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ord_dfw Offline OP
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Hello,

There is an article about Grant Achatz in the current issue of Chicago Magazine. The link is: Chicago Magazine: Burned.

Hope everyone is having a good day!

Jean


* Root for Joe *
Sister of Joe (43, non-smoker/chewer; occ. drinker). Mouth problem 3/07. Diag with Stage I 6/07. Diag with Stage IV 9/07. In EPOC at Univ of Chicago. Cisplatin/cetuximab 1/wk x 8. Then, IMRT 5x/wk x 7 and weekly chemo. Done 12/21/07. Looks good as of 4/08, 7/08, 8/08, 1/09.
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That's so wonderful that the Erbitux worked for him. I hope he has many more cancer free years ahead.


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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Good article.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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[quote=davidcpa]Good article.[/quote]

Agreed - very good



9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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"Achatz may have avoided what is perhaps one of the most debilitating surgeries that exist: Survivors of total glossectomies�removal of the whole tongue�can barely talk and must drink their food using gravity."

NOT ALWAYS TRUE


Its a great article I hope that it is a 100 percent success.

This is a little hard for me and probably some other people to read. As a near total glossectomy patient who went through the graft surgery chemo and radiation 1 year ago - I am eating most everything I want and tasting. AND speaking reasonable well- enough to get along in the world. My life isn't misery.




Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
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I'm curious, how can you taste with most of the tongue removed?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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ord_dfw Offline OP
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Kate, I'm sorry if that article upset you or anyone else. I winced when I read it ... I thought of you, your fight, your strength and your happiness. It seemed like an insensitive (and wrong) statement for the author to make.

Perhaps this is a good time for OCF to write a letter to the editor of the magazine ... this magazine is owned by the Chicago Tribune and it might be a good access point to the paper, too.

Brian?


* Root for Joe *
Sister of Joe (43, non-smoker/chewer; occ. drinker). Mouth problem 3/07. Diag with Stage I 6/07. Diag with Stage IV 9/07. In EPOC at Univ of Chicago. Cisplatin/cetuximab 1/wk x 8. Then, IMRT 5x/wk x 7 and weekly chemo. Done 12/21/07. Looks good as of 4/08, 7/08, 8/08, 1/09.
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In addition to letters to the editor there is a "comments" section at the end of the article.

Last edited by Malka; 05-21-2008 08:39 AM.

SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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ord_dfw Offline OP
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Good idea! I'm going to go comment right now .... smile


* Root for Joe *
Sister of Joe (43, non-smoker/chewer; occ. drinker). Mouth problem 3/07. Diag with Stage I 6/07. Diag with Stage IV 9/07. In EPOC at Univ of Chicago. Cisplatin/cetuximab 1/wk x 8. Then, IMRT 5x/wk x 7 and weekly chemo. Done 12/21/07. Looks good as of 4/08, 7/08, 8/08, 1/09.
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[quote=misskate]"Achatz may have avoided what is perhaps one of the most debilitating surgeries that exist: Survivors of total glossectomies�removal of the whole tongue�can barely talk and must drink their food using gravity."

NOT ALWAYS TRUE [/quote]

Some sensationalism by the magazine going one here ?!? The Media is getting real bad about doing things like that to sell.....



9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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