| | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Scared,
Welcome, but I too am sorry you are here. As you see from the above posts there are lots here who will help. This site has been a Godsend for me. It made my treatment less difficult with all the helpful advice about emotional and practical issues.
You have my prayers and all of our help, support and whatever else you need
Tim
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
| | | | | Joined: Jan 2008 Posts: 3 Member | | OP Member
Joined: Jan 2008 Posts: 3 | Thanks for all the positive vibes! We are working through this step by step and staying positive. We are laughing about things today and will be gathering as much information from the specialists at the next appointment.
I love the words from "You'll Never Walk Alone...." I also love the poem that was suggested...especially the words..."I am Master of my own fate and Captain of My Own Ship" (hope I got that right). Those words are inspiring...often how I feel about life, and it is the attitude by BF is taking, a very positive one.
I think it is most helpful that we are researching, getting 2nd opinions, going to one of the best centers for care for a complete evaluation and guidance, and visiting sites like this, where we can find information and support like this.
Thank you all! It is valued and appreciated.
Last edited by Scared but Hopeful; 01-16-2008 01:33 PM.
Best Friend of newly diagnosed SCC of tonsils. Need your help, support and prayers. Having difficult time coping. Love of my life.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | That song goes back further than the 70s for sure. I graduated in 1953 and our high school choir sang it.. i guess i sang it too seeing as i was in the choir 4 yrs LOL How u feeling Brenda abd how are the meds?
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | You are both in my prayers
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Jan 2008 Posts: 1 Member | | Member
Joined: Jan 2008 Posts: 1 | TOM JUST DIAGNOSED SQUAMOUS CELL CARCINOMA STAGE 4 START CHEMO TOMORROW RADIATION TO FOLLOW NECK MASS NOT SURE WHERE OR HOW TO POST NEW AT COMPUTER CHAT OR FORUM NOT SURE IF THIS IS POSTED RIGHT | | | | | Joined: Jan 2008 Posts: 82 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jan 2008 Posts: 82 | Tom,
First thing... take a deep breath, hold it and relax. You are yelling at everyone when you use all capital letters (as part of internet etiquette), and I don't think you mean to be shouting at anyone, though I am sure that you are rather desperate at this point. Turn your Caps off at the 'Caps Lock' button on your keyboard (left end) and you will see the capital 'A' light (right upper) go off on your keyboard; then you won't be yellin' at all of us.
Secondly, you have found the right place to talk, resolve your fears, and ask tons of questions. There are many, many people here who are willing to help you... even with the 'internet' thing, and keyboarding, etc., etc..., so you can relax for a second, back off and regroup... then you are on your way. This is a wonderful, 'merry band' of folks. Godspeed.
John - Proud to be here...
Hemiglossectomy 08/02/07, 4 lower molars extracted prior to 6 weeks IMRT 09/10/07-10/19/07, SCC w/met to L neck lymph nodes, rad only, no ND. PEG 10/26/07-02/05/08.
"We're all in the same boat in a stormy sea, therefore we owe one another a terrible loyalty."
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Welcome, Tom - So glad you found this site! You will find lots of information here that will help answer any questions. Hope everything goes well, tomorrow. It helps to bring someone with you if you can - not just for moral support but to help remember what information or advice the doctor might be giving you. Let us know what happens - we'll be thinking about you and wishing you well!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hi there.
if i were you i would click on the introduce yourself board,and then slowly post the story of the facts that brought you to this point.this will give us all a starting point to follow your progress.
good luck and welcome
liz
C.S. Lewis
Friendship is born at that moment when one person says to another: "What! You, too? Thought I was the only one
Last edited by Cookey; 01-31-2008 08:03 PM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Mar 2008 Posts: 21 Member | | Member
Joined: Mar 2008 Posts: 21 | Hello and welcome,
I too am a healthcare professional and my father was diagnosed with stage IV cancer of the head and neck with similar symptoms as your friend. You have certainly came to the right site for support, compassion and the answers you are searching for. I have found this site to have the most comprehensive information and we all are hear for you. My father starts his first 6 hr chemo treatment in the am followed by soon to start radiation tx.'s. Please keep him in your prayers and we will be praying for you and your friend.
D'Arcy
caregiver to father, stage IV SCC with lesion on base of tongue and mets to right lymph nodes. Current chemotherapy taxol, carboplatin and erbitux. Will start radiation 4/1/08 7 wks, 35 treatments with questionable radiacal neck at end of radiation.
| | | | | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | ORIGINALLY POSTED BY MONCHAMP ABOVE(TOM IN ARIZONA):
TOM JUST DIAGNOSED SQUAMOUS CELL CARCINOMA STAGE 4 START CHEMO TOMORROW RADIATION TO FOLLOW NECK MASS NOT SURE WHERE OR HOW TO POST NEW AT COMPUTER CHAT OR FORUM NOT SURE IF THIS IS POSTED RIGHT
--------------------------------------------------------------
...just wanted to BUMP this post, as there were no responses to Tom..I'm sure he would welcome our support
(I e-mailed him directly and he stated that he is undergoing chemo...I would REPOST under proper topic thread if I knew how, so that he could respond and ask his questions, as he states that he didn't understand where to post his first question...)
Lois & Buzz in NC
Last edited by emmylou1951; 03-13-2008 03:50 PM.
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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