#71237 03-09-2008 10:55 AM | Joined: Mar 2008 Posts: 1 Member | OP  Member
Joined: Mar 2008 Posts: 1 | This is my first online support so I hope I get this right. I | | | | | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | Hi Sue welcome to a great pleace.
I had the same problem for a with mucous for a while, my hospital gave me a number and i was able to get a suction machine, i found this so wonderful with the thick mucous it really helped a lot maybe you could ask about this....also they delivered it and came and picked it up.
wishing you well and a speedy recovery
Debz
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
| | | | | Joined: Sep 2007 Posts: 98 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Sep 2007 Posts: 98 | Hi Sue,
Something that helped me with my mucous problem was rinsing my mouth with a baking soda & salt mixture. In a 1 quart plastic bottle I mixed with water 1 table spoon of baking soda and one table spoon of salt. I went through at least a quart a day rinsing all the time say and night. It helped break down the mucous. This also helps keep your mouth clean.
Feel free to post any questions or conerns you may have.
Tom
SCC T4N1M0 left side tongue & 1 node
Dx 05/21/07 42 yrs old
40 Tx IMRT @ 70 Gy started 06/25/07
Cysplatin & 5fu 1st & 4th wks
treatment ended 08/23/07
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Sue,
I and welcome to the OCF and it's never to late to benefit from this great site. Sorry that your thick secretions have continued. What have your doctors offered up?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Hi Sue, Welcome to OCF. Almost all of us here are familiar with the thick mucous from radiation and have struggled with it. I found cough syrup with guafenesin helped make the mucous less thick and more manageable. If you can swallow a large pill, you can also take Mucinex which has the same ingredient--guafenisin--but its time released so it lasts for longer.
How is your swallowing going since you have the mucous problem?
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | I took rescription guafenesin pills, but they are huge and difficult to swallow. A suction machine also helps. Should be covered by insurance but if it isn't it, only $25 to $40 a month to rest. Ask dr for script.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | |
| Forums23 Topics18,168 Posts196,924 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
