#73524 04-23-2008 08:26 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | OP  "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | This is Saint Georges day (the patron saint of England)and much as i love all my wonderful friends across the pond,today my thoughts have been with Brenda.I know what fun we would have had exchanging the "yorkshire" isms that used to baffle some of our fellow OCF members.
Nine months have passed since my special man closed his eyes and gave in to the peace of death,and i miss him just as much .It doesn't get easier and the passing of the months seems unreal at times,but i have been hiding from the only good thing to come out of this awful mess,and that is using my experience to help others facing the most difficult battle of their lives,and for that i am sorry.
Sometimes the multitude of lost souls who find themselves here is just overwhelming,and it weighs so heavy it is difficult to find the words to encourage and uplift those facing the treatment and recovery, and sometimes it seems impossible to be upbeat and encouraging.so sometimes it is better to keep silent and wait until the blackness passes.
Spring has returned to England,and the new life,light nights and the fresh early mornings,renew hope,and lift the heart.
I am working at a hospice,and enjoying every minute. Somehow it makes me feel as if i am giving just a little bit back to the people who deserve medals for all they do,and i know Robin would approve.
So here i am back in my familiar surroundings 3.5 stone lighter fancy new hair do and ready to join in again.
To all my old friends i send my love ,to the success stories my many congratulations,and to the new members and old ones facing new battles ,good luck and best wishes.
Lastly happy St Georges day to my fellow brits.
love and hugs liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Welcome back Liz,
Never felt like you left though. I always knew you were in the background and that when you felt like you could help, you would.
Glad to see a little of the darkness has lifted and you are ready for spring with the "new you."
Your insight is important to all of us and we know Robin is proud of you.
Deb
Last edited by debandbill; 04-23-2008 08:36 AM.
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hey Liz,
You are an amazing lady, I'm sure that you give such hope and understanding to those you are helping in hospice and their loved ones.
Spring seems to make us all feel a bit renewed, doesn't it?
By the way Girlfriend....still hoping to see a picture of that new hair!!
Love,
Donna
Last edited by Donnarose; 04-23-2008 08:49 AM.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Good to hear your voice again. You are a valuable source and a great person and one can't get much better than that.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2006 Posts: 166 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2006 Posts: 166 | Hey Liz, Glad to hear you are doing well and look foward to reading more of your charm and wit again. Glad you're back. 
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Liz:
Its nice to hear from you. You are an important member of OCF and are missed when not here. You give great advice and are very kind and encouraging.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 |
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
| | | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | How awesome you are. New body, new hair, new spring "spirit" and working at hospice. I bet Robin is strutting his stuff up there and saying with great pride - "yes, that good lucking helpful one... that's MY wife"
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Welcome back, Liz. We missed you but knew your weren't far. I am so glad you are enjoying your new job. You do such a wonderful job helping other people. Enjoy the spring and try to get keep you spirits up.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Ok buggerlugs..
Not sure I should be talking to you..
While I've been busy around the house I've eaten more than I should and I've put 2lb on..AH..
Well I have a new hair do..It is spashed with white paint..
Sunshine.. love and hugs
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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