#75087 05-31-2008 11:29 AM | Joined: May 2008 Posts: 2 Member | OP  Member
Joined: May 2008 Posts: 2 | hi all this list is great i was so down before i came here this is wonderful. I was diagnosed scc stage IV in dec. 07 had glossectomy and left neck dissection in jan 14 08. started radiation in feb 08 finished apr 16 08 33 imri. got very sick with swelling and hardness in left neck was hospitalized and dr discovered cancer in the lungs. on may 29 got port put in starting chemo on monday or tuesday. I have so many questions don't know where to start. good luck and god bless to al
scc stageIV dec 07, glossectomy, radical neck dissection 1/08 ,IMRI 33 treatments ,5/08 mestasis in lungs, port just put in start chemo 6/08
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF. Im sorry you have had to go thru so much. There are so many wonderful caring people on here who will be able to help answer any questions you have.
I have a port too. Mine was put in July 29, 2007. It has made chemo and having bloodwork done so much easier. Its also very handy for if you get dehydrated and need IV fluids, it goes thru the port.
Please make it easier for people to help you by adding a brief description of what you have explained in your post to your signature. That can be done by clicking on My stuff and updating your profile. I wish you the best of luck with your continued battle.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Hi Joette,
Welcome to our group. Not a club you wanted to join I'm sure but there's a lot of people here who will have experiences to share that will make it an easier or at least more informed journey for you. And then there's the rest of us who will listen and root you on.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Joette- What kind of chemo will you be having? My husband has metastasis to his chest and he is on Taxotere to try and slow it down.
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Joette, you sure came to the right place. There are caring people here that are knowledgeable about cancer. Ask anything you want and I'm sure you will receive quite a few answers. I hate to say it , but welcome to the club.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | I am curious if during your original work up in 07 they did a full body scan, either PET or CT. We all wish you the best journey through this.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Joette,
Hang in there and ask away.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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