#72909 04-12-2008 06:17 AM | Joined: Mar 2008 Posts: 20 Member | OP Member Joined: Mar 2008 Posts: 20 | Hello All,
Dad has his CT (diagnostic) this week. He is ready for his Tx, had all his planning and dental visits. I am hopeful that his RO is correct and that there will be no node involvement. We will meet with his RO this week to go over his test results. He will then start his Tx 04/21. Dad's getting scared, but we are are rallying behind him. Please say a prayer for him......
Thanks,
Amanda, 42
CG to Dad 63, x-smoker, SCC Retromolar T2N0M0, Tx IMRT x 25 began Apr.21/08. Found tumour in left lung Sept. /09, Diagnosed with Stage 3A Lung Cancer Nov./09, Tx IMRT x 35 began Jan./09, Chemo began Mar. 16/09...Sadly lost his battle March 23, 2009.
| | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Amanda,
He's got mine.
Wish your dad and all of your family good luck from me.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Feb 2008 Posts: 341 | Added him to my prayer list :-)
Keep us posted!
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO) Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer, TX IMRT 39x, cisplatin 7x (completed 5/1/08), PEG (4/22 - 7/9), No port. Currently in remission!
| | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Nov 2007 Posts: 212 | I'll be thinking of you both. Good luck!
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Amanda:
I will keep your father in my prayers.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2007 Posts: 580 | Amanda, That is for certain the easiest thing I can do and I am more than happy to do it for you and your dad. I will make sure my prayer support group adds you to our prayers as well. You are certainly making your father a proud man. My thoughts and prayers for your Dad and your continued faith and strength as a loving daughter.
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend. Live, Laugh, Love & Learn.
| | | | Joined: Sep 2007 Posts: 98 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Sep 2007 Posts: 98 | Amanda,
He will be in my prayers.
Tom SCC T4N1M0 left side tongue & 1 node Dx 05/21/07 42 yrs old 40 Tx IMRT @ 70 Gy started 06/25/07 Cysplatin & 5fu 1st & 4th wks treatment ended 08/23/07
| | | | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Jun 2007 Posts: 510 | Amanda: Both of you will be in our thoughts and prayers in the coming weeks. Keep us posted as to his progress.
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement; T2 N2-B M0 Stage IV-A 28 IMRT + 6 Paclitaxel/Carboplatin Getting stronger every day!
| | | | Joined: Mar 2008 Posts: 20 Member | OP Member Joined: Mar 2008 Posts: 20 | Thank you everyone....I am honoured to have become part of this "family". I will keep you posted.
Thanks,
Amanda, 42
CG to Dad 63, x-smoker, SCC Retromolar T2N0M0, Tx IMRT x 25 began Apr.21/08. Found tumour in left lung Sept. /09, Diagnosed with Stage 3A Lung Cancer Nov./09, Tx IMRT x 35 began Jan./09, Chemo began Mar. 16/09...Sadly lost his battle March 23, 2009.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Amanda,
Lets hope for the best.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Feb 2008 Posts: 27 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Feb 2008 Posts: 27 | Amanda,
Your both in my prayers. Stay strong and positive.
Denise
CG to Mom. Dx 2/08. Mucoepidermoid carcinoma in the minor salivary gland in lower lip. Surgery 3/12/08. Margins clear but not clear enough. Surgery scheduled for 4/23/08. Surgery Successful. Clear Margins
| | | | Joined: Sep 2007 Posts: 98 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Sep 2007 Posts: 98 | Amanda,
How are you all doing? Did your dad start treatment? What are the treatment plans?
Tom SCC T4N1M0 left side tongue & 1 node Dx 05/21/07 42 yrs old 40 Tx IMRT @ 70 Gy started 06/25/07 Cysplatin & 5fu 1st & 4th wks treatment ended 08/23/07
| | | | Joined: Mar 2008 Posts: 20 Member | OP Member Joined: Mar 2008 Posts: 20 | Hi Tom,
Thanks for following up.....I'm quite touched that you have been checking on us - you are a very thoughtful man.
Dad started his Tx on Monday. We got his results from his CT & chest xray. We are very optimistic - no nodal involvement, nothing on the chest xray etc. In fact, the tumor (retromolar - behind wisdom teeth) didn't even show up on the CT. His Ro explained that the tumor is just on the "surface" of his skin - no "icebergs" as he called it. His Tx will remain @ 25 x IMRT. We have accomplished alot this week, Dad's booked into the "lodge" near his hospital. He's only a 10 min. drive instead of the dreadful 3-4 commute from our home. Mom & I will visit him midweek and of course he'll come home on weekend. We have a plan now and it feels good. Dad's spirits are up and he is coping pretty well - made lots of friends in the lodge. I think about him and Mom every hour, they aren't used to being apart or alone (I live another hour away from their place). But we are coping even though we are apart. Mom will hopefully be able to stay in the lodge with him when he needs her with him - maybe after his second week. It's really expensive for her to stay, $60/night - but it's the least of our worries. We will act when the time comes and she knows that I can offer her all the support, financial & otherwise as needed.
Dad's RO said his cancer is 80-90% curable - very good news. We know it's going to be tough, but I am so happy this was caught so early. I have some questions about his treatment, so I'll start a new thread under the "treatment" category. Thanks again for checking in Tom.....you're a kind soul, you put a smile on my face just knowing how much this OCF family cares.
Thanks,
Amanda, 42
CG to Dad 63, x-smoker, SCC Retromolar T2N0M0, Tx IMRT x 25 began Apr.21/08. Found tumour in left lung Sept. /09, Diagnosed with Stage 3A Lung Cancer Nov./09, Tx IMRT x 35 began Jan./09, Chemo began Mar. 16/09...Sadly lost his battle March 23, 2009.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Amanda:
Your dads prognosis looks good. Luckily it has been caught very early so is highly cureable. Have you called the American Cancer society about getting some help? They may be able to help with transportation costs or medications, thats what they helped me with. (I dont know if its available in Canada) You may even ask at the center your father is being treated at. There could be something out there to make it so your mom can stay with your father. Best of luck to your family.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2007 Posts: 98 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Sep 2007 Posts: 98 | That is great news about your dad and that it was caught early. It is also great that he was able to stay near the hospital. The five weeks apart will be over before you know it. Having a treatment plan and starting it is also a relief. I remember how worried I was before treatment started. I had to stay two weeks in the hospital for my chemo treatment, 1st & 4th week 96 hour drips, and thought that was going to be a major problem because I have never stayed in a hospital before, but it turned out better than I thought. If he doesn't have a phone in his room or a cell phone, you may want to look into one of those pay per use cell phones, just so he know you and mom are only a phone call away.
There are a lot of caring and knowledgable people on this OCF forum. We are all in this together and we are here for each other. If we don't hear from you we come knocking!
Now that you all know there will be side effects and it may be a rough road, communicate with your doctors and keep us posted. We are all here to help. Keep the doctors posted about his pain. If or when he takes pain meds, make sure he takes a stool softner to prevent constipation. Keep the calories and nutrition up as it is important to his healing and recovery.
Tom SCC T4N1M0 left side tongue & 1 node Dx 05/21/07 42 yrs old 40 Tx IMRT @ 70 Gy started 06/25/07 Cysplatin & 5fu 1st & 4th wks treatment ended 08/23/07
| | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Feb 2008 Posts: 341 | Amanda I just made it over to this thread (been behind in my reading) and I am so pleased to hear the great news about your dad's prognosis!! I too am very happy that he will be able to stay at the lodge and it's wonderful to hear he has made friends. Will he eat there - like a cafeteria style or does he have to go out on his own for meals? You are your mom sound like such wonderful people and I know your dad will be needing you a lot during this time.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO) Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer, TX IMRT 39x, cisplatin 7x (completed 5/1/08), PEG (4/22 - 7/9), No port. Currently in remission!
| | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | Amanda, How nice to hear that things are working out for your family in regards to the lodge. Hopefully your mother will find a way to be with your father. Even the treatment plan seems to indicate a good final result. I will have your family in mind for prayers that all goes well. Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
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