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That would make PA the strongest group so far, and it would go a long way to having a team (which all states would have to develop) since it is way too much work for a single individual.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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OK, for those of you who have offered so far, please send me all of your contact information. (PM or email) Chester and I will begin building the state chapters page and we will need some of this. I will send everyone an email in the next few days with some opening ideas. Those of you that can, please get a dedicated email address for this. I suggest going to gmail.com and signing up for a free one there. Perhaps you should pick something generic like [email protected] If we can keep the format simple everyone can have something similar.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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This works well, I just went and got [email protected]


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Thanks Brian! It's working again.


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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I'll set mine up tomorrow.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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Good day to all,

I live in Indianapolis, Indiana. I am willing to extend my time to help start the Indy chapter. I would like to know if there are others in the state that would be willing to do the same. I know it would be some work, but very rewarding as well.

Brian, if you hear of anyone, let me know. I will help in any way.

Thanks,

John R.

Stage 4A tonsil and back of tongue and now mid tougue left side and let us not forget the Nodes.

Last edited by johnny47; 04-15-2008 01:22 AM.

Stage 4A SSC Left Tonsil, back of tongue and Lymph nodes on left side. Tonsil removed, Chemo and Radiation treatments completed on June 26, 2008.
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Brian:

I sent you a PM with my info. My email is all set up as [email protected].



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Brian,
Sent PM w info
Malka


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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Malka #73134 04-15-2008 03:40 PM
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Hello Everyone,
I would be happy to work in the Virginia and D.C. areas. I got the email [email protected]. Anyone interested in working in Virginia?


Lost my mother, Minnie, to Oral Cancer October 29th, 2008. I am so thankful she had the OCF to help her through her five year struggle.
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Brian, Count me in for Georgia. Do still have my contact information? BB smile


Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 smile
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