#75541 06-12-2008 09:09 AM | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I found a newer product that may be helpful to those of us who have gone thru radiation. Its called Eucerin Everyday Protection body lotion with SPF 15 sunscreen. It costs around $8 and is found easily in Walmart or Kmart. I use it everyday, it works great. I dont need to worry about being outside in my garden, I know Im protected from the sun.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 622 | My all time favorite is still the Neutrogena Products I've used the SPF 55 & 70, and I now see that there is an 85. http://www.neutrogena.com/ProductsDetails_329.asp?lProductLineID=15That in conjunction with Sun Protection clothing (recommended by my RO) and I'm all set. http://www.solumbra.com/Hope this help as well. Kevin 18 YEAR SURVIVOR SCC Tongue (T3N0M0) diag 06/2006. No evidence of disease 2010 Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.� Stephen Hawking | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I was never warned about my skin post TX re the sun and I didn't burn on the outside very much during Tx and I never was one to burn in the sun and that hasn't changed now. Whenever I'm out I just use the stuff I've always used which I believe is a 6 or 8. I bike at the first crack of daylight and am usually home by 10 or 11 am at the latest and I've never burned post Tx. Just another view.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 622 | You're lucky David.
I still have my "tan lines" from the radiation treatments, and I was not one that burned easily before. My mom who had "blast the whole area" x-ray treatments back in '41 and then again in '56 had problems her whole life. I guess I am now carrying that legacy.
Kevin 18 YEAR SURVIVOR SCC Tongue (T3N0M0) diag 06/2006. No evidence of disease 2010 Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.� Stephen Hawking | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | The issue with sun exposure after radiation is really not whether or not you burn, the issue is that the sun is also additional radiation on an area that had already been radiated. Additional radiation exposure to a pre-radiated area simply increases your likelihood of an additional cancer-in this case a melanoma and it does that whether or not you have any sign of burning.
The safest way to protect yourself is to use a high SPF sunscreeen and /or protective clothing. Although some skin exposure to sun is good because it stimulates Vit. D production and Vit. D deficiencies have also been shown to be strongly related to cancer (though all the research I've read on that related it to other kinds of cancer, not oral). But you can put high spf suncreen on your face and neck, where you were radiated, and let your arms get more sun--which is what I usually do in the summer (though I also wear a lower spf on my arms and legs if I'm going to be out for a while).
Why put yourself at higher risk than you have to be for an additional (and deadly if not caught early) cancer?
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | Joined: Sep 2007 Posts: 79 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Sep 2007 Posts: 79 | My dermatologist feels that everyone should regularly wear sunscreen with an SPF a very high sunscreen. 15 would be ok with her only if there was nothing else available! She strongly recommended the Neutrogena product that protects against UVA and UVB rays.
In earlier years, I tanned regularly and very rarely got even close to a burn.
As you can see from my signature, I have not had cancer. But, I'm with Nelie ... why put yourself at higher risk for something that is simple to avoid?
* Root for Joe * Sister of Joe (43, non-smoker/chewer; occ. drinker). Mouth problem 3/07. Diag with Stage I 6/07. Diag with Stage IV 9/07. In EPOC at Univ of Chicago. Cisplatin/cetuximab 1/wk x 8. Then, IMRT 5x/wk x 7 and weekly chemo. Done 12/21/07. Looks good as of 4/08, 7/08, 8/08, 1/09.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | No one ever explained that to me from the Moffitt team and while I usually like to disagree with Nelie what she posted makes perfect sense so I have nothing to loose by upping my protection level and that makes her logic a no brainer. Thanks for the advice.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2007 Posts: 580 | This a great thread. We all can benefit from the suggestions here. As usual I'll add my two cents. Sunscreen is essential for anyone who spends any amount of time outdoors. Many people forget or ignore the warnings given by Dr's and the American Cancer Society. Wide brimmed hats, sunglasses and sunscreen should be a part of everyone's routine when going outdoors. Fair skinned individuals should consider better protection by using sunblock with titanium dioxide or even zincofax. These products stop the UVA/UVB rays from ever reaching the skin. Which gives far more protection than sunscreen. Cheers, Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend. Live, Laugh, Love & Learn.
| | | | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 622 | Before I forget, again, another great site for sun protection wear. http://www.tilley.com/certified_sun.aspI've got one of their TH5 Hemp Hats. Best I've ever owned. http://www.kevin.fastbytes.netThat's me (and the hat), 3 months post treatment 18 YEAR SURVIVOR SCC Tongue (T3N0M0) diag 06/2006. No evidence of disease 2010 Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.� Stephen Hawking | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2007 Posts: 580 | I have one too Kevin. Had it for ten years. The darn things don't wear out. Great for protecting yer head from the sun though. Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend. Live, Laugh, Love & Learn.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 |
I posted info about Eucerin Everyday Body Lotion because it includes the SPF 15. I thought it was a great idea to combine sunscreen with body lotion. For me, its enough since I limit my time outside to usually no more than about 20 minutes at a time. Its protection that covers me for the 45 minute drive to my doctor appointments.
I do want to try one of Kevin's hats that he suggested. I was also impressed by the solumbra company's clothing lines.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 595 | When I finished Radiation on 11 Nov 07 the ist topic from my RO was sun screen. I work outside all year and she gave me a sample of SPF 40 and recommended it for summer and winter. At all my check-ups she always asks my wife if I am using it. I keep a bottle in my lunh box and use it twice a day. I never used it before treatment but use it everyday now. I agree with Nellie on this one! Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Here's my 3 cents. (had to one up Mike).
Radiation or not, everyone should use sun screen. Even though I use sunscreen religiously, just this week I had a full body check by my dermatologist to see if there were any suspicious spots. I do this once a year.
I've had a Tilley hat for 11 years (again one up on Mike)and never travel without it. Not surprised that you would have one Mike, since they're made in Canada.
Nice hat Kevin..I have a beige one.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2007 Posts: 580 | 3 cents...man I hate it when them TV celebrity types flash their money around! Sorry Jerry, I just couldn't resist.
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend. Live, Laugh, Love & Learn.
| | | | Joined: Sep 2007 Posts: 61 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Sep 2007 Posts: 61 | Same here. Docs in Boston told Mary to cover her RND incision with zinc oxide during any sun exposure for one full year, and to use SPF 45 on any radiated areas. Otherwise they warned she could have "radiation recall" and her skin would become very red and swollen in reaction to the sun. That doesn't sound pretty, does it??
Liz
CG to friend Mary. SCC Stage IV-A of rt. tonsil, mets. to lymph node on rt. DX 06/07,tonsillectomy 08/07, Chemo Cisplatin, Taxotere and 5FU X3 cycles; RAD completed 1/20/08 RND scheduled for 3/08. 54yr.old, NS, social drinker.
| | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | Canada.... what sun??
I was in Calgary and by the time I waked home the ground beef was frozen. (fact). So, snowshoes yes!
Seriously. UV exposure damages DNA which is a bad thing, that damage is generally repaired. This is on top of the damage you do with the xrays treatment, so the repair becomes more difficult. The external skin is not what you really want to treat with x rays.....
So cover up ESPECIALLY during treatment but also afterwards....
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Jul 2006 Posts: 446 | Ahh....Tilleys. A Great CANADIAN institution! I've had one for over 20 years, and wear it daily. They are the best hats available, period. Interesting Tilley "trivia" -they have been issued to the Canadian Armed Forces for nearly 20 years -they have been a highly sought after trading item in Afganistan. Many U.S. troops sporting Tilleys acquired them in trade with their Canadian counterparts. -The company even guarantees them for a time against losing them...
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
| | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | Just got back from Alaska cruise, and can vouch for Tilley's. I have a terrible time finding hats that will give me the protection I need and fit me (I wear a size 8). We were in Skagway, and one of the stores on the main drag had a big Tilley's display.
Really helpful sales clerk helped me, and I was all set to go in no time. It fits great, has already handled sun, wind and rain, and is a dream to wear. Full marks to Tilleys! Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
| | | | Joined: Sep 2007 Posts: 79 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Sep 2007 Posts: 79 | Tilley hats are guaranteed FOREVER against wearing out, shrinking or mildew. They are amazing.
* Root for Joe * Sister of Joe (43, non-smoker/chewer; occ. drinker). Mouth problem 3/07. Diag with Stage I 6/07. Diag with Stage IV 9/07. In EPOC at Univ of Chicago. Cisplatin/cetuximab 1/wk x 8. Then, IMRT 5x/wk x 7 and weekly chemo. Done 12/21/07. Looks good as of 4/08, 7/08, 8/08, 1/09.
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