. I hope heaven is as good as Hawaii. | | |
#7574 05-21-2006 01:23 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Not a day goes by that I don't think about you, Dan. It's coming up on three years since I've known you and I'm truly inspired by you.
You know I love ya,
Dave
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
| | |
| Forums23 Topics18,168 Posts196,924 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
