#72387 04-03-2008 07:04 PM | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Just thought I would drop a note (since I haven't been able to be on too frequently these days) and update you all on my Dad. Since I last posted, things have been fantastic! The tumor/Cancer is gone, radiation and chemo did its job. He still has a PEG and still cannot swallow, but will be going in for therapy. Surprisingly he is now GAINING weight... which is such a blessing considering that not too long ago we thought he would be in the hospital for dehydration/ malnourishment!!! His team is thrilled with his results, and are amazed at how well he is doing compared to most with his type of Cancer and at the stage of recovery he is in. He is actually up and out of his chair now, doing things around the house like before, cooking for Mom again... and overall has a feel as though he wants to fight this and not feel sorry for himself. So, we are most encouraged and hopeful that he will continue to get better and better with each day. We also hope and pray that it does not come back. The Dr's seem confident that they got it all and that it did not spread. One day at a time is all I can say!
Thank you to everyone here who has helped me along the way during this horrible ordeal. Without this board, I would never have made it. You have taken me under your wing and guided me in ways I will never, ever forget. Thank you for allowing me to ask a million questions, cry on your shoulders, and complain! You have no idea how much it means to me and my Mom to be able to come here for support when we felt down and out.
And Brian... You are the best! God Bless You!!!
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | What wonderful news and so uplifting to hear. I pray that things continue to improve for your family.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Tremendous good news. I hope your dad's recovery continues to be swift and complete.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Way to go. Caulk one up for the good side.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 | Great News !!
Wishing him a lifetime of remission!
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | LD,
What a wonderful way to start the day...hearing your good news! So glad your Dad is "back in the game" and things are looking so positive.
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Larry and family,
This is beautiful news. May you go from strenght to strenght and have a complete recovery. Please continue the updates.
Tell the doctors that there was another member of the team that helped in this "amazing recovery" - the OCF forum.
The best way we can thank Brian is to spread the word about OCF.
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Thanks for the update. I have often thought of you and your parents. Your dad went thru a very rough time, its so nice to hear of his improvements. Gaining weight is a very good sign. Did he ever switch to the overnight feedings? Congrats on the cancer being gone!!!! It will only get even better from this point 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Thank you Christine, Funny you should ask about the overnight feedings, I failed to put that in my update, and realized it shortly afterwards. No, he did not ever need them. Amazing to me that he did such a turnaround!
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Thank you Malka, My Mom had told ALL of his doctors, nurses, etc about this site and how it helped us. Can you beleive none of them knew about it? Jeesh... well, they sure do NOW! I only hope that it will help others in my Dad's home area now with the knowledge!
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
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