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Nelie Offline OP
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I didn't see this on the RSS feed, though maybe it just hasn't made it yet, but there was a good article in the NY Times about the pressure on cancer patients to "be postitive" all the time.

There have been some comments made in this forum recently about someone's attitude towards their cancer battle being unecessarily negative. As a researcher and follower of research on positive pscyhology, I am the first one to believe that an optimistic attitude can (sometimes) make a difference in outcomes. But I also think it's important to allow people on the cancer "journey" (a trip no one wants to take) to go through their dark nights of the soul, especially when facing heavy things like disability and recurrences. It's just possible that those dark times and "negative" emotions are as rich a part of our human experience as the postitive.

It would be great if everyone, before posting advice about attitude to other people here, could look at this article.

http://www.nytimes.com/2008/06/01/health/01stoical.html?pagewanted=1

Last edited by Nelie; 06-02-2008 02:51 PM.

SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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I think this is a good thing for people to read. It wasn't picked up on the OCF RSS feed because it is not specific to oral cancer.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Nelie:

Thanks for posting the article. I found it to be very interesting.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Nelie,

Thanks for sharing that article. It was a worthwhile read.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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Nellie, I enjoyed the read. Serveral good things to think about. It is so easy for me to feel somewhat negative at times as I struggle to find my way through getting treatment so I really needed to read this one. Thanks, Angel


SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
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Nelie Offline OP
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I saw that it got added to the RSS feed yesterday. Thanks Brian! (by the way I wasn't trying to criticize when I said I didn't see it, just wanted to make clear I had looked before posting).

I don't know if this one got caught either. It talks about a study (observational study only) rlating heavy cell phone use to three cancers--one of which is cancer of the parotid.

http://www.nytimes.com/2008/06/03/health/03well.html?ref=health


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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We are always happy to have people find article which are of importance that we have missed. While I screen for articles along with Sheldon, neither of us is doing this full time, and even with our broad search parameters we miss things. We try to update the news database at least 4 times a week, more if the number of found articles is great. Most of the journals that get searched are from the world of medicine, and those which fall outside the parameters of specifically being about oral cancers like the first one that you put up offer valuable insights, but certainly might get missed because of their being outside the realm of oral cancers specifically. But never hesitate to bring something up that any of you find that might be important to others. It just has to come from a credible source, and be more than very preliminary ideas, (of which there are many in the world of research that never pan out.)


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Nelie Offline OP
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Well I'm pretty avid reader of the NY Times--except during the really heavy-workload times of the academic year (I am now on summer break though I do have a few work related projects so I have more time). So I'll keep mentioning if I see something.


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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You do nice work in here for us Nelie. Thank You and keep up with the summer break if you get one. LOL Have a good day.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Nelie Offline OP
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Thanks Jim. Unfortunately, much of my summer break may involve more surgery for the trismus and recovery from it. That is, if I get to the point when I'm sure this surgery is the right thing to do. It's too bad because right now I am thinking I'd also enjoy just havng a couple of months to work in the garden....


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"

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