#74482 05-16-2008 11:23 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 52 | Bobby's wife has become quite vocal about oral cancer since the passing of her husband. When we were all talking about NASCAR and this before his death, some of the posters here made contact with the Hamilton organization. I would appreciate talking to anyone that had those contacts. She clearly doesn't know that OCF is out here since she has mentioned the UK based mouth cancer foundation several times, (but not OCF) and I'd like the opportunity to hook up with her if she is going to become a spokesperson for the disease. We can help facilitate her getting the exposure that will help awareness like we have with Colleen Pinter.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Maybe thru NASCAR.com you can make contact Brian. Might be worth a try.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2007 Posts: 580 | Brian, Here is Lori's e-mail address at Hamilton Racing: [email protected]Cheers, Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend. Live, Laugh, Love & Learn.
| | | | Joined: Oct 2007 Posts: 71 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Oct 2007 Posts: 71 | My father was involved in Nascar he worked for Kenny Shrader and Darrel Waltrip etc... He also was a race car driver. He passed in 1996 ( car accident)so I have not had a lot of contact with some of the people I know. I was not aware of Bobby's wife was going to be or is a spokesperson. If you do not hear from her when you email let me know I can contact a few people to get more information. My dad was Ivan Baldwin and was working for Kenny Shrader at the time. There is a good chance she knew my dad or knew of him. You can use this info in your email to her and the info also on myself. It might help. I have share my experience with so many people and only one person had heard of Oral Cancer. The word needs to get out there. One of the actress on One Life to live has share some of her experience on the show.
Tammy 43 yr non smoker- Dx-10/11/07 Stage 4 Tongue Cancer Surg.10/17/07, 1/4 Tongue and 14 Lymph nodes 5 positive, Peg tube/Chemo port,Chemo 3 wks/Radiation 6 wks begins 11/07 end 02/08.Teeth removed prior to radiation. PetScan 05/08 CLEAR 09/09. 2011 diag. w/osteoradionecrosis.100 HBO's
| | | | Joined: Nov 2006 Posts: 166 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Nov 2006 Posts: 166 | Brian, Lori Hamilton was here at the Atlanta Speedway last year for the fall race and even then she was emerging as a spokes person for this disease. She was here with the Yul Brenner Foundation and Dr. Edie Hapner at Emory Crawforfd Hospital seemed to have a good repor with her. I still have Dr. Hapner's phone number if you don't. BB
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 | | |
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