#74746 05-22-2008 11:37 AM | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Hi there Brian- - How do u Download a blog? Is there a way to download all the pages of a blog from this site?
Mine was "33year old woman tongue cancer". I'm about to turn 35 next month and I still want to post now and again but I'd like to have what I wrote during the past year and a half somehow. If I write again it will just be here and there but I still want people to b able to access my sotry if they are interested or want to know info.
thx
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | Kate --
It may take some time, but it looks like you can e-mail each blog post to yourself (see Email Post command at the bottom of each posting).
Or (this is easier): Open the topic so that your first posting is at the top, then go to the Topic Options tab and choose "Print Topic." That opens a new printable page. From there you can (a) print it or (b) go to Edit/Select All (in the commmands at the top), then copy and paste the highlighted text into an e-mail or into a Word document.
-- Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Kate,
I sure hope you stick around and more than sporatically. Your posts are inspirational as is your attitude. I enjoy reading your work. We all have such different stories and there's value in them all.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: May 2007 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2007 Posts: 104 | Oh my Dearest Kate. I am so happy for you! I find such heartfelt joy in your success, health, and ongoing inspiration to all. You make me grin...and somehow I feel so bonded to you thru Christa(Jordan posting name here.) I have just sent the donation of $1000 on to this site. I had wanted to post, and include a nice letter and it was taking me awhile to 'get it together'. I will post on several sites here to let people know how helpful the site was in more than one way. It brought 2 young women together to forever be tied together with their battle of this evil disease. You both helped each other thru your treatments. Thanks to our Pete who also lost his battle, but he pursued you for Christa's sake. And what a blessing that was...... God bless always. We will never lose our connection.
Jordan's Mom. Linda
She fought the fight with courage, hope and dedication. Ten months of battling tongue cancer. They thought they had it after each treatment. Not to be. Christa died at 32 y/o in Nov. '07.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Kate, you just can't walk out of our lives. I have enjoyed your posts way to much to just let you walk away into the sunset. I woukld have to come haunt you. LOL Think about it for the ones of us , and I think that is 99.9%, of us that enjoy your wisdom. I'm not one to beg, but am almost ready to try it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2007 Posts: 44 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2007 Posts: 44 | Hi Kate,
I respect your decision to take time off from this board. Before you go though, I just wanted to tell you once more what a tremendous help and inspiration you were to me, and through me, to my son.
He's still doing great, eating well, gaining weight, and nearly everyone can understand his speech now EVEN ON THE PHONE!
Thank you again for all you've done for us and for everyone on this board. May God bless you and keep you healthy and happy.
-darcy (Matt's mom) | | | | | Joined: May 2007 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2007 Posts: 104 | Misskate, you will be missed. I wonder...if there is a new, young person here who needs you, hopefully some of us will be able to IM you on here???? You have been such a huge help to many, but especially the other youngsters who have been blasted with this diagnosis and ultimate treatment. Love you.
Jordan's Mom. Linda
She fought the fight with courage, hope and dedication. Ten months of battling tongue cancer. They thought they had it after each treatment. Not to be. Christa died at 32 y/o in Nov. '07.
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Hi Everyone. I will definitely be available to anyone who needs someone to talk to about tongue cancer. Please remember me and have anyone contact me who needs support.
Clear MRI results today! YAY!!!
LOVE, Kate
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 |
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Sep 2007 Posts: 79 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Sep 2007 Posts: 79 |
* Root for Joe *
Sister of Joe (43, non-smoker/chewer; occ. drinker). Mouth problem 3/07. Diag with Stage I 6/07. Diag with Stage IV 9/07. In EPOC at Univ of Chicago. Cisplatin/cetuximab 1/wk x 8. Then, IMRT 5x/wk x 7 and weekly chemo. Done 12/21/07. Looks good as of 4/08, 7/08, 8/08, 1/09.
| | | | | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | What great News Kate! It is always wonderful to hear good news now & then. Happy for you and yes keep posting your progress. It will help others as they approach a time line that is similar to yours. Enjoy your new found life and energy. Take care, Diane 
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Congratulations Kate. You are a true survivor.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Wonderful news on your MRI...I know you are happy to cross that bridge one more time.
Congrats, Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Great news Kate and keep on posting. Your time on here is most valuable so don't deprive the many to please the few. JMHO
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Kate, A clear MRI is always good news. And I also hope you keep posting here - I'm not sure who Dabvid is implying would be "pleased" if you didn't post here, but if it is me, he is very mistaken-as I believe I have made as clear as I can publicly as well as privately.
I'd just like to say that if it is not just David being David but you actually are feeling hurt or miffed by my objection to one line of the many many posts you have written, and that is why you were thinking ofmleaving, please PM me and we can work it out without the peanut gallery aggravating things. I see you and I as having a great deal in common and I would hate to see you leave over what I said.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: May 2007 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2007 Posts: 104 | Yea! Yippee! Have that fun summer, Sweetie!
Jordan's Mom. Linda
She fought the fight with courage, hope and dedication. Ten months of battling tongue cancer. They thought they had it after each treatment. Not to be. Christa died at 32 y/o in Nov. '07.
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Kate,
That's great news. Time to go out and celebrate.
Please reconsider your decision to leave the forum. I know it can be depressing at times, take a vacation if you must, but please come back, people need you. No one wants you to leave.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Concrats on the great MRI results.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Kate:
Congrats on the wonderful news!!!!!
Please dont stay away too long, you are a very valuable member of OCF and will be deeply missed.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Kate,
First, congratulations on the clear scan, it's always such a good feeling for any of us!
Why are you leaving this board? This board is a two way street, we give AND we take from it. We come as new, scared patients and we take from the board what we need to help us through. Then it becomes our turn to help, to be the givers. I'm not saying anyone needs to post everyday and all of us need a holiday at times............but you make it sound as if you will not be back. I question that. With everything I've been through, I will never leave this board nor will I ever stop giving back to it because it GAVE so much to me and continues to do so. Please re-think and stay with us.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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