#72729 04-09-2008 12:32 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OP  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | This summer with the financial help from long time OCF supporter Laclede, the makers of Biotene dry mouth products, OCF will finally be adding full and part time individuals to move us forward and have a greater impact in the world of awareness and early detection. We have also decided that we will establish state chapters of OCF to handle free screening events, awareness events in cooperation with other institutions such as the one this month at NYU, and interface with patient groups, donors, and local professional medical and dental organizations in the state. The state chapter coordinators will be essentially handled like many other organizations, initially drawn from the ranks of volunteers and then when financially feasible, these could become at least part time paying positions as it grows. Obviously given equal skill sets, these state coordinator situations would best be served by people from the ranks of OCF survivors and family members if I have that choice. No one understands it all better than them. Anyone who has an interest in this and would like to discuss it with me, please let me know. Additionally, if you know someone who may fill one of the positions listed on the OCF jobs and grants page please feel free to refer them to me as well. Send me a PM with any contact and I'll get back to you quickly. http://www.oralcancerfoundation.org/jobs/index.htm
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Congratulations Brian. This is a big step for a critical organization that has added so much to our understanding of the effects of this disease, has increased awareness and has offered an outstanding forum for supporting those of us dealing with it's impact. You are to be commended.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Brian,
I'll send you an email (probably tomorrow)...wish I were retired already, but I'll see what I can do about the state coordinator position. You may just push me into retirement sooner than I planned.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Jerry,
You could count on me for any additional help in this.
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | A couple of people have PM'ed me about other states and I made it very clear to them that even as a part-time endeavor, this is a bunch of work. To be really successful, the coordinator needs to recruit others in their state to help them with the things that need to get accomplished. It is not a one person kind of thing.
Here is my rely to someone that wanted to take on NY
I will call you in the next couple of days to talk about this....but be careful what you wish for. First, you have to put up with me, that's a challenge in itself. NY is huge and if you take this on, given the mother lode of opportunities and things we need to wrok on, you would need to recruit others to volunteer to help you, and ride herd on them to see that people with good skill sets were getting things done, and done well. Just a for instance, we should have a relationship with the NY state dental association, hygiene association, ENT association etc. We should be doing more free screening events there. We have a killer relationship with NYU based on my many years of being friends with the vice chancellor of the school, that relationship has to be nurtured. We need to develop individual and corporate fundraising community outreach programs, speakers on tobacco cessation and risk factors at high schools..... you can kinda see where this needs to go. It is a multi-person effort in any state let alone one as big and important as NY. If I have not scared you away yet, let me know and I will call.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Brian, I would love to be some part of this effort. I would like to be on your list, so that when you are writing to the group of possible workers, I'll get the info.
As one whose cancer was overlooked and made worse by an inept dentist, I feel very strongly about education of dentists and of the public as well.
I am just completing a very demanding leadership role, and I might find that I need a break, but I want to hear about it. This is so up my alley and so very important that I am finding it hard to resist! Perhaps there might be a partnership possible here in Louisiana.
XO
Last edited by August; 04-09-2008 08:24 PM.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | There are now two of you in LA. That is a strong beginning if you both decide this is for you. I would also like to thank the others that have come forward to put their name in the hat for their geographic areas. It will only work with strong, knowledgeable people calling the shots and rolling up their sleeves. You guys are great.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | OK we have someone that is in Alabama but who can't commit to take on the challenge alone. How about someone else there that would shoulder part of the load. We're on a roll here, lots of interest. If you only think you can do part of it, and only have so much time to dedicate to it, drop me a note and say so, and we will beat the bushes for others to make an effective team in a particular state.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Looks like there is support for this Brian.
I may be opening a can of worms but, is there any thought of a similar project in Canada?
I would be willing to help out, yeah, I said it.
Good luck and best wishes for success.
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Brian:
I may be able to help Jerry and Donna occassionally here in PA.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | That would make PA the strongest group so far, and it would go a long way to having a team (which all states would have to develop) since it is way too much work for a single individual.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | OK, for those of you who have offered so far, please send me all of your contact information. (PM or email) Chester and I will begin building the state chapters page and we will need some of this. I will send everyone an email in the next few days with some opening ideas. Those of you that can, please get a dedicated email address for this. I suggest going to gmail.com and signing up for a free one there. Perhaps you should pick something generic like [email protected] If we can keep the format simple everyone can have something similar.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | This works well, I just went and got [email protected]
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Thanks Brian! It's working again.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | I'll set mine up tomorrow.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Mar 2008 Posts: 46 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2008 Posts: 46 | Good day to all,
I live in Indianapolis, Indiana. I am willing to extend my time to help start the Indy chapter. I would like to know if there are others in the state that would be willing to do the same. I know it would be some work, but very rewarding as well.
Brian, if you hear of anyone, let me know. I will help in any way.
Thanks,
John R.
Stage 4A tonsil and back of tongue and now mid tougue left side and let us not forget the Nodes.
Last edited by johnny47; 04-15-2008 01:22 AM.
Stage 4A SSC Left Tonsil, back of tongue and Lymph nodes on left side. Tonsil removed, Chemo and Radiation treatments completed on June 26, 2008.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Brian: I sent you a PM with my info. My email is all set up as [email protected].
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Brian,
Sent PM w info
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Aug 2007 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 42 | Hello Everyone, I would be happy to work in the Virginia and D.C. areas. I got the email [email protected]. Anyone interested in working in Virginia?
Lost my mother, Minnie, to Oral Cancer October 29th, 2008. I am so thankful she had the OCF to help her through her five year struggle.
| | | | | Joined: Nov 2006 Posts: 166 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2006 Posts: 166 | Brian, Count me in for Georgia. Do still have my contact information? BB
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 | | | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Well I am in for NY ..anyone else want to join me ? I know that there is a support group here about 1/2 hour 45 minutes from me .. When I get some info I am going to go to the group and present it and see who I can recruit to help get this off the ground . I can almost Bet my Ent will do as much as he can .. Ready to get moving !!!
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | OK, so far we have
Amy McCann /VA
D'arcy Alt / West VA (need all contact info still)
Christine Brader, Jerry Wilck, and Donna Amos / PA
Sharlee Ringer / NY
Michelle Reeder / AL
Malka Lew and Colleen / LA (still need all contact info for Colleen)
Bill B / GA (still need all contact information and additional help in this state)
John R / Indiana (still need all contact information and additional help in this state)
Have I messed anyne so far? Also multiple people in any state is a good thing. If you are in a state already mentioned don't let that deter you from being part of the team.
There's a lot of states left......
Last edited by Brian Hill; 04-15-2008 06:33 PM.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Brian,
I am set up at gmail
I'll email the rest of the info.
Jerry
Last edited by Brian Hill; 04-15-2008 06:34 PM.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hey Brian,
Sent you a PM. All my info is sent.
set up dedicated email:
Last edited by Brian Hill; 04-15-2008 06:34 PM.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Nov 2006 Posts: 166 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2006 Posts: 166 | Ok Brian, I just sent all my contact info. I look foward to hearing from you.
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 | | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | I will update the list of states this weekend. But I want to thank those of you that have tossed your hat in the ring right from the get go. This will really help us make progress in your states.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Mar 2008 Posts: 21 Member | | Member
Joined: Mar 2008 Posts: 21 | My husband and I are in for West Virginia...anyone else want to join us. Please contact me and let us know.. [email protected]Jake and D'Arcy Alt
caregiver to father, stage IV SCC with lesion on base of tongue and mets to right lymph nodes. Current chemotherapy taxol, carboplatin and erbitux. Will start radiation 4/1/08 7 wks, 35 treatments with questionable radiacal neck at end of radiation.
| | | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | I will be in Boston for the weekend ..so I dont know that I will be checkin my mail...But I shall be back ON MON !!!! Raring and ready to GO !!!!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Hi Brian, I'm not sure if you are planning a similar scenario for Canada but, as I stated before I would be willing to participate. I have set up a Gmail account: [email protected]Hope I can help out whereever possible. Cheers, Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Thanks Mike, I think the first thing to do is determine in your province what is the lay of the land. What do you think we can do there? What I will do is for now copy you this weekend on what I am asking of the others, which is going to be contact and fact gathering first, so we know who we need to work with in each state. Then we are going to have a discussion about with which of those contacts can we make something happen. A screening event, a media PR event, etc. So I think it shouldn't be any different in Canada, but I need to understand it a bit better before I leap.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Brian,
As you and everyone knows I always jump in with both feet to the point that many think that I am over eager. I do not view my enthusiasm in the same way. I will however, watch and view from the sidelines as you get this project going in the U.S. and try and learn as much as I can.
I guess this site, your efforts and all of the wonderful people on this site inspire me. Basically, I feel I can help.
I agree with the, "look before you leap.", and only want you to know that when the time is right I'll help.
Rome wasn't built in a day but, I was cursed/blessed with a mind that never stops.
Cheers Brian,
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Brian,
I will try to check back later today and will be off until late Mon or early tue and then off Fri PM 25th - late Sun 27 or early Mon 28th.
I have been "privileged" to be hit with a 3rd form of cancer and will have a lumpectomy Wed 30th. There will be follow up radiation TBA. I am still committed to this project and am assuming that all will work out well. I am just very aggravated over this latest episode.
BTW, I orderd the new bag yesterday and forgot to order more of the patient information booklets. If you can, please add to the same order before it ships out.
Praying for good weather and great results for the NY event.
Malka
Last edited by Malka; 04-18-2008 01:40 AM.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Malka,
I had breast cancer and oral cancer treated back to back (actually partly simultaneously) and I can promise you that if you survived oral cancer radiation and chemo (although looking at your signature line, maybe you didn't), the breast cancer lumpectomy/sentinal node removal and radiation (assuming that is what they have lined up for you since you mentioned a lumpectomy?) will seem like a piece of cake. And there is way more support avialable if you have breast cancer than for those of us with oral cancer.
Still, I don't mean to downplay your aggravation. I can understand it all too well! You'll be in my thoughts.
Brian and Sharlee, Sometime in the hopefully near future I would definitely be willing to share the work for the New York OCF branch. However, I am still facing a lot of challenges in terms of surgery for structures and possibly a more serious surgery for my trismus in the near future and between that and a lot of work commitments right now, I don't want to commit to something I then have to back out of because of other obligations. I feel like right now I barely have adequate time to hold together work, medical treatments, and the various mouth care and swallowing-issue things I need to do each day to make sure nothing gets worse.
But please keep me in mind if somehting comes up several months from now--maybe things will have gotten better.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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